Become a Creator today!Start creating today - Share your story with the world!
Start for free
00:00:00
00:00:01
Episode 2: Lila's Misdiagnosis
97 Plays2 months ago
In this episode, Jacqui chats with Ange Liston-McCaughley, founder and CEO of the Type 1 Foundation. Ange shares a vulnerable recount of the moments that lead to Lila's diagnosis over 10 years ago.
If you enjoyed this episode, please subscribe, leave a review, and share with anyone who might benefit from the Type 1 Foundation’s message.
Further Resources:
Type 1 Foundation Website
Follow us on Instagram
Join the Facebook Group
Recommended
Transcript
Introduction to the Podcast and Hosts
00:00:00
Speaker
The content provided in this podcast is for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Reliance on any information provided by this podcast is solely at your own risk.
00:00:23
Speaker
Welcome to the Type 1 Club. Whether you're a parent grappling with a new diagnosis, a caregiver seeking guidance or simply someone wanting to learn more about Type 1 Diabetes, this podcast is for you. Together, let's dispel myths, break down barriers and build a community of understanding and resilience. Join us as we embark on this journey together, because with knowledge, compassion and support, no one should ever feel alone in managing Type 1 diabetes. Welcome to the Type 1 Club.
00:00:59
Speaker
Hello, everybody, and welcome to the Type 1 Club Podcast. I'm your host, Jackie Kidman. And I'm Angelista McCauley. Welcome everybody.
Angelista's Personal Journey with Type 1 Diabetes
00:01:11
Speaker
It's so lovely to have you here today. So as part of this podcast, Ang and I have kind of made the pledge that we want this to be a podcast that supports type one families, type one people, um, and type one community. I guess part of that as a podcast with two hosts is really getting to know your hosts, um, initially. So,
00:01:34
Speaker
That's the hope and the aim for the end. And I both want for this podcast is that by sharing our stories, we help to raise awareness and and also just to support um current and future type one diabetic families and communities. So today, and just going to share her story.
00:01:54
Speaker
So it's all on to you and you're doing most of the talking this month. Yeah, that's funny. I mean, not funny, but not funny. Thank you, Jackie. Thank you for the intro. I'm really excited today to share my story and excited. I mean that in the hope that it does help other families out there that are listening to feel, as Jackie said, less alone and more supported and To have some understanding that um others have possibly been through a similar situation that I have in the hope that their grief and their trauma after diagnosis is is not something that you are left in. um Yeah, so as I've spoken about and many of you out there know, I've been on the journey for 10 years now and at the time of diagnosis, of Lila's diagnosis,
00:02:49
Speaker
I was the mum of four beautiful children, healthy children. So prior to Lila's diagnosis, Ollie, my youngest, was just born. He was three weeks old and so During the pregnancy, Lila had definitely had some symptoms. She came back with a school refusal, which had taken her to school and she didn't want to get out of the car numerous times in that year. And I then went and took her to a doctor who's then referred us to see a psychologist and she was diagnosed with a bit of anxiety um and they sort of thought that might have been around the fact that you know having another child in the family another baby that can often happen or maybe she's just an anxious child so fast forward to another six months
00:03:42
Speaker
And I started to notice that after she'd eat food, she told me she had a sore tummy and her tummy was upset and she didn't like to eat certain types of food. So I took her back to the doctor and they sort of did all the um food intolerance tests and the allergy tests and things. And we were tested for celiac and a few other allergies, which all came back to say that she didn't have any of those.
00:04:03
Speaker
um So then we're back to the drawing board. But um as a mum, I think I always had this gut instinct that something was just not right with her. Her behaviour had definitely changed. But I guess as a nine year old, the behaviour can change anyway because of hormone fluctuations and things that come in. But being my first child, I didn't have anything to sort of compare her to. I didn't have that older child to be like, oh, but you know this other child did this which is now I know having four kids you do end up tending to to sort of compare which wouldn't have really probably in hindsight helped much anyway because it wasn't what we thought anyway so anyway a few weeks prior to her diagnosis she did decline significantly she'd lost a lot of weight but then again we put that down to a growth spurt
00:04:47
Speaker
where sort of my husband and I were like, oh, maybe she's just shot
The Misdiagnosis and Critical Diagnosis
00:04:50
Speaker
up. And I look back at photos and, you know, she at the end, in the end had lost nine kilos. So for nine year old, that's a significant amount. It was like a third, probably of her body weight. Yeah. Wow. So a huge amount of weight and it was summer. So you could see that in the bay. There's, it was December. She's definitely drinking more water. And like Harvey, a Jackie son, Lila was definitely wetting the bed, which was a regression because she had never, never wet the bed.
