Transcript
Type One Together: Okay. Hi everybody. Today we're getting into a full recap of Thanksgiving week for both myself and Raquel. We both have a lot to talk about, but first we would like to thank Sweet Dreams for sponsoring this episode. You've heard us talk about them endlessly. We really truly believe in this app. It actually makes a massive difference in blood sugar management. I am currently watching my daughter's blood sugar.
Type One Together: on my computer screen as we're recording this and I feel so safe knowing that I can glance over and make sure that she is in range or at least being taken care of.
Raquel: It's been so cool to see all of your feedback ever since we started talking about Sweet Dreams. A lot of you have been tagging us in your ah stories with screenshots of your phone, being able to see your child's blood sugar on the screen with the rate of change is just so life changing. I actually was talking to my mom about it. She had seen one of our videos and she was like, wait, what is this new thing? And I showed her on my screen and she just thought it was so cool, especially just seeing how things have evolved over the years.
Raquel: This technology is next level and it just makes diabetes so much easier. I've also still been using it on Apple CarPlay, which has been so nice. yeah I'm just so thankful for the Sweet Dreams team for making this happen.
Type One Together: It's so interesting, like, I mean, this is separate from sweet dreams specifically. um But ah thinking about as a parent being so involved and knowing the ins and outs of everything of what the current management ah style is in life, right?
Type One Together: And then eventually I'm going to hand this over to Hattie and she'll have it all by herself, just like your mom did with you. And now she has to ask you about like new updated things.
Type One Together: And that is a weird thing for me to think about. I'm going to have to ask Hattie, like, what's that?
Raquel: Yeah.
Type One Together: and It's just, you know, it's like one of those things you don't know what you don't know.
Raquel: Literally.
Type One Together: So I'm just, I can't even fathom what technology is going to be like when she's in her 20s and 30s. And, you know, I'm just gonna be like, oh my gosh, i I would never even have thought about having access to that kind of knowledge surrounding your diabetes.
Raquel: Mhmm.
Type One Together: And it would have made it so much easier on and on. So that's so cool.
Raquel: Yeah, for real. Um, we'll link the sweet dreams app in our show notes just in case you don't have it yet. If you have any questions, let us know. Their team is also really helpful. So we love it.
Type One Together: love it so much. Okay, let's, let's just dive into Thanksgiving. We both had some hellish shit diabetes week.
Raquel: We did.
Type One Together: um And it wasn't because of Thanksgiving food, it was just something, something in the air, or something in the water.
Raquel: Yeah.
Type One Together: I was teasing you saying like, Oh, man, you and Hattie and you're one awaits like you're sharing vibes.
Raquel: Yeah, it was a really sucky diabetes week. Like it just annoyed me so much more than normal. And of course these things happen when there's a holiday or some sort of celebration, right?
Type One Together: Mm hmm.
Raquel: But like you said, yeah, it wasn't because of the food. So, um, I think, do you want to go first and and dive right into your week? but
Type One Together: Um, yeah, I can. So last week, we're recording this ah the Monday after Thanksgiving. And so one week ago, exactly. um I was all excited because both my girls had the entire week off of school. And I was just like, I'm gonna do stuff with them. Like,
Type One Together: all week long really take this time and so early in the morning or mid -morning I guess I took them out like this fun play place like indoor play thing and ah we met up with a bunch of their friends and I was just like woohoo this is the best let's tire them out you know spend a few hours here whatever And Hadi lasted maybe like 45 minutes before she came up to me and sat on my lap and I now know that when Hadi sits on my lap and her body feels a certain kind of heavy, it's hard to explain but like she really has no
Type One Together: little to no muscle tone, like she sinks into me in a very specific way. And my first thought was, you have ketones. And she was just like, I'm tired. I don't feel good. My stomach kind of hurts. And I was like, well, do you have to go to the bathroom? Let's go try. And we did. I was like, have some water. She's like, I don't want to. My stomach hurts. And she was like, I think I'm hungry. Took a bite. She's like, no, my stomach hurts, whatever.
Type One Together: So then I'm like, great, let's go have the stomach flu, you know, cause it's going around. And we went back home and I checked her ketones and they were high. They were 2 .1 and our meter suggests that anything over 1 .6, you ah monitor and check again within an hour or two. And then if they stay the same or go higher, you bring them to the hospital. So it's like game time, you know?
Type One Together: And so I was like, okay, you have ketones and she knows the drill. So I like set up a bed and everything in the living room for her and put on shows and just push. And ah all this time, everyone, her blood sugars were perfect. 120 flat for 24 straight hours.
Type One Together: Perfect, and this is one of those things where like, now we've had enough bouts of illness under our belt where I know that this is how she, her body handles illness, her body handles illness, not with high blood sugars, but with really steady and range blood sugars. It's that metabolic rate.
Type One Together: um that has increased, that's just keeping everything steady.
Raquel: and
Type One Together: And so, um you know, I'm pushing like popsicles and just whatever else I'm I'm trying to think of anything, everything.
Type One Together: And I do get those ketones down within two hours, they're like under one again, which is considered safe, like trace to none or whatever. And so that was just funky.
Type One Together: She felt better towards the end of the day. And then the next day she was like, yeah, I feel good. I feel fine. We had a friend over. That was fun. And then by the time the friend left, she was like, I don't feel good.
Type One Together: I'm like, but do you really not feel good? Because she was asymptomatic.
Raquel: Mm hmm.
Type One Together: She was not vomiting, no diarrhea. She didn't have sniffles. There was no sign of like a cold or any kind of flu symptoms, no fever, literally nothing other than her complaining that her belly hurt off and on.
