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E15: Advocacy, Fundraising, and Rambling
34 Plays14 days ago
Annnnd we’re back with another episode! This time we dive into all things advocacy around brain cancer. We highlight the incredible things our superhuman mom is doing as an advocate and caretaker, and we touch on other outlets for fundraising, advocating, and getting more involved in the brain cancer community and fight.
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Transcript
Opening Remarks
00:00:04
Speaker
Back in the stew. It's been a while because I think we've just been really busy and have no other excuse. Well, we've also not been in the same place for a while. Yeah, that was part of being really busy.
Recent Travels and Family Time
00:00:16
Speaker
Where have you been? You were in Boston. I was in LA. Around. I was just in Boston for a while. You were. How was Boston? It was nice. Yeah, so I was home in Boston for like 10-ish days, like almost two weeks.
00:00:31
Speaker
um I was there to hang with my dad. While our dad. Fine. I always do that. Our dad. um While our mom was actually doing some pretty cool stuff that I think we want to talk a little bit about today. Our mom was down in D.C. She was doing like sort of a combination of things, but she was basically doing some great stuff with um the Brain Tumor ah Society. The National Brain Tumor Association. association I think it's society.
00:00:57
Speaker
N-A-T-L.
00:01:01
Speaker
It is society. That's national. Oh, shit. It's national. We were both right. Yeah. National Brain Tumor Society. well because I said, I was like, oh, the Brain Tumor Society. And she was like, ahem, national. Yeah, so
Mom's Advocacy and Achievements
00:01:12
Speaker
that's... I'm fearful to even explain what she was doing because I know I will get some of the details wrong and she's very... She's detail-oriented.
00:01:18
Speaker
Very detail-oriented. But anyway, I'll try my best, Mom. Apologies if I don't get everything right. We'll have to take you on here correct us soon. But basically, she was down there. First, she did...
00:01:30
Speaker
Ran a 5K. She ran the entire thing like a boss-ass bitch. Really fast. Really speedy. I don't think I could do that. She's an athlete. I know. Well, she started her running journey again right now. I know. And now she's biking. She called me on the bike the other day. And I was like, maybe don't bike and talk.
00:01:45
Speaker
she She can do it all. She's a good multitasker. She is. She can do it all. She's an octopus. But anyway, the octopus was in D.C. And so she ran this five k Her sisters joined her, which is super cute. And one of her best friends from high school.
00:01:58
Speaker
Right? Yeah, her best friend from high school. um So they all ran, which is amazing. it was like raining. They did it anyway. It was great. I feel like every time mom runs a 5k for like a charity, it's always raining. And I feel like it's just like added drama.
00:02:11
Speaker
It's so She's like, oh, and then I went in the rain and I'm like, raise the money in the rain. Like it's really, just, it's a whole other layer. But I like it. Biking in the rain. It's cool. It's dramatic. That's what it feels like. Sure. so she was there. Um, and then basically for the next few days, she was actually serving as like an advocate, um,
00:02:32
Speaker
for specifically like with the national national brain tumor society as well um but like going um all through congress all on capitol hill really going and meeting congress people um yeah i think well a big reason why this is a bigger issue than it's been in the past is because of the federal funding and has been cut really significantly i read a stat earlier this morning actually that since trump has been um Office. The office, which I'm still struggling to wrap my head around.
00:03:04
Speaker
um Since he's been the office, just cancer funding overall has been slashed by 30%. Like he's done that in just a few months. um It's also just like a lot of medical funding too. Yeah, well, like exactly. And with like RFK's office stuff, and I don't want to speak out of term politically because I'm not as up to speed as I want to be on this stuff. I just know it from the vacuums that I listen to it it um But that said, like, there was just a major, major pause on any sort of federal funding for any sort of cancer research or research in general while they were like, quote, figuring it out.
