Introduction to Sweet Dreams App
00:00:24
Type One Together
Today's podcast episode is sponsored by Sweet Dreams, which if you haven't already heard us talk about this, where have you been? This is the coolest app that has ever existed in the diabetes space. So we're going to talk about why.
00:00:36
amanda
Oh my gosh, this app is literally everything. I don't know what is so different about it. like It's just so intuitive because there are other apps on the market that offer some of the same things like you know but readings to your Apple Watch or Apple CarPlay or whatever, but this is just so different. It is very easy. It's so user-friendly.
00:00:59
amanda
It is so intuitive and the fact that you can have your current reading, the rate of change from your last reading, plus your arrow on any
Comparing Sweet Dreams with Other Apps
00:01:11
amanda
Apple product that you have,
00:01:13
amanda
like is so helpful right now as we are recording this. I am staring at my daughter's graph. Her number is 115. She was down seven from her last reading with a right arrow. And it's just so helpful to be able to glance and all the mental math and the burden of it all is taken away.
00:01:32
amanda
I know that she's safe. She's probably going to slow down as her food digests more. Like it's just so helpful.
00:01:39
Type One Together
so So well, as I've been posting about it a little bit myself, just because I love it, people have been like, oh, well, Dexcom has the widget now where you can just put it on your home screen, but it's not the same.
00:01:39
amanda
What do you love about it?
00:01:49
Type One Together
And here's why this tells you the rate of change, which Amanda and I always talk about. It's such a valuable piece of knowledge to know because you can tell how fast you're dropping, how fast you're rising.
00:02:00
Type One Together
So. when we say rate of change it says plus 10 or minus 2, whatever it is, so like right now I'm 111 plus 1, so I know that I'm just sitting there and I'm gonna be fine, I don't need to take action, and being able to have this especially on my Apple CarPlay has been so cool because if I'm driving and I kind of feel like I'm dropping but I don't of course want to reach for my phone while I'm driving, or even look at my watch, I can just look at it on the screen and I can see Am I going up so fast or down so fast to where so something needs to be done and I need to pull over or do it in a safe way?
00:02:29
Type One Together
And I think that would be so true even if you're a parent and wondering if you need to do that for your child.
00:02:35
Type One Together
Like we're putting ourselves and our kids in more danger if we're having to pick up our phone and look at that. And so that's been really cool. And then of course on the watch and then I recently got it on my computer screen as well which is great because like while we record this whole podcast I can't see it.
00:02:50
Type One Together
So there's
Thanksgiving and Diabetes Technology
00:02:51
Type One Together
something so unique about it and then setting it up is so easy compared to the other apps in the past in my opinion.
00:02:56
amanda
Yeah, I totally agree. So we love Sweet Dreams. And if you are looking for anything and everything to alleviate even a tiny bit of the mental load that is type one management, Sweet Dreams is your happy app. Let me just tell you.
00:03:15
Type One Together
Yeah, it is. All right, well, as we get into this episode, we're gonna talk all about things we're thankful for in relation to diabetes, which might sound a little counterintuitive, but it's real.
00:03:31
Type One Together
and There are things we're thankful for, and it's Thanksgiving week, so first of all, happy Thanksgiving almost.
00:03:35
Type One Together
It's too late to be listening to when it comes out.
00:03:39
Type One Together
Where should we begin? What are you thankful for, Amanda?
00:03:42
amanda
We can, yeah, we can just like go back and forth, I think. So maybe we can preface with like, it is okay to hate diabetes, it is okay to be pissed and wish it away and not want it and just like wake
Personal Stories and CGM Impact
00:03:56
amanda
up every day really, really, truly hating it.
00:03:58
amanda
But I also think there is something so positive and healthy about shifting your mindset on occasion and looking at how much better diabetes management is right now in this day and age compared to years ago, right? So the main thing that I'm thankful for is CGM technology. That is like the greatest gift. I am so grateful that she was not diagnosed in, I mean, even like eight years ago, right? Like a CGM technology existed, but it wasn't super great and maybe not super available everywhere. Definitely not for a two year old, I don't think.
00:04:46
amanda
And we were lucky enough to have a Dexcom put on her right before we left the hospital. And and that first night it saved her life. Like she was dropping significantly and we still didn't really understand the severity of it all.