Type One Together: And she wasn't constipated either. And so I don't think I checked, or maybe I did check ketones on Tuesday, but I didn't, she didn't have any. And then Wednesday rolled around and I walked into her bedroom in the morning and I could smell the alcohol, just like her whole room smelled like alcohol.
Type One Together: um which was her breath from ketones so you know immediately checked and we had an old ketone meter so my husband checked first and that older ketone meter said 4 .3 at first yeah and I ran like when I tell you I was like ah you know I like sprinted across the house to go get the ketone meter that's actually approved for diabetic use and whatever
Raquel: Yeah. That's crazy. Whoa.
Type One Together: I sat her up. I was like, you have to wake up. And she was just so out of it.
Type One Together: like, you have to wake up. You have to drink something. She's like, I don't want to, you know, crying immediately, whatever. The ketone meter that's for diabetic use said 3 .2 or 3 .5, something like that.
Type One Together: So not fours, but still very high. And that was at eight in the morning and she went from 3 .2 to 3 to 2 .8 to 3 to 2 .5 to 3 like just bouncing and by the like third or fourth check I ended up calling the Children's Hospital because I was just like I don't think that this is working you know like no matter how much I'm giving her and asking her to take sips and she's saying okay to
Raquel: Yeah.
Type One Together: you know having a skittle here or there or like drinking juice or sucking on a popsicle it just wasn't enough carbs to also cover the insulin without sending her crashing low and there was one point where I like called and just said like I explained the situation and even the CDCS over the phone was like
Raquel: Yeah.
Type One Together: What? like i This is so rare. I don't really know. This is hard. you know She's like, stay on the phone with me. I'm sending an urgent message to the on -call doc. That on -call doc called her back right away while I was on the other line. And apparently that doctor was like, This is super tricky. like And he just said, you know, tell this mom that her daughter is relatively safe from entering true DKA because she's on the pump and consistently getting her basal rate.
Type One Together: But if they're having trouble keeping her above 70 for the next hour, then let's yeah just bring her in.
Raquel: Mm -hmm.
Type One Together: But like, I think that their emergency room was flooded with kids because this nurse was telling me like,
Raquel: Right.
Type One Together: something funky is going around and we are packed and so they're kind of like we want you guys to stay home but if you can't keep her above 70 like even if she dips below once come in and we had one hour to do that and so I
Raquel: Yeah.
Type One Together: ah push push push and told her like you're gonna have to go to the hospital in one hour if these ketones don't come down and honestly Raquel at this point she goes just take me to the doctor she was like I feel yeah no she felt
Raquel: She didn't want to eat. That's how it it is. Like you feel so so disgusting. This reminds me so much of when I had strep and the flu at the same time and I was in college and I went into the um University Health Center, which they don't know that much, but I remember they did like a urine test and for a bunch of things, but then they're like, your ketones are so high. And because I was vomiting too, they were so concerned and they like almost sent me to the ah ER and they were like, if you can go home,
Raquel: or I eventually went home and then they were like, if you can keep stuff down, then you're going to be fine. But it was like a very fine line because I was 85 and steady most of the time. So I was like super close to being low.
Raquel: And I just remember being in the bathroom, like I had been vomiting and then just trying to drink Gatorade and to drink things that were sugary. And it was awful. And I totally resonate with her feeling like that.
Raquel: Like at a point you're just, you feel so gross. You don't want to consume anything. Just give me 90, you know?
Type One Together: Yeah. Yeah. And it was just like, yeah, I, I was even, usually I'm pretty like, we got it. We got it. We got it. But six straight hours of seeing her ketones above 1 .8 and mostly in the high twos.
Raquel: Yeah.
Type One Together: I was like, I can't sit here and just like let her brain pickle, you know?
Raquel: No.
Type One Together: And I know that's not actually what was happening, but that feels like what was happening because I understand DKA and like it's just such a catch 22, like knowing the freaking science behind it sometimes, you know?
Raquel: Yeah.
Type One Together: um But yeah, luckily in that hour, they finally got below one, like down to point nine. So that all happened Wednesday and she felt so much better after that but we knew she was super insulin sensitive because whatever this was, which we're assuming was some kind of stomach bug that her body was fighting off really well to the point where she wasn't symptomatic, but it still was leading to her not being able to truly digest the carbs that she was given. So we automatically went to like giving her
Type One Together: 25 to 50 % of what we typically would for her carbs. So she had a popsicle that had 16 grams. We were dosing her to start for like five grams, maybe eight.
Raquel: Yeah.
Type One Together: um So that was tough and scary, but then she felt so much better by the nighttime. We put her to bed and her ketones were down to 0 .1, which is like negligible.
Type One Together: And we were just like, okay, we're through it. We're past the hump, you know, and the next morning she had some food and we dosed her and like she went a little bit high.
Type One Together: So we're starting to think, okay, she's getting better.
Raquel: Yeah.
Type One Together: And then it's Thanksgiving, right? Like the next morning is Thanksgiving.
Raquel: Yeah.
Type One Together: And like the reality of it is my husband and I were taking turns and we should have determined beforehand which one of us was going to be making all of the decisions because of how fragile her state had just been.
Type One Together: But we definitely let our guard down a little bit and we were kind of just like, who's got the phone, you know? Like if he noticed a high, he would grab it. If I noticed her starting to drop low, I would go do something about it.
Type One Together: We just were taking turns and we weren't communicating every single step that we were taking with each other because we were enjoying Thanksgiving and like chatting with family.
Raquel: Yeah. Yeah.
