Shedding Light on Rare Diseases with Tamar Thompson
In this episode, our guest, Tamar (Tay-mar) Thompson with us, the Head of Corporate Affairs at Alexion, AstraZeneca Rare Disease. With over 20 years of experience in healthcare, Tamar leads global corporate efforts in policy and advocacy. She recently has been showcasing Alexion’s new short film, Rare Connections in NMOSD where she underscores the need to raise awareness of NMOSD, a rare neurological disease, to help reduce the time to diagnosis and advance care. A dedicated advocate for health equity, Tamar continues to highlight the unmet needs of the rare disease community.
Topics
- Neuromyelitis optica spectrum disorder (NMOSD): diagnosis, prevalence/incidence, overview of symptoms, and why it’s so important to raise awareness of rare diseases
- Rare Connections in NMOSD and why Alexion created this first-of-its-kind short film
- What Alexion is doing to help improve equity and health outcomes for people living with rare diseases
- Unveiling Connections: The Story Behind Alexion’s Groundbreaking Film on NMOSD
• Bridging the Gap: Confronting the Diagnostic and Care Challenges in Rare Diseases
• Left Behind: Addressing Health Equity for the Rare Disease Community
• Global Voices: How Alexion Shapes Policy to Transform Rare Disease Care
• Driven by Purpose: Alexion’s Journey to Champion Rare Disease Advocacy
Guest - Tamar Thompson
LinkedIn:
- https://www.linkedin.com/company/alexion-pharmaceuticals/
- https://www.linkedin.com/in/tamarthompson/
Facebook: https://www.facebook.com/AlexionPharmaceuticalsInc/
Twitter/X: https://x.com/alexionpharma?lang=e
YouTube
- https://www.youtube.com/@alexionpharmaceuticalsinc.3357
- Rare Connections Film: https://youtu.be/cfnE7cxfY3s?si=zozSq2NZK8kb2i6k
- Rare Connections Film (Accessible Version): https://youtu.be/dwKpZQSZuZ0?si=77UN5QaRJNuM2rnm
Host - Hillary Blackburn, PharmD, MBA
- https://www.linkedin.com/in/hillary-blackburn-67a92421/
- @talktoyourpharmacist for Instagram and Facebook