00:05:16
Speaker
previously, not even as a young. She was always well trained compared to my now three sons I have. and um So that was definitely a sign. Again, didn't look at that. And the other thing I did notice was she'd come home from school and I had just had our fourth baby Ollie and she used to curl up in the bed and have a nap with me.
00:05:35
Speaker
And often I'd be breastfeeding Ollie after school on the couch and she'd lay next to me and I sort of thought that was a bit strange but I thought end of year she's just as tired. All of those symptoms and then it got to the point where she was just so unwell that she couldn't get off the couch. We were about to go on a holiday to Queensland and I sort of said to my husband at the time that I didn't feel comfortable going to Queensland.
00:05:56
Speaker
unless we got her checked because there was something really not right with her. She just, she kept getting this tummy virus that was like recurrent, happened for about three weeks and um... Like as in, when you say tummy virus, like as in tummy pains or she would like physically go to the toilet. Physically vomiting as well with it and they sort of diagnosed her with a stomach virus. The night before we left to Queensland, this was the third visit in a week that we'd been to the GP and it was the same GP and it was our local GP.
00:06:24
Speaker
And I always sort of describe this story like it wasn't a fun thing to go to the doctor with a nine-year-old, a four-year-old, a two-year-old, and a three-week-old baby, and they were boys. So they were jumping off the furniture and, you know, just picture like it was back before really iPad and phone days. So it was like you were like throwing toys from the toy box and jumping off the chairs. feel like everyone's eyes are watching you, like, gosh, this mother will control her children. Yeah, and like to start, it was the hypochondriac mum that I felt like I was this, all this overprotective mum that was trying to, and the doctor just said, you know what you need? You just need a holiday. You just need to go away and just chill out and
00:07:03
Speaker
take it easy. So off we went the next day. Lila was still quite sick, but when we got on the aeroplane, she slept the whole time on the plane. We got off and we actually got a limo because it was cheaper than... Oh, it's in Queensland. Yeah. Oh yeah, it is. It's cheaper than the taxi, isn't it? Hilarious. And there were so many of us yeah because we had to pay you and all this stuff you could just imagine. Now looking ah back in Heinz Lake too, it actually probably wasn't that much stuff up because we weren't diagnosed yet. So anyway, we had double prams and car seats and things. So, and we were asking her how come she wasn't excited about the limo?
00:07:37
Speaker
and she just didn't look excited. And then we went through Macca's in the drive-thru and that she didn't get excited about that either. So there were all these motherly instincts. I was like, something's wrong with Lila. There's something really, really wrong with her. Anyway, to wake up the next day, she didn't want to swim in the pool. My sons, you couldn't get them out of the water, but Lila just laid beside me with their head barely getting up off the banana lounge next to me. And I was feeding Ollie at the time, you know, it was really warm. It was December in Queensland. so You were literally just like trying to keep him in the shade and keep cool. I looked at her like next to me on the sun lounge at one point and her eyes were like rolling back in her head sort of and she was it was almost like she was begging me to help her but she didn't know how to
00:08:20
Speaker
verbalize that and um I just looked at her and I just yelled across. and Something just rushed. You know i need what you said before, like something rushed over me and I yelled to my husband who was at the other side with the boys in the pool and I just said, you need to get her to the doctor now. I don't know. Something is really wrong. And she had vomited twice that morning. So she was in DKA and she hadn't drunk or eaten most of the day.