00:03:36
Speaker
But that's now months and months and months lost of funds that like are really, really close to finding cures and treatments for cancer. terminal illnesses that you only have nine to 12 months to fucking figure out. The time is even more, um, and like sacred, I guess. Yeah. And it's also precious. I like that better than sacred, but it's also so frustrating because the time lost with like the freeze, like impacts so much in the future too. Yeah, no, I mean, and, and,
00:04:04
Speaker
a dumb analogy but if you think about like the writer's strike like we're not gonna have there's gonna be a period of time where like no good movies are coming out because they were on strike and now whatever it's like the the long-term ramifications is what yeah so she was there she was there for the brain act which is focused a lot on um she was advocating she specifically was advocating obviously for like increase in funding and awareness and all of that stuff so she also was specifically meeting with Congress people in Massachusetts to discuss MAIDS,
Advocacy for Dignity in Illness
00:04:33
Speaker
M-A-I-D-S. It's medical assistance in dying. It used to be called physician assisted suicide, but they don't call it that anymore because that's politically incorrect and also just like, it doesn't make sense. like Yeah, so medical assistance in dying. So basically, there are a bunch of states, not a bunch, there's a handful of states throughout the country where if you are diagnosed with a terminal illness and you were at the end of your road and you don't want to go through like the weeks or months or however
00:04:56
Speaker
terrible the hospice situation is when you lose the ability to speak, to swallow, to take care of yourself, to go to the bathroom on your own, to walk. Like when you're, it's literally that phase. And we hear when we speak with people who have lost parents or loved ones,
00:05:11
Speaker
to terminal illnesses, like the last couple of weeks, like is not how you want to remember that person. So no, it's hard for the caregiver to like, yeah, and it's hard for the person and the caregiver. And I think like this act specifically what our mom is doing and and as advocating for so beautifully is to have that be an option in Massachusetts, because right now, like if you decide to end your life prematurely, regardless of the death sentence that you've been given,
00:05:36
Speaker
it greatly affects like what happens with your assets how your family yeah exactly it's like it becomes a whole issue so it's sort of like if you don't want to fade to dust as our dad says um you you sort of need to go to one of these other states and figure that out um so which is like possible like there's some near us like Vermont is one I know but it's like It's just another layer. like Like, it's another layer to a situation that, frankly, like, absolutely sucks.
00:06:06
Speaker
It's also just a choice and, like, a sense of, like, dignity, too. of like Yeah, it's all about choice. I have a lot of emotions about it. That's why I almost didn't want to talk about it. But, like... No, it's fine. But I just think that at the end of the day, it's like, it still would be the individual with the terminal illness or disease or whatever it might be that is like taking like the pill or whatever it is.
00:06:26
Speaker
Yeah. Like it's not, no one else can give it to you. It's like very, very autonomous and very like person centered. You're reclaiming the last bit of your life. like And I think that's important. And I think that's so, yeah that's exactly right, Haley. Like it's,
00:06:40
Speaker
I think it's for people like that, like pre brain cancer, pre all of this dad had always been like, Oh, if I start to lose my mind, like I'm just going to walk into the ocean. Like that was always such a big thing for him as he was like, I don't want to. Very anti-DNR.
00:06:53
Speaker
Literally. He's like, I, yeah he just didn't ever want to. i think he watched his dad go through the deterioration of having Alzheimer's and dementia And he didn't want that for himself. So now we're so we're faced with a situation where he is so focused on making it the easiest for us.
00:07:12
Speaker
But I think the easiest thing for us is going to be making sure that he's doing it the right way for him. Yeah. That's sort of how i'm I've been justifying. I think that I agree with that too.
Community and Family Inspiration
00:07:21
Speaker
um So anyway, to bring it back to the advocacy, our mom has done an unbelievable job of just between the brain act and and pretty much everything, like being just a world-class advocate. And I think she's always been one. She's was like always been charitable, philanthropic. She's always been working charities, foundations. Like she was at, the um, she, what a place to turn the food pantry in Natick for a million years. She also literally just texted, especially now that we've moved to Boston. She just texted us today. i just think it's hilarious as we're recording.
00:07:58
Speaker
She's at like the National Alliance on Mental Illness like event on the commons right now. And think of like she's sending videos of it. Like she's just like, she's always involved with like community and supporting. yeah And not because it makes her feel better. Like she genuinely wants to help and be a better person. And that's something like I look at her.