00:05:03
amanda
But I knew like, oh my gosh, this is really scary. I got to get her back up. um And i don't I don't know. We were so exhausted. i i was I had just been in the hospital with her for 48 hours straight.
00:05:17
amanda
but had only slept maybe a collective five hours. And there's no way without the Dexcom and the alerts that I would have woken up.
Resilience and Growth through Diabetes
00:05:29
amanda
I probably would have set some alarms, maybe like two overnight, but who knows like where she would have been at that point. So while all of that is kind of like scary and doomsday, I choose to just be so thankful for the fact that we have a Dexcom. That's incredible.
00:05:48
Type One Together
I mean, yes, I'm super thankful for all the technology as well. And for just being alive because of all the technology and because of insulin. But beyond that, I'm thankful for diabetes itself.
00:05:59
Type One Together
And I think it can really be true that I'm thankful for it. And it's really hard, right? Like everything you said in the beginning, diabetes sucks. And I'm not taking that away by saying that I'm thankful for it.
00:06:10
Type One Together
But I was actually listening to a podcast yesterday with Riley Arnold, you know, the girl on Dancing with the Stars. follow
00:06:16
amanda
Um, no, I don't follow her, but it yeah, I know who you're talking about.
00:06:20
Type One Together
she is so She has type one and is like one of the pros on Dancing with the Stars. And um she was on this podcast talking about random other things, but they brought up diabetes. And it was really interesting to hear her speak about it. And you know, they were kind of asking her, like, do you think that this is part of why you just seem so much more mature than your actual age?
00:06:39
Type One Together
Like she's 19 or something. It's crazy.
00:06:42
Type One Together
And she's doing all these things. And when she talks, she sounds like she's at least 25, I would think. And she was nothing but positive about like how thankful she is that diabetes has given her so many of these characteristics that I see in myself as well.
00:06:56
Type One Together
And as much as it can be sad to think like, oh, I grew up way too fast and all this stuff at the same time, It's a beautiful thing. You know, it's given me so much perspective on life. I feel like I can tackle so many more challenges that come my way because I already deal with diabetes.
00:07:11
Type One Together
Like we're just good at getting through the hard times. And I feel like I have this sense of knowing that it's going to get better, right? If I can get through this thing and we're constantly dealing with frustrations every single day that it kind of like trains you to be equipped to have things coming at you.
00:07:28
Type One Together
And I think it's a huge reason why Like I am a hard worker and I don't let things stop me. So yeah, I'm thankful for that.
00:07:38
amanda
I love that. That's a really refreshing take, I think, for a caregiver to hear. Because as the caregiver, it's very easy to constantly fall into the why my kid I don't want them to have to be strong.
00:07:53
amanda
I you know, I posted a mental health Monday yesterday talking about how like, it does get easier, like they don't always scream, cry, and ride from pain with the pokes and stuff. And a lot of the comments were kind of about, but it's so painful that they get to that point, that they're just used to it. But I, for some reason, don't necessarily always feel that heartache and pain that she is used to it.
00:08:27
amanda
And I don't know why, maybe it's my daughter's unique personality. Like she is tough as nails. Nothing phases her. And I don't know.
00:08:39
amanda
I think that I'm more just like, there's just this sense of relief that she is used to it. Although I totally do understand like the heartache as a parent that your child gets used to it.
00:08:50
Type One Together
yeah I think that goes back to the idea that we have these expectations for our life or for our kids' lives. And as the parent, you're seeing that being taken away, that original idea of what their life was going to be taken away.
00:09:04
Type One Together
And then I just think, I'm thinking about this so much, there's a lot of us putting paint on ourselves because we feel like that's this, it's not the way it's supposed to be or the way that it was going to be. And it's really interesting because I also see that I'm like, oh, that is really sad that like, they're so used to that.
00:09:21
Type One Together
They shouldn't have to be used to it, but they are.
Parental Coping Mechanisms
00:09:23
Type One Together
That's the truth, they are and they're okay and they're moving on.