00:08:46
Speaker
Can you just, ah like what's DKA? So DKA is diabetic ketoacidosis. It's when the blood sugar gets so high um that basically your body is using its own, so fuels to source. And it hits the weight loss because it's storing, it's using all her own her muscle basically. That's right. Yeah. So it is a very dangerous situation, especially to have at such a young age when you don't have the stores. And we knew, as I said,
00:09:17
Speaker
specifically that you know something was desperately wrong but we just thought in in our minds at that time that she just had a stomach virus that was almost like a you know like something you might get in Bali that you just like a bug that just wouldn't go away like we hadn't been anywhere so there's no reason why a nine-year-old would get that. You knew nothing about type 1 diabetes at that time? Nothing, didn't have any family history As I said, I didn't, didn't know anyone around me with it. Didn't have any inkling. That was what it was. I just assumed that the doctor would say, my husband literally, I watched him just push her away in the baby pram, the double pram. And I just. Cause she had no energy to walk herself. No, no, no, she couldn't walk. Yeah. She could barely move. Um, and I just remember looking at the sky and like just praying that
00:10:09
Speaker
you know, she would come back and I just knew at that moment I remember looking at the palm trees and I just knew that something was so wrong and I just didn't know how to help her and I didn't know what I was doing wrong as a mum, like that gut instinct of like saving your child And I'd gone for help like before. I wasn't like I was, ah but I just, yeah, I was like the most helpless. And I just had a baby three weeks or earlier. So I was probably not in a good vulnerable, you know, like, I mean, your emotions are already high, aren't they? They're already, you know, like my hormones were already off the chart, which I know all that stuff now in hindsight. And, um, and I also in saying that also,
00:11:00
Speaker
It's not not because of that as well, because I always went through exactly the same thing, like those exact sort of feelings of yeah the helplessness. And the yeah like that and i couldn't I couldn't keep my shit together.
00:11:13
Speaker
yes yes you know like so its yeah yeah Mother's intuition is a huge thing, I think. And as they left, I liked, similar to you, had to like bundle my boys up.
00:11:26
Speaker
into like the pram and they wanted to stay at the pool. I'll never forget this moment and I was just like they were two and four and you know and I popped all in the pram and I was saying only on how to get out of the pool like because I was losing so much that I didn't want to do it in front of the whole pool area of people And I remember taking them up to the apartment. I just needed to be alone and like being this like the worry that I felt was I locked myself in the bathroom and locked them out and they were little boys like yelling, mommy, mommy that you know you what you were saying before that kids know when something's wrong.
00:12:08
Speaker
and usually they're they're quite of a luck they would have just played but they i could they knew that something was desperately wrong themselves that feeling and I was like I couldn't help them either because I couldn't help myself and then I couldn't help my daughter and I was in Queensland no help no family it wasn't like I called my mum my mum would have come over in two seconds or even one of my girlfriends or I couldn't get anybody to come and take the boys for me and say my husband was off, you know. So then he rings and he says, oh I'm at the GP and they've seen her straight away. So what ended up happening was they they looked at Lila in the baby pram and they knew something was really wrong.
00:12:49
Speaker
And they asked the patients to um to step outside for a minute. oh wow And the lady fingerprinted Lila straight away and they called the mica and the paramedics and then they then called the air, like whether they could get a a helicopter, like get her air lifted out. And they were talking of taking her to Brisbane. If Brisbane couldn't take her, they'd take her to Melbourne. So really, really grateful that she took to the insulin straight away because it can go either way, apparently. So at the GP or at the hospital?
00:13:26
Speaker
the mic up so they know, so they put her on the drip and everything and took her straight in. So she spent um four nights in ICU and it's always the first two days they say that ah you know if they can see symptoms of her actually you know recovering well, which they did. so And then the last five days of the holiday were on the ward. First night was really rough and when Leif called me to say that Lila had type 1 diabetes, I was like, what? But he's like, oh, don't even worry about that. Like,
Angelista's Advocacy and Foundation Creation
00:14:06
Speaker
she's like an hour off a coma. And I was like,
00:14:10
Speaker
what like you know and I just remember like it was lucky that I had taken the kids back up to the apartment because I was just screaming I was on the floor I was like you know I knew that you know I was saying like I knew she was sick and no one would listen to me and you know it was just the hardest moment because and he's like don't worry about all that now like it doesn't matter but and I guess my grief for years has come from the fact that, you know, I know we lost it, but I, in my heart, knew that I could have, that I had the right, in you know, my instincts were correct and I had, I could have, you know, changed that, you know, just one of those visits. I could have been one finger prick.