00:08:14
Speaker
She's very passionate. But I look at her and everything that she's able to do. And I'm like, I want to take like, and i And I think with just this whole journey with dad and with everything, like I've definitely been going the, okay, I want to be selfish route. I need to be taking care of me, feeling good about me, and like also helping in other ways.
00:08:33
Speaker
But I think like her auto is to just automatically be like, I'm going to get involved as much as possible, raise as much money as possible. Help my husband, help my husband, but also help other people. Like she's so focused on just being the best human being on this planet that you can be. And that is so inspiring to me. Like, I don't think I'm anywhere near the level that she is. And I strive to be like that. Yeah.
00:08:56
Speaker
She too.
00:08:59
Speaker
It is, about but it's amazing. And she's always been like this. But you're right, like in such a like shitty time to be able to actually not even just like continue on with your passion and like being philanthropic and like advocating for other people and like something so important, but like to use that and make it stronger and like share your own experience as in a way that that will help people and hope hopefully help us, but like yeah help others. It's just like really admirable.
00:09:27
Speaker
She has such a strong voice and to be able to share that voice and those passions and make them make a difference. Like that's where I think, and and we can get into some of the fundraising and stuff that we're doing. Cause I am really proud of that. And I'm so happy that you should talk. We're involved in that too.
00:09:43
Speaker
um But to like, see our mom just like gun it down, down to Washington DC. And like, schedule all these meetings with congress people and walk in and like have an agenda and a point of view and a fight like it's so impressive also like so i was home with our dad our dad and then she when and she came back um like really early wednesday morning i remember because so i was like sort of like um hanging with my dad and then also like taking care of the dog And my mom texted like super early and she was like, just landed. And I was like, oh shit. Like ran downstairs, like cleaned the kitchen, walked the dog, fed the dog.
00:10:18
Speaker
And like, she wouldn't have cared, but I just like, was like, oh, I want to make sure like I'm taking care of the home. And like, she she knows it was in good hands. But anyway, I was joking with dad and I was like, she's going to come in hot. And she did, but like, it was so endearing. Like she was so, she was running on literally no hours of sleep, but she was so like, her passion was emulating from her. And she was like, and then I met this person, like the people she met and connection she made too is like so great for her support system. And just like in general, like a little like break from caregiving and a chance to like socialize and like have fun. And that's so fun. I literally could cry. I love her.
00:10:54
Speaker
She's so perfect. I'm like, so obsessed with her i know i like have goosebumps hearing you talk about just her like coming in hot because you can so picture it too she's just she was like laying on the floor talking about it and she it's so cute like all the friends she made who i think she said some of them are tuning in are going to tune into the podcast so shout out friends um no really like it's again and i think we go back to this theme the time It is so hard to be going through this situation. And I think like this week specifically for me and my husband was out of town for work. So Haley came over and slept over one of the nights because I'll wash the sheets well.
Coping with Dad's Cancer
00:11:31
Speaker
I slept on your side.
00:11:32
Speaker
Yeah, he's weird about that. um But she came over because I think I was just like, and for no rhyme or reason, i was just having one of those weeks of like, not even self-pity, but I was just like, it is so fucking mind-blowing and dumb that this is happening like to and to anyone but to anyone like i'm not even saying like oh just to us like no it's that this would happen to anyone that anyone has to go through this it it like hurts me and i'm just like so there's moments of the day where i forget that this is happening but there's so few and far between um and then i remember like
00:12:12
Speaker
Oh yeah. Like our dad literally has brain cancer. We're on a shortened timeline and it's, I feel like we do a good job of not thinking about the bad things or the future or the end, or I think we've.
00:12:26
Speaker
At least not 24 seven. In the last couple of months, we've done a better job of it, but I just sort of at this week, I was just sort of like, fuck. I mean, that happens. Yeah. And we always say it ebbs and flows and I was like fine this week. So that checks.
00:12:38
Speaker
We always, yeah, it was just, it wasn't even like, uh, like I can't get out of bed. I feel depressed, whatever. Cause that wasn't it. I was like going a million miles an hour, but while I was going a million miles an hour in the back of my head the whole time, it was just like, Hey, like, what's the point?
00:12:53
Speaker
Yeah. Kind of. No. And I don't know. I mean, I was, sad i I was really sad this week and that just, that's how it is. does I cheer you up with our sleepover? Obviously you cheered me up We had a really good time. Um, but anyway, so I don't know why.