00:09:25
Type One Together
So why are we focusing on that? And when I say this, I'm not saying it at the parents, I'm saying it to myself too. Because when I really think about it, I'm like, how sad is that? That I've literally done a site change every few days for over 20 years or whatever.
00:09:38
Type One Together
That is very sad when I really think about it. But then it's like, I don't feel sad. Am I putting that on myself?
00:09:44
Type One Together
Like moments I don't feel sad. I just go through it and I do the thing and I'm fine. So why are we projecting that? Is that crazy?
00:09:52
amanda
No, it's not crazy. That's a really great explanation of it. And I think that like, there is, there is a sense of projection as parents onto our kids, because especially in this day and age with so much access to the internet and to be able to constantly compare yourself and your situation, your parenting and your child to other people, then you're it in this potential head spin of
00:10:18
amanda
ah like idolizing or idealizing, I mean, a picture perfect life, but like the reality, I tend to shake off the idealistic picture because it's just like too overwhelming for me.
00:10:36
amanda
And maybe this is my meds talking because beforehand I was a freaking mess, but like, i I shake it off and then I just kind of live in reality. i just My personality is to be very realistic, give myself time to grieve, acknowledge the hard, and then eventually it is like, this is reality, how do I live here in
Community Support and Connection
00:11:00
amanda
And I don't know, maybe that is Hattie a little bit too. Like she might just have that personality. And so maybe that's what makes it easier. But ultimately, when I think about how sad it is and everything, I do get to this point of going, it is sad that she's used to it. But the alternative is she dies instead.
00:11:26
amanda
like we didn't make it.
00:11:28
amanda
I don't have her. She's permanently a 26 month old, not my beautiful five year old. And that is where it's like, I hate it for her obviously, that that this is what she has to do in order to be this beautiful flourishing five year old, but she doesn't seem to care.
00:11:49
Type One Together
yeah yeah
00:11:51
amanda
um So, I don't know. And i I don't want to say any of this to like dismiss anybody else's experience or feelings. Certainly not. I think the hard part is we all put if we're in a position to put out our experiences like out there for others to absorb, you really can only speak to your own, you know.
00:12:15
amanda
I'm just speaking to my own and hopefully it helps somebody's heart just settle a little bit.
00:12:23
Type One Together
Yeah, I feel like when I first started listening to other people talk about diabetes, whenever I heard positive things, it was a little bit surprising to me. It's like, how could you have this outlook?
00:12:33
Type One Together
And it kind of gave me permission to feel that way. Does that make sense? like
00:12:39
Type One Together
So I hope to be that for people. And I really don't want it to, like Amanda said, feel like we're like, Oh, you shouldn't feel that way. Cause obviously you should feel everything. And even Riley on the podcast was saying the last thing I want to do in rehearsal is go check my blood sugar, or worry about what it is. But like I do the thing and I'm so thankful to have the technology to do the things. And then you can still try to live your life. And that's kind of where I'm at too, I think.
00:12:59
amanda
Yeah, I love that.
00:13:01
amanda
Is there anything else like hyper specific that you're thankful for?
00:13:06
Type One Together
Yeah. Um.
Personal Growth and Parenting Lessons
00:13:08
Type One Together
Ooh, I should have thought more about this before. I mean, the obvious one is community. It's just so present in my life. That's not super specific, but like the way that I've, I guess built my life around the Chinese community the last few years has been really powerful and it directly makes a difference in my management and in my mindset and mental health.
00:13:29
Type One Together
Just getting to talk to you, getting to hang out with type ones all the time and, you know, be in community online too is really powerful. Yeah.
00:13:37
amanda
Yeah. I totally agree with that. Like a thousand percent. That was one of the things that I was thinking about is like, and again, because of my unique experience in my life and everything, having no social media, but knowing it was available, but kind of just having like this weird refusal to get on social media. Cause I just felt like it was so toxic. And my experience when I was like 18 and 19 was just so bad for me personally in my mental health.
00:14:06
amanda
And then the fact that it exists at all is so helpful if she was diagnosed in the 90s or I mean just before Facebook and Instagram were a thing, right? So early 2000s, like If she was diagnosed then, I would have stayed in that isolated, I'm the only one with a two year old. I have no idea what I'm doing. I'm following exactly what the doctors say and nothing's working and just would have felt crazy. And I pulled but myself out of that deep, dark place because I could look to other people who were thriving.