Type One Together: and then dinner her time rolls around and she ended up having like an entire crescent roll that my husband dosed her for and she was high when he dosed her so he pulled in her current sugar so she did get a correction plus the full coverage for 10 grams but she ate the whole thing I didn't know about that dosing I didn't know that that happened
Raquel: Yeah.
Type One Together: And then when we were sitting down for dinner, she is very picky and didn't end up eating Thanksgiving dinner, like classic stuff, you know? So she wanted a bowl of buttered pasta and I dosed her for 30 grams. She was high at 170, but I chose to not include the correction in that just because I was like, hmm, she could still be insulin sensitive. She might go play after, I don't know. And she ate more than that. She probably ate 35 or 40 grams worth of pasta.
Type One Together: And then she was done and went into the other room and just like was watching TV with her sister and kind of playing with her uncle and whatever. And then we noticed one big scary drop from like the one twenties to nineties or something like that. So we go in and give her something like half a donut or three quarters of a donut, you know, and then she dropped again and we're kind of like, eh,
Type One Together: well she's got that donut it'll catch up and then again and we're like this is weird and so my husband went in to go give her go go to a finger prick to really see if she truly was dropping like that because she was at this point reading L .O .W or like 48 or something and as he was doing that I walked in to go check too and I walk in and see her eyes rolled to the back of her head and she falls backwards onto the bed.
Type One Together: She was in a room with a bed and she was sitting on the bed. And right in that moment, Danny showed me her number and it was 32 or 38.
Raquel: Well, yeah.
Type One Together: I forget. Um, one of the lowest numbers we've ever seen. And, uh, I immediately cult like came in, she was wearing pants, pull her pants down to expose her thigh and at the same time was saying, Hattie, Hattie, let's go wake up, wake up.
Type One Together: And as I was doing that, Dani got the glucagon out of the fingerprint bags.
Raquel: yeah
Type One Together: We keep the glucagon in that bag. So we had quick access to it, handed it to me. But in that moment, her eyes opened, Dani sat her all the way up And I was like, you need something, what will you have? And she was so disoriented, immediately started crying. I tried to give her Gatorade and she was crying. So it was just like pouring out of her mouth and she wasn't able to actually drink it. And we're like,
Type One Together: you need the shot if you can't have something, will you eat gummies? And she's like, yes, you know, like it was just terrifying. And so she did end up eating a full pack of gummies. And then we checked her blood sugar with finger pokes every 10 to 20 minutes for the next hour and a half.
Type One Together: And she would get up to 50, 60, and then the next reading would be 51. Get up to 63 and the next reading would be 52. And she ended up having over 100 grams of carbs worth of gummies. And yeah, and then when we got We were like, we got to leave.
Type One Together: you know like I think the one good thing about this was we were at my parents' house and I am really, really grateful that that they initially tried to help for a second and then stopped.
Type One Together: And I am so grateful for that because it would have just been too much if everyone was crowding us and asking what do you need and whatever.
Raquel: Yeah.
Raquel: Yeah.
Type One Together: And they just stayed in the dining room, let us handle it. And um yeah and then we ended up taking her home because we just wanted more of our stuff. And if we were going to have to use glucagon and call 911 and stuff, we just didn't want it to be not at our house.
Type One Together: and so
Type One Together: um I actually held her, my parents live six minutes away so please don't judge me, but I actually held her in my lap on the way home um in case I did have to give glucagon and so I could like super easily access her fingers for his finger sticks and everything.
Raquel: Yeah.
Type One Together: and ah And she fell asleep in my arms, but it felt like she was passed out. And so I had like checked her, when she fell asleep, I checked her blood sugar. She was like 68.
Type One Together: So I was like, I don't think she's passed out, you know? And then by the time we got home, I had tried moving around to see if she'd wake up on her own.
Raquel: yeah
Type One Together: She didn't, so I had to shake her awake and she started crying, woke up. I'm so tired, let me go to bed, mom, you know, whatever. And so I put her back in bed. And then we did need to give her one more thing and told her to have a banana. She didn't want any juice. She was so upset, so disoriented.
Type One Together: And then, yeah, it was just literally the worst, like everything finally digested by about 11, like from, I don't know, maybe 7 .30 or 8 to 11, she was in range, like in the hundreds, and then she went up to like 2 .90.
Type One Together: and stayed there. And we were just like so scared to give her insulin overnight.
Raquel: Yeah.
Type One Together: you know So we would go and the pump would say, give 2 .1, because that's usually what she would need for a number that high. And I would be like, hell no, 0 .2.
Type One Together: And it would do nothing.
Raquel: Yeah.
Type One Together: And so she then was high from 11 p .m. to 6 a .m. And I just luckily on Friday she did seem to feel by midday. She definitely woke up feeling horrible in the morning and like I'm sure super dehydrated and everything. But yeah, I don't know. I just talked for so long. It was just it was a really awful, messy mess.
Type One Together: um really triggered that night my husband was laying in bed and I was like do you want to talk about it and he was just like no what can I say like our daughter has a disease that can kill her in minutes and we just saw it you know and it was like yeah so luckily I have therapy this week my husband has therapy this week and Hattie has therapy this week
Raquel: perfect oh my gosh well well first of all this isn't the first time i'm hearing of all of this everyone um but i I'm just so sorry obviously I can't relate to the parent side of all of that and I don't at all have the right things to say but it's just the worst and although I don't remember specific examples of those things happening I remember the feelings I haven't passed out ever but I've been 28 before I've been in the 30s and 40s before I've cried through many low treatments every now and then for me it's probably once or twice a year I get
Raquel: a really bad low situation and sometimes it's my fault, sometimes it's not where you just can't come up and you have to keep eating and you have to keep eating and it's just especially in the middle of the night like I remember I think it was honestly with my ex like I was just sobbing in the middle of the night treating these lows like just wanting to sleep so badly and then you go to sleep and that exact thing happens where you go high and then all of a sudden your insulin needs aren't the same as they were an hour ago it's like so weird and then you're just stuck with this high but um Yeah, I'm just very sorry.