00:13:07
Speaker
Well, I think like one of the things, one of the reasons why I was feeling that way specifically is that a a friend and avid follower actually of this podcast, who's been just an amazing resource and an amazing person, um lost his mom a couple of weeks ago and she'd been battling for a really long time.
00:13:27
Speaker
And I just found out the other day that she had indeed passed and it just sort of like I don't know, to have seen him be so positive throughout all of this, even throughout the end of of her stuff.
00:13:40
Speaker
I was just like, you're so strong. You're so strong. It's amazing. And even being so strong, like it still ends in the same result. And that was just sort of heartbreaking for me. And i've I've been thinking about him a lot and it made me sort like, we haven't recorded in a couple of weeks because busy and whatever.
00:13:58
Speaker
And I, because I didn't feel great this week, I was sort of like, oh, I don't really feel like talking about this. I don't really feel like recording, and but I really, I had him in my head being like listening and telling me specifically what if the podcast was helpful for him and how much he liked listening to just other people's stories. And I was like, okay, if I'm not going to get up specifically this time and do it for myself, like I want to keep this type of conversation going for people that need it while they're going through it and need it while they're
Podcast's Role in Support and Advocacy
00:14:25
Speaker
on the other side of it. and So yeah.
00:14:27
Speaker
Anyway, a little. Well, that's why we did it in the first place, too. Yeah, it is. So even if we dread we always dread it first and then it's fine when sit there. know. We're always like, oh, we have to hang out. Especially when I do the setup. It's great. No, that's what this is. But no, anyway, and not to like go far down that. It just I i like to blurt out the things in my mind. I think that's why we did this anyway.
00:14:47
Speaker
We know. There's the blurt. Blurt. Blurt. But anyway, back to sort of, I think one of the other things that we wanted to talk about today was just in the genre and the scheme of advocacy and fundraising and helping because there's such limited funding right now.
00:15:05
Speaker
um I think we've talked about this on the pod before, but just the organization that Haley and I have found and become pretty involved in, glinten Gray for Glioblastoma. um Do you want to follow it? It's amazing. yeah um Started and I guess founded by...
00:15:21
Speaker
this girl around my age, which is incredible, Kate, she's fabulous. We started, created a relationship with her now. Um, and she lost her dad and shares her story.
00:15:32
Speaker
Um, but basically started this nonprofit, amazing foundation. That does a variety of things. um It's very big on advocacy, obviously. They have merch. We should be wearing our sweatshirts. I know. I was literally just thinking about that. I've been living in it. I've had to wash it like three times. I haven't washed it. That's disgusting. It smells. It smells. high That's why it's in laundry now. well oh it's ah It's amazing. She has all of like everything she's doing. Like events. She throws multiple events a year. Everything from big galas to workout classes. Exactly. Which one of them we're actually attending to. tomorrow wait um to just all of these different types of fundraisers that are working with influencers, brands, um other people who have lost loved ones, parents, siblings, children, even to glioblastoma. So just trying to raise awareness of how little funding and little attention there is for this illness that does not have a cure. Yeah. um
00:16:25
Speaker
And just spread awareness on like literally what it is. Yeah. because i think I had never heard it when I got diagnosed. They were like, oh, glioblastoma. And I was like, interesting. And then I Googled it and I was like, shit. Fuck. um Don't Google it. No, literally. They're like, don't Google it. I'm like, come on. Like, I got this. um But anyway.
00:16:42
Speaker
Anyway, yeah. It's an unbelievable foundation. Great for glioblastoma. We've posted a lot of their stuff, I think, in the past. We'll continue to do that. But there Kate and the team are putting on an amazing and event in the Hamptons on the weekend of June 6th and seven Stunning of event.
00:16:57
Speaker
7th, 8th. some well if that It's that weekend. yeah It's on the 7th, I think. Absolutely stunning event on the Hamptons. That's going to have all these activations, food, speakers, just like an unbelievable, well-curated evening for people who want to join the cause and help this fight. yeah um Haley and I have been working on the committee to help plan it.