00:14:50
amanda
And that's incredible that like it's at the tip of your fingers if you need it. you know
00:14:56
Type One Together
It's a good way to meet people too. like I know when I first moved to San Diego I was talking to you about, like oh I want to meet friends outside of the diabetes space. like Realistically, if we took away all my friends that had diabetes, like, yes, I have other friends, but it's very few compared to better type one.
00:15:12
Type One Together
And now I'm starting to realize too, like I even met a girl recently through an entrepreneur thing and I keep forgetting she has type one because she happens to, but that's not how we met. But I really like her.
00:15:22
Type One Together
And I'm like, wait, diabetes is such a good way, just like I say with dating, it's such a good way to weed people out because even when we had our little moms meet up last week,
00:15:31
Type One Together
We had so much fun. All of those moms were amazing. I would hang out with them any time outside of like right.
00:15:36
Type One Together
But like, how is that possible? Because that wouldn't normally happen if you just get a random group of people together. But there's something that diabetes does to you that just makes you a great human. I feel like.
00:15:46
amanda
Yeah, that's so true. like this is okay this is I hope this doesn't come across um the wrong way because I'm not saying this in in the sense of like this is something that I've experienced before. But I'm curious if there is a person who's just wishy-washy, not great, not the best person in the world,
00:16:08
amanda
And then they either get diabetes themselves or their child gets diabetes. And it's this big smack of reality and this big dose of humble pie.
00:16:19
amanda
And it's like, you don't get to be in control all the time the way you think you do.
00:16:24
amanda
Life is freaking hard. You're not picture perfect. It's not picture perfect. And like you are forced to adapt over time. And so I'm wondering if everyone we meet is so loving and cool and easy to talk to and easy to be around.
00:16:40
amanda
And it's like, damn, you're a good parent. Every single one of those moms, it's like, you are a top notch mother. You are doing everything in your power for your kid.
00:16:50
amanda
Your children are so lucky.
00:16:53
amanda
And I don't know, maybe we have just been getting lucky, but Yeah, I don't know. The people you know people in the diabetes space are just like really amazing.
00:16:59
Type One Together
I think that's so real.
00:17:05
Type One Together
That would be such an interesting experiment. I guess what's really specific is, which I don't think I've always thought of it this way, but like I'm working on being more present and I've actually been working with Brooke who came on the podcast with like nervous system regulation and all that stuff.
00:17:20
Type One Together
And I think the moments where I get most frustrated with diabetes is when I'm like rushing and I'm working and I'm doing something and then diabetes takes me out of that and it just, forces me to be present in that moment. As weird as that sounds. I literally just thought of this. I've not been processing it that way. There's something you said that like made me think of this. but Is it possible that we could start to look at those moments as like, okay, diabetes is forcing me to be more present, even when you're like making a meal and you're having to stop and give the insulin.
00:17:47
Type One Together
It's like, you can't rush through everything as much. And I wonder if that also contributes to making those really awesome humans as well. Cause it's like, we have to just slow down and like be more intentional about the way we're living and doing things.
00:18:00
Type One Together
I don't know.
00:18:01
Type One Together
Stretch, but
00:18:02
amanda
No, that's totally that is absolutely true. I mean, this has nothing to do with being a good human. But last night we were on Marco Polo and the girls were making a little polo to say hi to their uncle Peony and K.
00:18:18
amanda
And it was so cute. um And I was talking to like explain what was going on. And then I was like, I have to stop. You can look at Hattie right now.
00:18:30
amanda
I need to dose her. you know Because I was trying to dose while also talking.
00:18:35
amanda
And I was like, I can't do this. This isn't safe. It's not the right like thing to do.
00:18:40
amanda
I need to take two seconds. ah Yeah, so I guess, yeah, thankful for being present.
00:18:45
Type One Together
It's ignoring it. It's annoying sometimes, but also I think it maybe is necessary because if I'm always rushing through life so much. I don't have anything to pull me out of that. Like, I don't know.
00:18:55
Type One Together
That's not good.
00:18:57
Type One Together
I've been talking a lot. What else are you thankful for?