Raquel: And the illness part of it is so scary because you just have no idea what you're going to need. know
Type One Together: yeah, thank you. No idea, like, this was the most frustrating one because she was not symptomatic. She just kept complaining that her belly hurt.
Raquel: Yeah.
Type One Together: And then this whole experience has now led to her, I think, fearing food. She's not verbalizing that, but she is saying no to everything.
Type One Together: she is sticking her tongue out and tasting something and going, oh, I hate it. When it's something she loved a week ago, she'll take one bite and be like, I'm done. I don't like it.
Type One Together: And it is excruciating and so painful. And it's this really, really triggering, funky mix of emotions as a parent of like, I'm sad for her and I'm fucking frustrated.
Raquel: Hmm.
Type One Together: Like,
Raquel: Yeah.
Type One Together: there's The reality of it is, of course this is not actually how I feel, but there is this sense of like, why can't you just eat this thing? Why can't you just eat a bounce diet?
Raquel: Right.
Type One Together: Why do you have to be picky? like And she's five, it's not her fault. And I'm not actually, I would never say that to her, I don't say anything like that to her.
Raquel: Right.
Type One Together: But my husband and I will come in at the end of a hard day and just be like, why? are you so difficult? But she's not difficult. She's five. If she didn't have diabetes, we would just be like, great, you're having a weird eating habit right now.
Raquel: diabetes?
Type One Together: Oh, well, but it's the diabetes that makes it dire.
Raquel: Yeah.
Type One Together: And it's just, it's definitely an interesting thing like navigating myself as a mother, who I want to be, how I want to show up, you know, being good to myself, my own relationship with food, making sure I foster a healthy relationship with food for her. It's just kind of a mess. So I don't know. Can you tell me if this you think this is a good idea or not?
Type One Together: I was telling the girls, because now now summer, a three -year -old is kind of picking up on it too. And she's also like, I don't like that. And I'm like, you little shit, you liked that last week.
Raquel: Oh. Yeah, yeah.
Type One Together: And um anyway, so I was like, okay, girls, here's what we're going to do. We are going to go pick out a poster board.
Raquel: Hmm.
Type One Together: You're each going to make your own Try New Foods poster. And anytime you try a new food that you actually like and you do enjoy and you're not forcing it and you eat it until you're full, like it can't just be, I took one lick and I'm saying I like it.
Raquel: Yeah.
Type One Together: You have to eat it until they're full with it.
Raquel: yeah Yeah.
Type One Together: You'll get a sticker. And if you try 20 new foods, you get a toy, $20 or less. So, you know, and so they're all excited about it, but it feels very
Type One Together: nerve wracking and like maybe the wrong thing to do in regards to building relationships with food.
Raquel: Yeah, that's so interesting. I like the idea in the way that I think a lot of kids will just say they don't like something for the sake of saying it and like, because they think they don't like it because they haven't tried it.
Type One Together: Yeah.
Raquel: So this is encouraging them to actually give it a fair shot in their benefit, like in their favor.
Type One Together: Yeah.
Raquel: I mean, I doubt they're going to fully eat a plate of whatever it is or, you know, a bowl of blueberries or, you know, if they don't actually like it.
Type One Together: For sure.
Raquel: So if you teach them through it that you don't have to like anything, like it's okay to not, you know, but we're on the hunt for things you do like, and that's going to get us there, then I think that might be a good way.
Type One Together: Yeah. Yes.
Type One Together: Yeah. And that's exactly the point of it. Like we need to start searching for the foods that you do, like that are healthy and good for your body and not the ultra processed, you know?
Raquel: Yeah.
Raquel: Yeah.
Type One Together: Cause of course I'm more than happy to have them have a cup of hot cocoa a couple of nights a week during Christmas season.
Raquel: yeah yeah Yeah.
Type One Together: That's normal. They cannot have three cups of hot cocoa and call it meals. They just can't, you know?
Raquel: Yeah. And I want to give so much validity to what you said about the food part being an extra challenge because even after this last week being home and I didn't eat that much Thanksgiving specific stuff it was more just being with my family we were pretty much eating out the entire week. um Eating more desserts we had made pumpkin pie my sister and I made Oreo balls that are really good and like just snacking on those things all the time.
Raquel: And I had such a hard diabetes week and I'll get into that more in a second, but it was just a lot of effort. Like even once I kind of got things back in range, it took 20 times more effort than it usually does. And I made the connection that it's definitely because I'm so out of routine with food. I was even working out this week and I still had such a hard time. So, you know, parents that are dealing with that, like that is such an extra challenge for sure. And hopefully it'll get easier as your kids get older and find more foods. but
Type One Together: I mean, yeah, fingers crossed, but I'm just like, I definitely am going to need to work through this with my own therapist in terms of like, because my therapist sees women and couples, but mostly women who are in motherhood and like trying to, you know, take it on. so I feel like she'll have good things to say and I'll report back if there's anything shareable.
Raquel: yeah.
Type One Together: but And then I also need to work with Hattie's Hattie's therapist and just kind of like update her on what happened and what's going on so that she can be mindful of the play practices that she chooses um and like the play talk that they do.
Raquel: yeah.
Raquel: Mm -hmm.
Type One Together: I don't know.
Raquel: Yeah.
Type One Together: um And no, i' no, you're good.
Raquel: Did you? Oh, sorry.
Type One Together: Go ahead.