00:17:20
Speaker
Unfortunately, neither of us can go, which is just the worst. Because it's going to such an amazing event. Well, it's one of my bestest friend's weddings, so... I feel like that's a good excuse. You do have a better excuse than I do, but I i have a trip that I have been planning.
00:17:34
Speaker
It's fine. We know. um but But anyway, we're we're helping. And even knowing that we're not going to be there, just knowing that we can bring in sponsorship or bring in gift bags or just be helpful with auction items, stuff like that. Bring people, um anything that we can do to help.
00:17:51
Speaker
with awareness i think has been a big focal point for us specifically over the last month like i think we've really pivoted into okay we've been doing this like how can we really help and how can we really raise money and and drive awareness beyond our small but mighty maybe podcast and i think it's interesting because right now it's may and that's like national brain tuber awareness month yes mom's probably gonna crack me So there's this whole like push of like go
Fundraising and Awareness Campaigns
00:18:18
Speaker
gray in May. So gray nails.
00:18:20
Speaker
You can't really see. Emmons are sort of gray. Gray shirt. Oh, I'm wearing gray shirt. Good job. I didn't even plan it. I have gray toes too, but I'm going to show you that. I think have gray underwear on, but no one wants to see that. We can't show our toes our underwear on this, I don't think. Why not toes?
00:18:34
Speaker
Anyway. I, um, I think that that has been like a big push, at least for you. And I want you to share what you have started this month. Um, but also just like, it's been over a year. I think we have started to maybe don't accept, but just like lock in a little more. Like I think maybe mom doing advocacy and things like I'm ready to like do more.
00:18:56
Speaker
i i feel like what I've been feeling now at the year mark of his accident is more like impending doom. But I think, and, like just to let be straight up. But I think to combat that, like, and then I guess I can get into a little of what I'm doing. Yes, you should. um Even prior to working with the great for glioblastoma women who, as we've said, have been just unbelievable.
00:19:19
Speaker
um I, when I turned 30 this year, yeah I wanted to do something like in my head, I had that I really want to raise $30,000 turning directly the doctors and um that would go directly to the doctors and scientists that are treating my dad and working on finding that. Like at MGH? At Mass General, yeah. So one of his main doctors was a big participant and um leader in the CAR T therapy research, um which is, I think at this point, there's a couple of different trials being held of like procedures and treatments that could break up tumors and could at least extend life by a couple of years.
00:20:01
Speaker
um it's the most promising one that that we've seen. And it was sort of all the articles that we were reading when our dad was initially diagnosed. And then lo and behold, he's working specifically with that team that developed that treatment or has been a front runner across that treatment at Mass General. So I really wanted to be able to raise money that was go that would go specifically to that team. And not just, I mean, of course, a driving reason is because they're treating our dad, yeah but also just because they're so...
00:20:30
Speaker
advanced in terms of like, like though the, the woman who was leading the charge, the doctor who's leading the charge when federal funding was cut was like, it's couldn't be worse timing. Like we're so close. yeah Like they are so close and they need now more than any time just funding so they can continue this research. And like the direct funding to them, like that's so helpful because I feel like a lot of the times it's big organizations that are yeah receiving it, but that's like, it's just, it's very. And if it could be going and it could be going anywhere, which is great. We want to, and I'll bring cancer and solve everything that touches this space.
00:21:06
Speaker
um But specifically for GBM and Cart T Therapy, I was really adamant about raising money for that group. So anyway, um I was trying to figure out like, okay, why what's like 30 for 30, $30,000 turning 30. Like what what else is a 30? 30, 30, 30. ESPN, what else can i do that would like make sense in this fundraiser? Like, is it a comedy show? Is it a race? Is it whatever?
00:21:34
Speaker
um My husband pointed out that the circumference all around Manhattan proper... is that Manhattan? Yeah, i'm got skinnier by thigh Oh, great job. um The circumference all around Manhattan proper is just over 30 miles. I think it's about 32.
00:21:50
Speaker
And there's this whole thing called, like, the Great Saunter, and people, like, walk the trail every year. also feel like I've been, like, seeing people that are like, let's walk the entire length of Manhattan on a Sunday, like, on TikTok. Oh, those people are... aishious so that's Yeah, I'd never do that on a Sunday, but anyway. I'm saying it's a trend, for sure. um yeah so So I liked that idea, and I put together this mini fundraiser that launched last week.