00:19:00
amanda
I am thankful for the time and place that we are in in society right now, where outside of all the things that are proving contentious for the world, we don't get political here, but outside of all of that, in general, we are in a
Societal Acceptance and Inclusivity
00:19:21
amanda
place in society where it is seen as like more normal and it is encouraged to like explore and accept differences, right? At least that is my experience. Maybe that's a very California sheltered
00:19:39
amanda
like life that I'm living but I feel very much so like the kids in Hattie's class and the people I meet at the park and the playground and the people I talk to online everyone's very like what is different about you and how can I celebrate it? And I'm just so thankful that that is where society is at and you can like seek out those pockets right now as opposed to many, many, many years ago when diabetes was like literally taught by the endos to be like, she ah you know, you should try and hide it, don't tell people about it, don't eat sugar, you know,
00:20:22
amanda
And people were so deeply embarrassed to have this disease process that you literally have no control over whether you get it or not. And so I'm just really grateful that in today's day and age, Hadi can go into a classroom and the kids are like, what's that on your arm?
00:20:37
amanda
She can explain and they go, cool.
00:20:40
amanda
And then it's like the next kid's turn, how are you different?
00:20:46
amanda
Yeah, I don't know, like the book Just Ask by so Sonia Sotomayor. That one is just such a great thing, great book for kids who are newly diagnosed because each page is a different kid's story and everyone's different in some way. One kid is blind, one kid needs a wheelchair, one kid has Down syndrome,
00:21:06
amanda
One kid has autism, someone has ADHD, and everyone has their unique things, but they all contribute to growing this garden that doesn't have one single plant, like this beautiful garden. And that is like such a lovely concept. And I don't know. Yeah, I'm just grateful that that's where society is at right now.
00:21:25
Type One Together
Yeah, that's so true. I feel like I feel way less weird about going out in public with devices, not just because I've gotten more comfortable with it, but also because I mean, unfortunately it is more common, but therefore more people know about it.
00:21:38
Type One Together
And even if they don't, they're like open to learning. You know, like I think I was, here we, it might've been on our better together call and we were talking about kids getting bullied at school and it's just such a weird concept to me because I'm I'm just like, what?
00:21:50
Type One Together
People would really do that these days. I mean, I know little kids are going to be kids, but, um, it doesn't feel like that should be as much of a thing anymore.
00:21:59
amanda
Right and I think it's hopefully not and if your child is experiencing bullying a lot like you definitely need to look into that I would say and and have some talks with you know people at their school or the other parents or whatever because Hattie's Hattie's now been in school for like two full years, just like preschool and whatever. And as far as I'm aware, there has only ever been one instance of somebody trying to make her feel bad about diabetes, and it didn't faze her at all. And otherwise, it's like I'm hearing from these parents that their kids come home and they're like, oh my gosh, yeah, I did hear about Hattie. She wears something special in her arm. like
00:22:43
amanda
she she beeps and then she needs a snack. So I'm so excited that I get to walk with her to go get a snack. you know like And I think that because that's the majority of what she's experiencing in the world and amongst her peers, the one instance of bullying means nothing where she's just like, I don't need you.
00:23:02
amanda
Who else wants to go to the nurse with me? you
00:23:05
Type One Together
Yeah. Yeah, it's so interesting.
00:23:07
amanda
Do you have anything else?
00:23:08
Type One Together
Well, I guess I'll share my little Thanksgiving story. I feel like I share it every year, but just because this is a couple of days away from Thanksgiving, um, one of my like biggest memories of being in an endo office ever was this moment where I'd been diagnosed probably just a year or two and I was on shots and very strict on carbs and all the things. No pump yet. And, um, the endo, I remember like, I think she talked to my mom first and then she brought me in the room and was like, okay, Raquel.
00:23:36
Type One Together
for Thanksgiving this year you can eat whatever you want, you can have anything anytime, you don't have to only eat at your specified times and you know things were different back then but it was like this moment of
Thanksgiving Reflections with Diabetes
00:23:47
Type One Together
just so much excitement and Thanksgiving has always been my favorite holiday and I'm sure part of it is because of that but also my family has always just made it really special. My mom and my sister and I always make pumpkin pies together and like food has just never been like off limits, not that it was any ways, but like there was no restriction around how much or anything like that.