Raquel: Unrelated. Before we move forward, it I just wanted to ask, like, did you talk to Hattie about what happened and why or why not?
Type One Together: Yeah. Um, yeah, we did. So we talked about, this is not your fault. Like all through it, when she was crying, and we were giving her low snacks. This isn't your fault. You did nothing wrong. Your body, like there's too much insulin in your body. It's not your fault. It's not your fault. We're so sorry, you know? And then, um, I can't remember if I actually explicitly explained to her that like,
Type One Together: Yes, I did, where I said we dosed you the right amount for the food you ate, but your stomach bug, like whatever, what whatever was making your stomach hurt meant that those foods weren't getting into your body.
Type One Together: They they should.
Raquel: Yeah.
Type One Together: And so you ended up having too much insulin and I am so sorry. and I frequently will say like that was my fault because I am my parenting style is like I'm fairly comfortable taking on fault and blame and being the punching bag for a second because so far in her five years of life she will need a punching bag and someone to blame it on for like 20 minutes and then it's all gone. Now if at any point in the future she starts to really like despise me or hate me or like choose to put all of her frustrations on me when I truly have had nothing to do with them I will adjust that method but
Type One Together: I do a lot of like, when she says, you're the worst mom ever, I'll be like, yeah, I can i can suck sometimes. I can be hard sometimes. so And she'll just go, yeah.
Raquel: Yeah.
Type One Together: And then it's literally 10 minutes later where she comes up and gives me a hug and goes, you're not the worst mom ever. I love you. I'm like, I know, you know, and I think she just needs it in that moment and I can handle it.
Raquel: Yeah. Yeah.
Type One Together: I'm the grown up. I can manage my emotions.
Raquel: yeah
Type One Together: And so I said that that was my fault.
Raquel: Yeah.
Type One Together: I should have communicated with dad before I dosed you for that pasta. I should have waited.
Raquel: yeah
Type One Together: I'm sorry. And she just kind of cried and looked at me and then my husband is very like, it's not your mom's fault, you know, which I appreciate.
Raquel: Yeah. Well, I think that's also good because number one, I agree with that parenting style of claiming things are your fault.
Type One Together: but
Raquel: I remember like my mom was always great about that too. However, just to counter it a little bit, you don't ever want her to think that she causes that stuff to herself in the future if she miscalculates a dose.
Raquel: So that's the only maybe downside to that because This shit happens to all of us, even when we're older, and I don't...
Type One Together: Yeah.
Raquel: I mean, I do feel like it's my fault sometimes, but I don't want her to then take that. Does that make any sense? And I'm not trying to tell you what to do, I'm just bringing another point of view, because if it's your fault now, then it would be her fault later.
Type One Together: Yeah, it makes perfect sense. No.
Type One Together: That's so helpful. I'm gonna, can I write that down for a second while you keep talking so I can bring it up with my therapist on Friday and ask what she thinks I should do.
Raquel: but Yes.
Raquel: Yeah. I mean, I don't know. I just, yeah, you wouldn't want that to translate. But if you true, because this is the difference. If you truly make a mistake calculating, it's your fault, right?
Type One Together: Yeah.
Raquel: If it's an illness based thing where you didn't know what she needed, you had no idea, then it's truly not your fault. And I don't believe it is was your fault. And I think you did a great job.
Type One Together: Thank Okay.
Raquel: I do.
Type One Together: Well, yeah, it was a lot.
Raquel: It's a hard one.
Type One Together: It was a hard one, but let's hear about yours. Your turn.
Raquel: Mine was not nearly as rough at all, um but it was, yeah, just an unfortunate day, diabetes wise, I guess. I'm just in the week before my cycle, so that's when things get very confusing and never the same.
Raquel: ah um And we have always hosted Thanksgiving at my house my entire life, but this year for the first time we went to my aunt and uncle's new lake house, which was like an hour away from Dallas.
Type One Together: Yeah.
Raquel: So we had a longer drive and I was driving with just my sister. And um and I don't know why I was low in the first place, but like,
Raquel: You know, we had to stop. We were like last minute getting some green beans because long story short, we hadn't cooked the vegetables we were supposed to bring.
Type One Together: Ha ha ha!
Raquel: and We were like at the grocery and of course I'm walking around really fast and I'm starting to drop and we're like walking back to the car and I was supposed to drive us there and I'm about to get in the car and it's like urgent low 55 and I'm like, Sophie, that's my sister.
Type One Together: Mm.
Raquel: I was like, I cannot drive like. We can either wait here for 10 minutes or 15 minutes maybe, and then I'll drive, or you can drive. um She hates driving my mom's car that we were driving, so that's why it was the whole discussion.
Type One Together: Ha ha ha ha!
Raquel: and And she's like, no, it's fine, don't worry about it, I'll drive. So she starts driving, and at first I'm like, whatever, it's 55, not a huge deal. I had a bottle of the mozz apple juice in the car, so I just start chugging that.
Raquel: and I think I'm going to be fine. We like get on the road, we're going for maybe 10, 15 minutes, and I'm starting to spike. And knowing myself, I think I've even set it on here, as soon as I start to spike aggressively from a low, because you know my pump was suspending for a while as well, I'm going to give some insulin. Because especially in this situation, I'm going to be sitting in the car for the next 45 minutes. And I know that when I'm sitting, I'm going to keep going up. So I give myself a little bit, like not even that much.
Raquel: And then probably about 10 minutes later, oh, sorry, wait, I forgot about that first one. I actually dropped a 47, so it went really low. So I ate more. Then I started spiking. Then I were driving for 20 minutes, and then I'm in the 50s again.