00:14:57
Speaker
And we were just lucky that lady at the GP in Queensland, she pricked her straight away and was like, no, I think this girl might have, she thought it straight away. So we'd actually had blood tests for other things like celiac and, but no one ever checked her. Maybe they might not have come up that early, but yeah. So I guess for us, that was the big thing. And and also, as you said that later, a few people had noticed some things like in class, her teacher said she was falling asleep.
00:15:27
Speaker
But her teacher said they didn't mention it to us because they just thought that we'd had a new baby and maybe she was getting kept up from the crying. And I said, no, like on yeah not even my husband's getting up for the baby, just me. Yeah, yeah, that's right. yeah She's not getting up to awake crying baby. She's leaving right. So yeah I guess there's all those little micro moments that could have changed Anyway, so I'm not a real I'm a quite a positive type person I say in terms of I always look at the best the the positive things. And for me, it was like this moment in ICU waiting like so I ended up coming in. So I got in the taxi and came in as on the first night to see Lila. And yeah, she was quite like she was asleep and
00:16:14
Speaker
my husband took the boys off and our baby Ollie and um I had got some time just to sit with her and like talk to her and stuff and it was like a, ah you know, I was saying to you before I'm quite a spiritual person and it was quite a spiritual moment of like You know, there was, there was just something, I can't even describe what it was, but it was just like this, I have to do something to change this. Like this should not happen to people. And when I'm in the right frame or the, when I'm okay and I'm few years down the track, I plan to change.
00:16:46
Speaker
Hopefully do something. It was just a moment. I can't describe it then more like a spiritual kind of you've got some real clarity. Yeah through that Yeah, I was like I found my calling or something. I don't know. That's amazing I mean for me it was only just how am I ever gonna have a shower? Yeah like Yeah, it was it was a weird moment, and i I've told a few people that story, but yeah, it's something that I'm, you know, it it is why the Type 1 Foundation exists, because it was just this moment of saying that the pain that I'm in right now, never forget that pain, do something good with it.
Understanding and Adapting to Type 1 Diabetes
00:17:24
Speaker
Change things, change change it so no one else has to be in this position that I was in, because nobody should go through that when it is all preventable.
00:17:38
Speaker
Don't ignore the four. The four early warning signs of type 1 diabetes. Excessive thirst, frequent urination, unexplained weight loss and extreme fatigue. If you or someone you know is experiencing these symptoms, don't wait. Get checked by a healthcare care professional. Early detection and treatment are key to managing type 1 diabetes effectively.
00:18:02
Speaker
I mean, not not the type one part, but the preventable DKA part of the preventing. The misdiagnosis, the being misdiagnosed in this day and age, like it was even 10 years ago. but So that must have been quite, um I mean, that whole story sounds very traumatic to me. You've got three little, little kids. You've got a very unwell, you know, Lila's very, very unwell in hospital. You're,
00:18:28
Speaker
at a resort or a hotel with three little children andre trying to keep together. You still want to keep those three children alive. ah You're kind of you know grieving and um and trying to process it all. Your husband's at the hospital. I can imagine that you both wanted to be at the same place, and but you need to be there for four children at once. and A new baby. like a newborn, I can't even imagine. I mean, we had a puppy and I was, I thought that was, we had a nine month puppy and I was almost ready to get rid of her, to be honest. That's not, I've got a seven month old puppy at the moment. I'm thinking about it all day today.
00:19:11
Speaker
It's like that's a newborn as well, you've got another newborn. I'm the only fifth child, I don't know what else to give. That's what I laugh because i people like I'm like, wait well I had a puppy, it's still pretty full on, like it's the third child for me. i was um The newborn baby was easy compared to bringing Lala home from hospital. yeah It was like I knew that I could put feet, Ollie,
00:19:36
Speaker
put him down and I knew that he was going to wake for it three hours or later. It wasn't worried that I was, I had to keep him alive only by food. I'll never forget like when we did, Lila did come home. It was like, as I said, it was you know, day 10 and we got her home and we had to leave Queensland like we only were there for 12 days. We actually tried to, I'll never forget this actually, we actually tried to extend the holiday for like three more days and they didn't, they didn't let us.
