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Goodpain Episode No. 012: Season 01 Bonus No. 2: Guest Interview
61 Plays2 months ago
In this quick bonus episode, Tyler shares a conversation with a special guest.
Recommended
Transcript
Introduction to 'Good Pain' Podcast
00:00:01
Speaker
I'm Jeremy. And I'm Tyler. Welcome to Good Pain, where we talk about life's true intensities without pretending they're easy solve. What if the things we're told to fix, optimize, or get over are actually where the real wisdom lives?
00:00:14
Speaker
Each week we gather for the kind of honest conversations you desire to be a part of more often about the relentless demands, the unexpected grief, the quiet victories, and everything in between. Because maybe, just maybe, the answer isn't to eliminate the hard stuff, it's to find the good in it.
Transition to Family Story with Special Guest
00:00:30
Speaker
Welcome to the conversation.
00:00:43
Speaker
As we're winding down season one and talking about loss, grief, and healing, last week we introduced you to somebody else's story. And this week we're going to go back to my story, my family's story, and we have a special guest that we're going to be talking to.
Meet Claire: Interests and Experiences
00:00:58
Speaker
So with that, we're going to turn it over to our special guest to introduce yourself. What's your name? Hi, my name is Claire. Welcome to the studio, Claire. What we're doing here is we're recording a podcast episode that's going to be going out to all of our listeners, and we're going to be talking to them a little bit about who you are.
00:01:16
Speaker
Really? There's a lot of people that have been listening to your story, to our family's story, and they have- This is boring. Okay, okay, we'll get back to you. All right, so why don't you tell us a little bit about yourself? I'm 18 years old. I have two dogs, Eiger and Klaus, and a cat, Natasha.
00:01:33
Speaker
I have two older sisters, Autumn and Heidi. Well, great. We're glad to have you here, Claire. So tell us a little bit more about yourself and the things you
Claire's Involvement in 'Redshirt Rookies'
00:01:42
Speaker
like to do. On Thursdays, you mentioned there's something you really like to go to. What's that called?
00:01:47
Speaker
Redshirt Rookies. Okay, and tell us a little bit more about what Redshirt Rookies is. Red Shirt Rookies is a group of athletes who also have disabilities. The coaches are also nice and really help us have a good time.
00:02:00
Speaker
We play a sport for six weeks. We meet on Thursdays from 12.45 to 2 o'clock. Red Shirt Rookies is lots of fun. Now you were mentioning that some of these sports are more fun than others. What is your favorite sport that you play at Red Shirt Rookies?
00:02:17
Speaker
Basketball is a crazy game. Volleyball is really fun. And how do you get around in Redshirt Rookies? Are there people that help you or do your parents help you?
00:02:27
Speaker
We have typical peer coaches who are homeschooled and they help us.
Family Dynamics and Humor
00:02:32
Speaker
Okay, well, thank you for that, Claire. And so let's talk about... Dad. Yes, Claire. Do you still love us? Yes, Claire. I still love you.
00:02:38
Speaker
Mom. um She's not here right now, Claire, but do you have a question for her? Do you really have a favorite child? Claire, she she doesn't have a she love She loves all of you guys the same. Ridiculous. Yeah, I know. It is ridiculous, isn't it? Yes, I
Claire's Social Life and Relationships
00:02:54
Speaker
know you expect... Yes, you are... You you think you should be the favorite child.
00:02:59
Speaker
Do you know anybody with a disability? ah Yes, I mean, you. you' and And all of your classmates that you went to school with and um all the people that we go to at your basketball games, ah which we have a lot of fun at. Yeah, we... know we we Yeah, why do you ask?
00:03:19
Speaker
I don't believe it. I mean, I don't know what else to say, but I think we're getting a little bit off track here. Let's let's get back to you and and maybe some of the things the other things that you like. I love my iPad.
00:03:30
Speaker
And what are you watching right now on your iPad? I'm watching Bachelor to in Paradise. And who are you watching that with?
Communication and Interaction with Claire
00:03:38
Speaker
Maddie. Maddie is our longtime day nurse and has been with Claire for several years now and was kind enough to introduce Claire to a shared show for just the two of them, Bachelors in Paradise, the classic. Claire, what are the last things you want to leave for the people who are listening? How about some fairy hair?
00:03:54
Speaker
I want orange. Okay, I guess we're going to do fairy hair after this. So thank you for being here, Claire. I'm glad everybody got to hear from you directly and what you're up to and who you are. Goodbye. Goodbye.
00:04:11
Speaker
For context, Claire speaks through an eye communication device that tracks the movement of her eyes as long as
Claire's Educational Journey and Adaptation
00:04:19
Speaker
they're open. Sometimes they're not open. She likes to sleep like all teenagers do.
00:04:24
Speaker
How we work with Claire is we ask her questions, we interact with her. Because of her brain injury and the part of her brain that controls her eyes, she has days that are better than others.
00:04:35
Speaker
And on days where she's really challenged, she struggles to move her eyes and settle on the tiles that she uses to speak. And this is important to know because for Claire, her conversations are not ever this fluid.
00:04:50
Speaker
Through audio editing, we're able to make it sound like it's much more turnkey than it actually is. We have to be patient with Claire. We have to listen. We have to wait for her.
00:05:01
Speaker
Some days she is real quick and other days it takes a lot longer longer to have a conversation with her. Additionally with Claire is she picks from selected tiles that define some of the language that she has available to her. And so she will oftentimes choose some of the closest fits. And really that leads to her creativity and her use with the talker as well.
00:05:26
Speaker
She goes with her day nurse, who she mentioned in here, Maddie, to school. She's now in a program that's called Transitions, having graduated high school at the end of May in 2025. Every single day, she goes with her communication device. We call and refer to it as her talker. She interacts with her peers, her teachers, with Maddie. And there's a lot of stories that we have that we cherish that involve Claire expressing herself in particularly an education setting and really dropping certain things that are very appropriate but also inappropriate at times that gives us the opportunity to talk with her and give her lectures about decorum and
Season Wrap-Up and Future Plans
00:06:10
Speaker
etiquette. so
00:06:11
Speaker
I'm pleased you got to hear Claire's voice through her talker. Next week, we will have one last discussion in Season 1. These are shorter discussions. We're really into the transition phase into Season 2.
00:06:24
Speaker
After that, we will be taking some breaks and we'll probably be dropping some bonus episodes in the coming weeks. But we will be resuming a conversation.
00:06:34
Speaker
around a new topic. And we will be looking forward to introducing that to you in the next couple of weeks as well. So thank you again for joining us for this conversation around our virtual campfire. And we look forward to talking to you again next week.
00:06:50
Speaker
Thank you for sitting with us in this conversation, for bringing your own story, your own questions, and your own hard-won wisdom to what we're building together.
Subscription Call to Action
00:06:59
Speaker
If you want to keep this going, subscribe to Good Pain on Apple Podcasts or Spotify, where you can also leave us a review that helps others find their way to these conversations.
00:07:08
Speaker
And for weekly doses of conversations that go beyond quick fixes or surface level advice, subscribe to our Kindling newsletter at goodpainco.com. Good Pain is recorded in Colorado on Arapaho, Ute, and Cheyenne ancestral lands.
00:07:25
Speaker
And let's remember, we are not alone in this. Our struggle is not our shame. Whatever we are carrying today, we don't have to carry it alone. We will see you next time.