Raquel: And it was just one of those situations where I was like, what the heck is going on? And um Sophie was getting really worried. And all we had that was like reachable was a big box of Oreo balls we had made.
Raquel: And these are basically like crushed up Oreos with cream cheese.
Type One Together: Hmm.
Raquel: You like mix it all together, kind of like a cake ball, like dipped in white chocolate.
Type One Together: Yeah.
Raquel: So good. it's So good. It's become our new tradition to make them. but I like start eating them and then I keep having to eat them and I just felt so disgusting. At one point, I think I went.
Raquel: to 40 or 42 again. And then my mom was texting me. She was driving the other car with my grandfather and she was like, are you okay? Like, are you sure you should be driving? I was like, no, Sophie's driving.
Type One Together: Oh my gosh, yeah.
Raquel: And I just felt so disgusting. And, you know, we show up to Thanksgiving. And at this point, I'm spiking a little bit again, but I'm not giving any insulin. No way.
Raquel: Like, I don't care if I go up a bit. And then as soon as I walk into my aunt's house, I'm 62 again. And then I go up to my aunt and I'm like, Hey, do you have any juice? And she was like, yeah, I have orange juice.
Raquel: So then I'm like boring myself, orange juice. And then we're eating and I don't want to eat anything cause I'm just full of sugar.
Type One Together: Of course they don't. Yeah.
Raquel: And I still ate some and I gave some insulin, but then I'm just high for hours and hours and like eventually giving more coming back down a little and going right back up.
Raquel: And I think my time and range for that day was like in the 60%, which for me is very rare. um And I just, yeah, it didn't feel good.
Type One Together: Yeah.
Raquel: So it was just annoying. And it was one of those days that I was talking about earlier where it was just, I'm having those multiple reoccurring lows and I don't know why. And then the rest of the day I needed a lot more insulin to bring it down, but I wasn't willing to give it.
Raquel: And I'm sure that it was partially because of the type of food we were eating and all the sugar and the fats and
Type One Together: yeah
Raquel: you know, creating those elongated spikes. um But I was just being very conservative with insulin then. So yeah, and then overall, the rest of the week, I also just had some low time and ranges for my normal amount usually. And I was also having a lot of compression lows combined with real lows in the middle of the night. Like I don't think I slept through the night once. And there was one night where I was 55, I got up, I was like, no way this is real. I pricked and I was like 60. So I get up and go to the kitchen. My mom had bought me a bunch of those apple juices. Thank you, mom.
Raquel: And I grab one, come in, start chugging it, go back to bed.
Type One Together: Hmm.
Raquel: And then it like goes back up and comes back down.
Type One Together: Hmm.
Raquel: And then I hear my mom walking in the kitchen because she was there. And so I knew she was about to bring me juice. And I text her, I'm like, it's a false low because at that point I had checked and it was a compression low.
Raquel: So I feel like the whole time that I've been on this Dexcom sensor, I've been trying to lay on the other side so that I'm not having compression low. I'm not sleeping well. I i don't know. It's just one of those weeks. And then I posted about that wonky Dexcom because it just looked like it was jumping all over the place.
Raquel: And someone called it confetti. They were DMing me. They were like, oh yeah, those confetti Dexcom sensors. That's so accurate. But so many people were saying they experienced the same thing. And it's like, these G7s can work so well, or they are just shit.
Raquel: They don't work at all.
Type One Together: So weird.
Raquel: And it's ruining your whole 10 days. like I am trying to get through the 10 days, but every day I'm like, should I just take it off? But I don't want to have to deal with
Type One Together: Yeah.
Raquel: you know, meeting my max amount of replacements you can get and then having to pay. So yeah, but it really messes with your blood sugars because then your pump is giving you insulin or not giving you insulin based on it.
Type One Together: Yeah.
Raquel: And it's really, really frustrating, especially when you're trying to enjoy time with family and you're eating out and things are already so unpredictable. So yeah, I think I just feel a lot more exhausted by it than normal.
Raquel: But today's a new day. I'm back home. Gonna go grocery shop and ah start eating more normally again, which should help.
Type One Together: It's so challenging. It's just like the the consistent, the consistent changes where it's like, I'm studying in range. Oh my gosh. I'm so insulin sensitive.
Raquel: Yeah.
Type One Together: And now the carbs are working hours after they should have been working.
Raquel: yeah
Type One Together: And now I'm going to get a little bit of insulin, but I was insulin sensitive. So I'm giving less than I normally would. And now it's water. It's, it's just the biggest mindfuck.
Raquel: Yeah.
Type One Together: It's so, I don't know. It's like, we've said this before that that diabetes is the world's biggest gas lighter. It's just like, you know, I don't
Raquel: Yes. We should put that on a quote. It's so real.
Type One Together: Yeah, ah yeah, God, it really is. And i I think that like, one of the things that is hard for us right now, because right now she's high at school, she's 297 down 11. Part of that is I changed all of her carb ratios to be so much more conservative going into this week, because over the weekend, it was like hit or miss whether One, she was going to eat everything she said she was going to.
Type One Together: Two, she was going to digest the things that you know she was actually eating. Or three, like the insulin was even going to work. And so sometimes she was dropping really significantly, and other times she was really flat, and other times she was spiking out of nowhere.
Raquel: Yeah.
Type One Together: And I was just like, I don't feel like giving the school a a situation like what we had on Thanksgiving.
Raquel: Hmm.
Type One Together: you know that's It's not fair to them.
Raquel: Yeah.
Type One Together: It's not fair to Hattie. there's not enough fast action that can happen because it's just it's it's not their fault it's just like they're not parents who are standing right next to her so you know whatever and so I now I know what's happening is the her total daily insulin when she was like sick those last five days
Raquel: Mm
Raquel: Great.