00:20:07
Speaker
i don't ba I didn't give him a sob story but i because I wasn't even in the point of actually being able to describe to anyone what happened. yeah I think it was cruel in so many ways like being up in Queensland on the Gold Coast by ourselves and as I said we didn't have any visitors in hospital or anybody that could help look after. Lila and I just wanted to be in there as you said and Leif wanted to be helping me and but we just worked it out it was easy if he got concentrated on her and I concentrated on the boys and being for Ollie and our baby. and
00:20:40
Speaker
yeah But yeah, it was definitely really, really hard and um very lonely. And I think I mentioned being lonely a lot, even already in this podcast. And it's a very big thing around what's central in the work that I do with the Taiwan Foundation, because the loneliness I felt was like so painful um because it was not only lonely up in it was a physical loneliness of not being around my family or friends or having the support but then we got back to Victoria and everyone was sort of like oh you're good now
00:21:18
Speaker
you're back you're back and oh she got diagnosed but now oh well you know it's time to move on with the next part of your life and and I was just like oh I can't even get out of bed and in hindsight again looking back then as well it was a lot of trauma and stuff that and it's a grieving process that you've got to get yourself out of bed and you got to get you can't just curl up in a ball and not, and ignore it. You know, you've got, you've got, well, first of all, you've got the three other children, but you've also got this constant care that is now required. yeah This 24 seven, you can't just kind of go, oh, you know what, I'm just going to, I'm just going to sleep, at ah sleep it in today. And I'm not going to worry about that. You know, you've got injections and checking sugars and
00:22:04
Speaker
All that business constant. It was pre-CGM as well. So 10 years ago, we didn't have CGM. So it was literally fingerprinting and night waking continuously. and And as I mentioned before, so Lila actually, we were put on a pump. We got back to Victoria and we saw a pediatrician and we were put on a pump within three weeks. oh That's amazing. And I just thought that everyone did that. I didn't know that that was ah quite an uncommon thing we were just very lucky to have a very good pediatrician who said I think you guys would be a really good candidate and so I actually did that training with Lila and I had the pump company actually came because they knew our situation actually came and sat in our kitchen and trained us and um but you know like you said before that's like learning a whole other language again
00:22:54
Speaker
because you like already learned what injections are and how all that works with your body and your foods and things. and that's that That's French what you're describing and then what is it? What's the pump German? or batalion
00:23:11
Speaker
I've never really been very good at languages. It is a whole nother. I don't think you know like that like things around carb counting and you know to me that's the diet culture all that stuff like I'm like what do you mean like carbs and you know like in calorie and calories and to me that was like yeah really that diet yeah kind of culture but this is And there's even more than just carbs. I'm learning that now. I think at the hospital, they just teach they just taught us carbs. yes um And that's pretty much what we just kind of focus on. and But I know that there is more than just carbs. There's the protein and there's the you know the fats and all that stuff. And they've definitely learned more about that in definitely in the last 10 years yeah too. yeah that was
00:23:55
Speaker
and even We very much wanted to move into more of that low-carb lifestyle and sort of offer that. And 10 years ago, I remember telling our pediatrician and DE that, and they looked at me like I had five heads. You cannot feed a child a low-carb and look at them now. Now they're all, that that is yeah that is actually doctors sort of saying, you know, the the research is based on the low carb lifestyle being you know obviously able to manage blood sugar levels. So it's it's amazing how the research and things have changed. And I'm not resentful of that, it was just that they didn't that not enough research had been done into that. And there are also those you know like those doctors that are not necessarily living in with it 24-7. No. Like what you are. so
00:24:41
Speaker
like what we are, terrible to say but we're doing constant experiments on yeah oh if we change that to a low carb version let's see what happens with their blood sugar and you know oh hang on we I had to give them lettuce insulin for that yeah or actually that didn't work and you know it backfired it feels like it can be this constant sort of tweaking yeah check changing you know um adapting yes whereas I think that I know that that it is their field but they're not It's very, I think it would be very different than when you're a parent or you're you know you living with it because you're constantly kind of going, how can I do that better? yeah what but what What went wrong there? Why did that happen? And fair up for us. That was a big thing was like, I went into like, I was that person that researched everything there. I'm just like that as a person. Everyone knows that about me. Any investigation, police, PI, I become a PI. I know everything. Except for podcasting. You left that to me. yeah Sometimes I like things to the extent. This is not that I am one of them. Yeah, stuff that like that. But yeah, i um I definitely researched that and I found that really interesting to understand yeah food and how it all works. Wow. What a legacy, let me just say. like For you to get that to that moment, from like ten fast forward 10 years, right? And what you've created with the Taiwan Foundation is is quite amazing. At what point did you start that?