00:22:14
Speaker
um Maybe this week. I think it launched on Monday. It's been a long-ass week. Yeah, it did. I launched it this past Monday. That's awesome. Well, we've already raised like $8,000, which is great. Or maybe $7,000. Hopefully I'm not lying.
00:22:30
Speaker
um I've been lying. I knew that all the time Yeah, it's really hard. um But so I broke out just the map of Manhattan and broke it out by mile. And the way that this one's going to work is between now and July 16th, which is glioblastoma awareness day.
00:22:48
Speaker
And also the day that our dad was officially diagnosed last year, which is A little weird. Very, um very. i'm I'm asking people to pick one mile, either alone with a partner, with a group, whatever. Each mile needs to raise $1,000.
00:23:02
Speaker
ah thousand dollars So if I'm doing my own mile, I'm raising the thousand by myself. If me and Haley are doing it together, we're each raising $500 and so on and so on. um But each mile around Manhattan is now having a designated person or team to raise that money, wear gray, and then at any given time between now and July 16th,
00:23:20
Speaker
run that mile or walk or walk or walk or crab walk like we're not precious um rollerblade no that's cheating okay fine it has to be by foot um like drive no anyway um so they can wheel barrel we could wear a dad no i meant like the hands and like the legs literally no had to do that this weekend and i got battle wounds okay anyway Um, we're derailing.
00:23:46
Speaker
But anyway, so the the idea is that everyone's going to be responsible for one of these miles. I'm asking them to wear gray film, like 30 seconds of their run, walk, crab walk, what have you and skip.
00:23:59
Speaker
so Sure. And by the end, I'm planning to stitch all of the videos together. So we'll have an entire like Manhattan skyline sequence.
00:24:09
Speaker
of people wearing gray and raising money for this disease and for Mass General Hospital. um So we have until July 16th. We're about halfway, almost half.
00:24:19
Speaker
No, we're a little under halfway to the goal. But again, it's four days old. So I'm hoping we can get there. And I am hoping that some big burly men will sign up for the ah the miles that are up in the bro Bronx because none of our friends wanted to do that. My my friend's boyfriend and his friends are doing it. Great.
00:24:35
Speaker
Also, like, it's fine. It's fine. I go there all the time. Yeah. um I also said, i said to my friends that are doing it, because a lot of them are jumping on it, we're like, I said I'd walk or run with anyone if that was doing it.
00:24:46
Speaker
Yeah, same. Because, like, I got to go my steps in. No, like, I'll do any of them. Like, I've raised my thousand, I'll do any of them. But, like, but anyway, so it feels like a fun thing that we can do, and then hopefully the visual will help raise awareness. And for me, just knowing that I've been able to curate $30,000 give directly to
00:25:05
Speaker
this doctor and my dad's team like that it just that stuff I think in this doom and gloom and sadness makes things a little bit better for sure I feel like we're really trying to do something for us and for other I mean you thought of such a creative way to raise money and like such I love that it's so um interactive because I think so much of like so So much in like advocacy and granted I've taken like two advocacy classes at school this year. So like. So you're genius. So I am a genius. I'm a math genius and a regular genius.
00:25:39
Speaker
I'm a math genius. we Why did we used to say that? You said it. Oh. I would be like, oh Haley. like I'm not. I was horrible. you need help and homework? And you were like, Emma, I'm a math genius and I'm going to Dartmouth.
00:25:50
Speaker
Well, neither of those things are accurate. So. Colgate was fine. Shit. um It was. It was perfect. But I like. um I just think so much of advocacy is awareness and like knowledge and knowledge power. Like that's such a cliche, but it's so, so true. And like awareness and just like, like posting on Instagram or like getting like, ah like of this video, like someone watches it and they're like oh that's cool. Everyone's in gray and they're all really cute and running. Like, that's awesome.