Type One Together: was anywhere between eight units and 10 units. Her average total daily insulin is like 15 to 17 units.
Raquel: yeah
Type One Together: It's such a huge difference. So now, because she's on Omnipod 5 and the algorithm works by taking the past five pumps total daily insulin, now it has like so much less basal to work with for her.
Type One Together: And I'm scared of this the big boluses of insulin for meals.
Raquel: Yeah.
Type One Together: And so now she's just high. She's been high for so long. And you know, they're, I did email them first thing this morning, gave them a full rundown of what happened last week and just explained like, I am anticipating blood sugars to be really challenging this week.
Type One Together: If she's a high for an extended period, I will probably be coming in.
Raquel: Mm -hmm.
Type One Together: Like I'm going to be adjusting a lot of carb ratios very frequently, depending on what's happening, you know, and
Raquel: Yeah.
Type One Together: If you see big, big drops, just please be extra aware. And I'm so grateful that iPad is in the health office right now after all of this, because, you know, at least they can watch it.
Type One Together: Um, I don't, I honestly, if the iPad wasn't in the health office, I don't know if I would have sent her to school this week until I got it figured out.
Raquel: That makes sense.
Type One Together: So yeah.
Raquel: Yeah.
Raquel: Yeah. I think like this was a reminder for both of us this week that diabetes really can interfere with our life and interfere with the fun times.
Raquel: And I don't like to admit that to myself a lot, but like even I've said on here that my family's Thanksgiving tradition is to have cinnamon rolls in the morning.
Type One Together: Yeah.
Raquel: And so we did that. and we were like watching the thanksgiving parade and that's usually so fun but i am so aware of my blood sugars now as soon as i was like 140 straight up i was like walking around the house i'm not joking i was walking in circles around the house and then it was really cute my mom and my sister were like jumping with me while we were watching and like marching in place so we could watch and lower my blood sugar but it's like
Type One Together: her
Raquel: It shouldn't be like that. I should be able to just sit and watch it, you know?
Type One Together: Yeah. Yep.
Raquel: And, you know, what happened with Haddie definitely interfered with your Thanksgiving day. And it's, it's not always, and that's the beauty of it. It's not all the time. Sometimes those days can feel really normal and they're just fine, but then other days they're just not.
Type One Together: Yeah.
Raquel: And I think it is healthy to just acknowledge that and give it its time because it does suck a lot.
Type One Together: Yeah.
Type One Together: Yeah, I will say that like we've we've been in the one of the more challenging seasons of diabetes in the last four months, just with all of the like school headaches and stuff.
Raquel: Yeah.
Type One Together: um But overall, When she wasn't at school, I still felt the level of control that I usually do. Like, I know what to do. I know how to intervene. Of course, the hard days peek in every now and again. But when the hard days are majorly the minority,
Type One Together: then it feels super manageable and it it really is like, we've got this, diabetes isn't going to stop me. You can live a normal life with diabetes.
Raquel: Yeah.
Type One Together: You feel all those things, those positive affirmations. And then my sister -in -law texted me, being like, Hey, I heard about Hattie's Danny and shared with his brother and blah, blah, blah. And she was like, that must have been so scary. Are you okay? Is how you okay? It was so sweet of her to check in. And I just said to her, I'm okay. But like, we are shaken because 99 % of the time, like diabetes feels manageable and we know what we're doing.
Type One Together: And this 1 % was really like, hey, this disease is life or death. It actually is. So stay on your toes, you know?
Raquel: Yeah.
Type One Together: And um I don't know, that's just like triggering, kind of like facing that reality was a little bit of, returning to diagnosis and like the idea of like front one wrong move and I kill my kid kind of a thing which is extreme and it's not the reality but that's what it feels like.
Type One Together: So like my Mental Health Monday caption said I'm very very very grateful that I have have therapy this week to kind of process everything.
Raquel: Yeah.
Raquel: Yeah, I know you had mentioned to me that you feel like this is also just impacting your relationship to insulin and feeling as confident with it. Is there anything you want to share about that? Because I think that's a super interesting thing that a lot of people deal with.
Type One Together: It's more so. I think that if we weren't battling such picky eating and she didn't have such an aversion to food and if she would drink freaking juice, that's her new thing.
Type One Together: She refuses juice, refuses it.
Raquel: yeah
Type One Together: And so I think that if she was ah had her standard like low snacks that she was still like, yes, I've got this. No problem.
Type One Together: I would be slightly more bold, but because that severe low and the extreme insulin sensitivity has coincided with her being anti -all food, I can't help but be suddenly terrified of insulin because i I wasn't before because I always felt
Raquel: Yeah. Yeah. Of course. Yeah.
Type One Together: Like she was a reliable enough eater. She would say yes to something.
Raquel: Yeah.
Type One Together: And now her yes foods, a hundred percent of the time are like down to one or two options. And she's kind of in this mood right now where if she's already had skittles today, no, I already had those.
Type One Together: I don't want those anymore. It's like gummies had those too.
Raquel: yeah
Type One Together: What else? It's like, I don't know what else because you're saying no to all 85 other options that are around, you know,
Raquel: Yeah. Wow. It's so helpful that you're sharing this though. Like I'm sure a lot of parents can really, and I don't know if I'm sure you've done this, like taken her with you to get low snacks.
Type One Together: Yeah.