00:26:06
Speaker
So Lila was two years into the journey. And that's what I mean. Like a lot of people think, oh, you're you're crazy. But I think like you're at 20 months in now and look what you've started. You know what I mean? Like, I think you just need that time to digest things. And for me, it was grief or.
00:26:21
Speaker
You know, obviously being young, I only started the foundation small. It was just to support a few local families. I never imagined it would be what it is today in terms of, you know, we're national and we travel all over and support loads of thousands of families now. But yeah, for me, it was just to try and be able to connect. uh with other mums and to sort of be able to say oh like I loved the dinner idea that was a really nice thing we started just one dinner and yeah I was the same before we've got like 48 ambassadors now so it's incredible um the dinners are really special and you know if you've got a room full of women that are all support in each other and all in the same boat I think that amazing things can come for that and
00:27:03
Speaker
Yeah, super great. And a room full of women that can validate the top being tired. Like, there's nothing more that pisses me off more, because when people say how tired they are, I go like, you have no idea. Don't tell me how tired you are. You're not talking to me about tired. Or don't talk to me about you've got insomnia. Like, you have no idea what that is. I know. So, OK, so we're going fast forward 10 years. What's life look like now for Lila and for you, you guys?
00:27:33
Speaker
Yeah, so I mean, my youngest is now 10, Ollie, and um my boys have grown up with, no that that's all they've known. um Type 1 diabetes has pretty much been a big part of their lives in, you know, sometimes negative, sometimes positive ways, but it is just what it is.
00:27:52
Speaker
Lila is 19, nearly 20, and she's actually studying nursing. So that makes me incredibly proud because um I do always tell people this one thing, especially when they have little ones diagnosed, is I believe, I've seen it, and and I've watched, and one of the beautiful things about the Foundation is like I've actually feel like I've watched all these little kids growing up and seeing their journeys and seeing like from the events they come back every year and I see what they look like. and um they're always a little bit bigger and taller and cuter and is that it makes them super compassionate and empathetic people of other people's situations, plights, you know, whatever. And I think because they have to go through so much and do so many things,
00:28:39
Speaker
they become those people. And I think that's what I really see in my daughter. is like She's grown up, she's very, very compassionate, but she's also um very mature. And I think it makes them grow up so much faster. And that is also something that many moms mourn, is that fact that like, oh, how can a child have to deal with so much on their shoulders?
Impact on Lila and Her Future Aspirations
00:29:03
Speaker
And that was always my thing. I was like, wow, for a nine year old to have that go through all that as if that isn't going to cause, you know, trauma, PTSD and all those things. I've thought about all that. And I just think the one thing I've seen in here is that, yeah, it's it's given her a strength. Maybe it's a superpower. ib Well, we do say they've got a superpower like they've got that little superheroes, superheroes or our warriors. You know, that's kind of a big one.
00:29:33
Speaker
Yeah, a lot of resilience, I think for type ones, a lot of resilience, they just kind of, I don't know, they just get on with it. Like it seems to be, I mean, I know there are probably kids that don't, but you've I mean, it's life, it's life or death, that basically. So they, you know, you do what you do.
00:29:50
Speaker
you're not here I do think there's an element to the invisible part of the disease that um many people, especially in our generation, have always always sort of taught to just hide it and got move on with it. It is actually an element of it I don't like. to be I don't think that's the way you should be. yeah I think our kids, and that's part of the reason why i I do what I do with the foundation because I truly believe that they should also be around other kids so that they feel less alone and all themselves and not feeling they'll ever need to hide it. Yeah. Hide their gadgets or hide what they have, hide injections, do them in the toilets just to stay quiet, you know? Because it is it is an invisible disease, really. I mean, like, it's not like
00:30:38
Speaker
I was talking about it the other day, actually, with my sister, I think, and we were saying about like how you've got like, say anaphylaxis or asthma, not that they they're different disease, they're different sort of issues, but um you seem to get a lot more training on those sort of things in settings like I know, particularly for me for early childhood.