00:26:16
Speaker
And then they'll look at it and be like, oh, I didn't know about this. This is interesting. And then maybe find out through their network, like, oh, my best friend's cousin, like, hat like it's so many people are so interconnected with us, unfortunately, but it's like that awareness and understanding and knowledge is so important. So I like that you're doing that in such a creative way and not just like, Hey, like give us money, which like works. That's amazing. Anyone who's doing that props to you. But like the more creative way, I just think in getting people really involved and like excited and like all about it. I'm just, I'm really proud of it. i think it's awesome. No, it's amazing. And you have to like the second that dad was diagnosed, he kept saying, we're going to fight
Commitment to Advocacy
00:26:53
Speaker
the fight. We're going fight the fight. And I think what what he meant was he's going to go through treatment. He's going to stay strong. He's going to have a positive attitude.
00:27:01
Speaker
But fight the fight spans so much bigger than just the day to day of trying to get through chemotherapy, of trying to extend your life. I think it it is all encompassing of the fundraising, of the meeting people, of spreading awareness, of just creating this community.
00:27:16
Speaker
Yeah. Like this is all the fight. And unfortunately it's not going to end when, when our experience, I mean, experience is a big word. It's not going to end at the end of a life, whether it's,
00:27:28
Speaker
our dad, which hopefully we have more time or our other friends who have already lost people. Like if you look at the woman, Kate, who we were talking about up from great fruit, glyphosoma, she lost her father a bunch of years ago and she's still fighting this fight every single day.
00:27:44
Speaker
so So I almost feel like it's on us to continue all of this stuff, even when it's like not day to day. i mean, it's always going to be day to day affecting us no matter what. Yes. But I know what you mean. Like,
00:27:55
Speaker
it's not It's not a moment in time. It's sort of beginning. Like, this is forever. Like, now this is going to be a cause that is forever important to us and our friends. And we're going to record forever? ah Me and you yeah record this podcast forever?
00:28:08
Speaker
Yeah. um We'll see. Like, are you going to bring, like, your baby on here? I'm not pregnant. I know, but, like... That'd be kind of cute. Maybe. And maybe I'll bring my docs in. Oh, maybe. I'm thinking far in the future.
00:28:20
Speaker
Yeah, i bet I bet all of our... Many, many, many listeners can't wait to see your dachshund and my baby. Anyway, um no, the point being just like, this is a long journey and we're really grateful for the people that have been so supportive and have helped us along the way.
Gratitude and Social Media Engagement
00:28:36
Speaker
um And really grateful for our mom, as we said, our sister, who's been amazing and continues to edit all of these and really help us from afar mentally and emotionally.
00:28:47
Speaker
Lucy. this yeah um And grateful for you too. It's so nice to just be able to have these conversations and and not feel like it's a chore or a burden. And it it might before we sit down, but once we do, it's always amazing.
00:28:59
Speaker
And yeah I feel liberated. Liberated. But no, I think I'm so impressed with what you're doing and I've been so excited to share it with people because it's so cool and just like, i feel like a proud little mom.
00:29:11
Speaker
um Which is weird because you're a lot older. Not a lot. You told everyone you're 30. Yeah. um But no, it's amazing and I am grateful that our family is such fighters because it's really, really inspiring.
00:29:25
Speaker
Yeah. So, yeah. Cheers to the fight. That's all we got. All we got. Cheers to the fight. um If you're interested in any of the various fundraising, volunteer opportunities, any of the events, yeah um we'll have them all linked to our Instagram account, Not Us Podcast.
00:29:46
Speaker
um Definitely give Great for Glioblastoma a follow as well. She's a really big following. It's amazing. Just go check it out. Absolutely. um And yeah, I think we are going to start bringing guests on because we're boring. We're Yeah, maybe. We are going burn guest.
00:30:04
Speaker
Yeah, just stay tuned. And maybe you'll see a guest, maybe you won't. Maybe you'll see a dachshund, maybe you won't. maybe Maybe you'll see a baby, maybe who you won't. You will not see a baby. um But like, it also might be different guest than just our immediate family, as much as they're amazing. We do need- Leave an element of surprise. Okay, fine. I'm bad at that. I don't like surprises.
00:30:21
Speaker
But, ooh! Yeah, thank Do you want to As always, for listening. Yeah, I do want end. Oh, we'll like, okay. Bye. Bye.