Episode 23: Autism and Me - In Conversation with Akshay Shanbhag

Akshay Shanbhag is a 4th year undergraduate student in IISER Pune. Currently his research is on nanomechanics (physics of dealing with very small atoms and molecules). He is an individual on the Autism Spectrum and shares his journey in this episode.

Autism is not a disease, rather it is a disorder. He describes it as a little different wiring of the brain and nervous system. His main challenge is communication skills along with a few more that neurotypical individuals would probably not face challenges in.

Akshay shares his experiences about:

• Importance of early intervention with speech therapy and continuous support from counselors and other therapists throughout different schools and colleges.
• Shadow teacher in school from grade 3 till grade 10
• Learning to be as cool as a cucumber
• Approaching adults for support
• Differences in school and college
• Examination concessions like extra time
• Staying at the hostel in IISER, having a roommate and living alone away from home
• Support that he requires in college to manage behaviours with the help of the counsellors
• Visiting the center before the exams
• Preparation in advance for any transitions and changes
• Involving the counselor for exam anxiety

Tips for Teachers - be stern but with care. Provide extra time to complete the task and appreciate the effort made by the student. Use of laptop and other concessions that the board provides, give them during the class year.

Tips for Parents - Don’t give up. Provide ample opportunities to your children. Also give enough exposure to non academic fields like music, drums, art or anything they like. Let them take their own time. Create awareness about Autism to teachers and anyone who is teaching their child. Involve the counsellor to support you. Don’t shy away from the diagnosis. Admit your child to mainstream school and even classes like tuition, drum class etc. Empower all the teachers even in out of school classes.

Tip for individuals on the spectrum - Embrace and move forward. Don’t fall for false promises that say it will be cured. It cannot be cured, it is not a disease. It is a way of life and a permanent part of you. Be your own advocate. It will help with your communication skills. Be your advocate not only in school but anywhere and everywhere you go.

Tips for Neurotypical Individuals - Don’t be rude and be sensitive to the needs of neurodiverse individuals. Especially government employees and leaders or anyone working as an official in India.

Message- Kids, don’t give up. Parents and teachers expose them to a variety of activities. As per their capability they can choose what they like and not have things and activities forced on them. Don’t be mean and rude. Create awareness and support all neurodiverse individuals.

Let us truly move beyond just awareness into acceptance and embracing differences and live in an inclusive society.