00:24:07
Type One Together
And it's just such a core memory for me. That was such a fun Thanksgiving and all of them to follow, of course, were the same. And, you know, I didn't have to restrict myself even probably here after that, but that's beside the point.
00:24:19
Type One Together
I just want to share that as a reminder that whatever happens this Thanksgiving, I've had my fair share of crazy highs on those days and it is what it is, but I had the best time and I have so many great memories and I just really encourage parents to create those memories for your kids as well and not focus on the food and the blood sugars too, too much.
00:24:39
Type One Together
You know, be safe as always.
00:24:39
amanda
Yeah, I totally agree. I think the last thing that I'm thankful for is pump therapy.
00:24:47
amanda
And you know the fact that there are pumps on the market that are available for truly all ages, and that there are endos um out there who do care.
00:24:58
amanda
So even if you have a baby, Um, we've seen 10, 11, 12 month olds on a pump, you know, and that makes life so much easier. And so going into Thanksgiving, I do want to address like one mental health Monday response, which was saying, I'm I'm pretty anxious about Thanksgiving and the idea of like counting all of the carbs, like how do you do it?
00:25:23
amanda
and you don't do it. like you you can You can micromanage how everything is made and bring measuring cups and a scale and pre-way everything and pre-determine exactly what your child can eat and then pre-dose by 15 minutes and they force them to eat everything or you can accept that they might go high
00:25:49
amanda
What's the worst that can happen? They go really high, 400, 500. Have a number of units in your head that you're really positive will bring them down from that, at least back down into the 200s and give it.
00:26:04
amanda
Or if they're still an MDI and you want them to be able to graze, talk to them about, do you want one shot?
00:26:11
amanda
Are you going to be okay with multiple shots? If they're going to be okay with multiple shots, give multiple shots for what they're eating. If they're not, what I did was one big
00:26:24
amanda
dose. This is not medical advice. But what I did was I, at two years old, she could not eat much more than 60 grams of carbs. She just couldn't do it. So I gave her a bolus for 60 grams of carbs right as she started eating. And I just put a plate down in front of her and watched her. And I knew that she would take sips of sugary drinks if it was too much, or she would eat a piece of pumpkin pie or a piece of apple pie or whatever and I just sort of watched her. um
00:26:56
Type One Together
That's I feel like over the years, because i I did get frustrated eventually, especially in high school years, feeling so lethargic from how I would just be a little bit higher all day, that I started just being like, all right, I'm really going to give a lot of insulin. And I rather just catch a low with one of the fun treats in the house for the day um if I have to. And that's just my personal approach, because I would start to feel a little icky. But I love that, like just going for it.
00:27:21
amanda
Yeah, you can just go for it if you want to. If that stresses you out more than hyper being hyper-specific and counting out carbs, then don't do that.
00:27:32
amanda
Just find what's going to work for you best, I think.
00:27:32
Type One Together
Exactly. Yes. And before we go, it is currently our Black Friday sale, which we're super excited about. We're so thankful for you all. And we want to show our thanks by hopefully being able to provide more resources for you. So all of our master classes right now are 30% off, and that includes auto auto mode,
00:27:55
Type One Together
We've had five tandem deep dive sick day masterclass travel masterclass and then Meg who is our dietician who lives with diabetes. She has a nutrition masterclass and then also a celiac gluten free masterclass, of course all related to diabetes. And our babysitter list is also 30% off our stickers are type one coloring books, and our self paced video course to end the diagnosis made simple.
00:28:22
amanda
it's a lot of stuff yeah
00:28:24
Type One Together
It's a lot of stuff and we never do this, but um yeah, we really appreciate your support and we just appreciate you all being here and showing up for each other as well. And you have to use code thankful at checkout to get the discount.
00:28:36
amanda
Yes. Awesome. Well, we hope that everybody has a fantastic, happy Thanksgiving. ah And thank you so much for tuning in and listening. We hope that you can exit this episode and think about a few things that you are actually grateful for and really mean it.
00:28:55
Type One Together
and Alright, we will see you next week.
Black Friday Sale Announcement