00:30:56
Speaker
um and um schools. definitely There's always those trainings, but there's not about sort of diabetes. no It doesn't seem to be those when that's actually probably more like that's something that you have to constantly be on. yeah is Whereas anaphylaxis, it's avoidance, you know, like and asthma, I mean, to a degree, it's avoidance. It's of like the limiting the exercise or it's, you know, just being more conscious. So it's more of a physical thing. If someone's going to have be anaphylactic,
00:31:19
Speaker
they get a physical reaction like quite quick. yes Whereas diabetes, it's you've got to constantly keep those levels just going. You've got to constantly be on it.
00:31:31
Speaker
Totally. Which is, yeah, it's a hard thing around that awareness, isn't it? I think awareness is incredibly important, community awareness, wider community awareness, understanding. And why should, if anything, they should not be quiet. They should be standing up and saying, I'm having a hypo, I need to sit down now. And having the confidence to stand up and say, I can't do that, stop, I can't do that. You know how like we teach kids to say that with their bodies stop, but that doesn't make you feel comfortable, you know, similar sorts of things. And we can't be there 24-7. No. As much as I know that I was like, I'm going to have to be there 24-7. I have to just set up a desk at the school. You know, you can't, you have to let them, you know, like figure it out themselves. You can't have your bubble boy. No, I can't have my bubble boy. But also like, and that's what I'm quite vocal about. Like, you know, I'm always sort of,
00:32:24
Speaker
you know, saying well he's got type one, you know, like I'm, you know, very open about it. And we always talk about it. And I remember Harvey actually, when he started footy, I was like, Oh, I'm gonna have to go and talk to the coach and tell him, tell him you've got type one.
00:32:35
Speaker
And then he ran ahead at training and I didn't know who his coach was. And he came up, sorry to his coach, and he said, oh hi, I'm Harvey. I'm the one that's got type one. hello you know like So he's really like, you know it's really he knows it's important that people are aware that he might need a little extra support. yeah you know so That's all it is. Yeah, we're not shy about it. It's not just like, yeah, well, we you know we can still do everything that we want to do. Absolutely. We just need to add some little extra steps in there. Yeah, that's exactly right.
00:33:03
Speaker
um Well, thank you for sharing your story. I would love to actually have Lila in here one time to have a chat with her. I think she would be great to hear um her her her version of being a 20 year old or you know um and and what it's like for her. And she could definitely inspire other ah the young women. Yeah, I think she would love to. I think you're right. I mean, if if more teenagers can see other teenagers as well to see that they can, you know, teenagers are tough, let alone having tight one. So getting out to that other side is, you know, when we all, you know, nearly 20 and things, I think you can kind of learn from others. So yeah, I definitely think it should be great. Yeah. And that's it. People have walked, you know, we're very lucky in this day and age and technology is that
00:33:55
Speaker
people have walked the path before us and there are so so many great avenues now to share that.
Conclusion and Call to Action
00:33:59
Speaker
Absolutely. And this is just one of them. It sure is. Yes. So that's the wrap on our host, Ang. Thank you. Thank you everybody for listening. We hope that you have found value in this, in this podcast as always.
00:34:15
Speaker
um And how can people get in touch with you if they wanted to ask any further questions? Yeah, obviously through the Type 1 Foundation is the best way. We're all on all the socials and if you're not already following, give us a follow. And so once again, thank you all so much for listening. We really appreciate you being here. We look forward to sharing our next episode with you on the Type 1 Club.
00:34:56
Speaker
appreciate it if you could leave us a rating and review. It really helps us to reach more listeners just like yourselves. For more updates, behind the scene content, and to join the conversation further, follow us on Instagram and Facebook, the Type 1 Foundation, or visit our website type1foundation.com.au. Thanks again for listening and we will see you next time on the Type 1 Club.