Raquel: I know that I have to like shift through low snacks, which I know that you also do, but to the point where sometimes it can't be something like gummies or juice, like I'll get Like one of those small containers of Chips Ahoy cookies or like something random which of course you don't want to encourage that as a low snack But it's like it just gets to be so gross over time to have the same thing Yeah yeah
Type One Together: yeah
Type One Together: I totally I mean, when when she was sick on Wednesday, and she like needed low snacks plus the carbs, you know, for ketones and to keep her float. I went and got like Jones sodas, seven up, um jello, fruit, like random stuff.
Raquel: yeah
Type One Together: And she was she had like four sips of soda and was like, I don't want anything else.
Raquel: Yeah, it's so tough.
Type One Together: And then, you know, and then, yeah, the other day, like yesterday, she was like, can I have some soda? And I was like, whatever. I'm too tired to say no to that. Fine. And I showed her the two sodas and she's like, yuck.
Raquel: Yeah.
Type One Together: I'm like, what kid says yuck to cream soda? You know, what are you talking about?
Raquel: That's funny.
Type One Together: Which was good in that moment. But like, if she's low and that's the only thing
Raquel: Yeah.
Type One Together: So I don't know that's definitely where the fear is I'm hoping that as she feels better and starts to resume like her normal is she eating habits that I'll start getting more and more bold again with insulin. Well, not bold. I won't ever.
Type One Together: I don't know. You know what I mean?
Raquel: more confident with it, yeah.
Type One Together: Like I'll just more confident. Yeah, I guess so. But yeah, like yesterday I switched all of her carb ratios like to be more conservative by five points.
Raquel: I think, yeah.
Type One Together: So she was one to 18, her new ratios one to 23.
Raquel: Yeah.
Type One Together: But then she was high overnight and you know, I'm realizing like her total daily insulin needs are definitely higher than eight. And so I like went in and changed them right before school from that one to 23 down to one to 20, but she's still 272 slowly coming down from her lunch.
Type One Together: So it's like, I know that the proof that the insulin needs is in the pudding of the, of the graph, but
Raquel: Yes.
Raquel: It's so hard because Like take any time with any ratio, right? Once you figure out what generally works, you do need that 99 % of the time, but then that 1 % can be so scary.
Raquel: Like what if it is that day where it's a one off and the insulin needs are so different and you have that crazy low, but then the rest of the time it's what you actually need.
Type One Together: Yeah.
Raquel: And that's like such a hard hurdle for anyone with diabetes or a parent to get over, especially right after those types of incidents.
Type One Together: Yeah.
Raquel: I mean, I'm still being, a little bit more gentle with insulin as well and it's just so confusing like you said it is diabetes gaslighting us it's so stupid but then you don't want to be high all the time either so there comes a point where it's like and I know you know this I'm just saying this generally like the fear has to
Type One Together: Yeah. It's so stupid.
Raquel: It's almost like you have to come to a point where you give the insulin anyways, once you know the illness is not part of the picture, right?
Type One Together: Yeah.
Raquel: And you know that there's that one percent that's always going to exist, but it's still worth their long -term health to do that, but it's so hard to actually do that.
Type One Together: Yeah. Yeah, exactly. I mean, as she, like when she was above 300 just now, like 20 minutes ago, I was thinking to myself this whole time, like, okay, we're going to stop recording.
Type One Together: I'm going to get my shoes on, go straight to the school and give her an extra bolus because they still don't like take, you know, parent guidance that's outside of the medical orders. So whatever.
Raquel: Yeah.
Type One Together: Um, And, but now she's 272 down 10. I'm curious what her next reading will be. And if she continues to drop by 10, 15, or 20, then I'm going to feel fairly confident that hopefully she at least gets to like the 200 or 180 mark.
Type One Together: You know, like I don't love that.
Raquel: Yes.
Type One Together: We try to not let her ride there, but like. for right now after everything, if she's riding at 180 most of the day, whatever, like that, a few days of that will not, will not harm her long -term.
Raquel: Yes. Thousand percent. No. Yeah.
Type One Together: But if she like, you know, sits at 250, I gotta go, I gotta to go give her more. I'm just, yeah, I'm eager for her to come back home and kind of like settle back into every, everything that's normal, so.
Type One Together: But I will share one exciting, like positive stuff. So while this all was happening and like my husband and I are so, our hearts are heavy and we're just like, man, this is so hard. and Little baby girl in my belly is so much stronger. And so everyone is feeling her kick finally.
Raquel: Ah! That's so crazy!
Type One Together: I know I feel her every single day and my husband has felt kicks and he's gotten like the fun kicks where he's talking to my belly like saying hi to her and she kicks him like a little reaction and so like where I'm and practicing really hard
Raquel: Wow.
Type One Together: on taking those really special moments that bring a lot of joy and letting them have their moments and not letting the hard scary stuff like cloud the happy, you know, more like letting the sunshine like disperse the clouds kind of thing.
Raquel: Yes. Yes.
Type One Together: So.
Raquel: That's so beautiful. There's so much beauty even with all this crappy diabetes stuff.
Type One Together: Yeah, there sure is. All right. Well, that was a lot. I'm out of breath, as you can hear.
Raquel: I hope that this reminds everyone that even if you feel like you have diabetes or you feel like we know what we're doing, we don't always know what we're doing and diabetes diabetes will always keep you on your feet.
Type One Together: oh
Raquel: So yeah, it's not.
Type One Together: Yeah, it doesn't play fair. But at the end of the day, you are going to be OK.
Raquel: Yes. So true. All right. We'll see everyone next week.
Type One Together: Oh wait, roll call.
Raquel: Roll call. I am 160.
Type One Together: Howdy is 247 down 25. So let's keep that going. And then if it could slow down right about 150, that'd be perfect.
Raquel: let's hope for that
Type One Together: All right. Bye everyone.
Raquel: a
