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Episode 30: Surviving DKA and Thriving with Type 1: Kimmie and Priya’s Story image

Episode 30: Surviving DKA and Thriving with Type 1: Kimmie and Priya’s Story

Type 1 Club Podcast
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102 Plays13 days ago

In this powerful and emotional episode, Jacqui sits down with Kimmie, mum to Priya, who was diagnosed with Type 1 diabetes at just three years old after a terrifying brush with DKA.

Kimmie opens up about the traumatic lead-up to Priya’s diagnosis — weeks of illness following a tonsillectomy, multiple GP visits, and a heartbreaking moment when she found her daughter unconscious on the floor. She shares what it was like to rush to hospital, hear the words “she could die,” and watch insulin quite literally save her daughter’s life overnight.

Together, Jackie and Kimmie talk about what life has looked like since: the transition from MDI to pump and CGM, starting school, navigating identity and confidence, and the mental load of parenting a young child with Type 1.

This is a must-listen for parents of little ones newly diagnosed, and for anyone who’s ever felt the weight of this condition. Kimmie’s honesty and advocacy will stay with you long after the episode ends.

🧠 What You’ll Hear

  • Priya’s traumatic diagnosis story and how COVID isolation delayed early signs
  • What DKA looked like for a 3-year-old and the lifesaving role of insulin
  • Moving from injections to tech (Omnipod and Dexcom)
  • Helping Priya navigate school life and self-confidence with visible devices
  • Why advocacy and gentle awareness matter in classrooms
  • The importance of parental mental health and therapy
  • How Kimmie reframes “diaversaries” as family milestones of growth and strength

Further Resources:      
Type 1 Foundation Website
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Join the Facebook Group

If you'd like to share your story with our podcast listeners, please email: podcast@type1foundation.com.au

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Transcript

Introduction to 'Type 1 Club' and Host's Background

00:00:00
Speaker
Welcome to
00:00:07
Speaker
diagnosis or treatment always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition reliance on any information provided by this podcast is solely at your own risk
00:00:23
Speaker
to the type one club Whether you're a parent grappling with a new diagnosis, a caregiver seeking guidance, or simply someone wanting to learn more about type 1 diabetes, this podcast is for you.
00:00:36
Speaker
Together, let's dispel myths, break down barriers and build a community of understanding and resilience. Join us as we embark on this journey together because with knowledge, compassion and support, no one should ever feel alone in managing type 1 diabetes.
00:00:54
Speaker
Welcome to the Type 1 Club. Hey everybody and welcome to the Type 1 Club. I'm your host, Jacqui Kidman. I am a type 1 mum Harvey. to harvey who was diagnosed in June 2022 at the age of seven.
00:01:10
Speaker
I am excited to be back today.

Kimmy's Story: Priya's Diagnosis Journey

00:01:13
Speaker
i have a guest with me who is another fellow type one mum. This is Kimmy. Hi, Kimmy. Welcome to the podcast. Hi, thank you for having me.
00:01:22
Speaker
My pleasure. Thank you for giving up your time and joining us today. Kimmy, can you please introduce yourself to our listeners and then just go straight into sharing your Priya's diagnosis story? Of course. So as you mentioned, my name's Kimmy. I'm a type 1 mom to Priya.
00:01:42
Speaker
Priya is five years old at the moment and diagnosed just under three years ago now at the age of three in 2022. So her diagnosis story, I think, is quite like a lot of other ah diagnosis stories, unfortunately, that we hear. We didn't know the signs or the symptoms of type 1 diabetes. So She displayed all those classic symptoms of thirst and frequent urination, vomiting, nausea, tiredness that a lot of other kids ah present with.
00:02:14
Speaker
And unfortunately, we we weren't aware of what those symptoms actually meant. So in the couple of months leading up to Priya's diagnosis, she was quite unwell just week after week through the winter of that year.
00:02:27
Speaker
She was a COVID baby, so she was at home for the first two years of her life, not in child care, not getting all those little colds and viruses that most kids get from a really young age. and So when she was getting croup and RSV and bronchitis, we just thought, oh, it's just because she's, you know, getting all of these little viruses now and not because she's, you know, has something lurking in the background.
00:02:52
Speaker
After having bronchitis a few times, her GP suggested that we have her tonsils out. Went in September, had her tonsils out. And it was during her recovery period over the next 10 days after her tonsillectomy that we really, really saw a ramp up of all of the signs and symptoms of diabetes.
00:03:14
Speaker
She was sleeping a lot. She was wetting her nappies, a 12 hour nappy. She was going through it and an hour, just completely saturated. She was vomiting.
00:03:27
Speaker
She wasn't eating. She stopped talking. Unfortunately, all of these signs and symptoms could have, I guess, related back to the surgery that she had just had. So we just kept thinking, okay, well, she's just had surgery. Of course, her she's thirsty because her throat hurts. She's just had her tonsils out.
00:03:45
Speaker
Well, she's throwing up. Oh, and the doctor says, okay, that's a sign that she's just recovering from surgery. and We even took her in to see the GP during that 10 days because we said, she's just not getting better. Something's not right.
00:03:58
Speaker
GP just said, it's just the surgery, just give it time. And now knowing what we know, we just are astounded that she was never finger pricked along the way or that she was in hospital for surgery and and they never picked anything

The Day of Diagnosis: Hospital and Recovery

00:04:13
Speaker
up.
00:04:13
Speaker
They didn't do blood tests while they were there, but just imagine if they had finger pricked her that day instead of 10 days later, when unfortunately we found her unconscious on the floor, just staring up at the ceiling and you know, panic stations. I didn't even ring for an ambulance. We just got her in the car and drove straight to the hospital.
00:04:34
Speaker
And even there, when we were there, the first response was, oh, she's just picked up a virus after her surgery. um But luckily they finger pricked her when we were in the recess room. And immediately that's when they started talking type one to me, telling me she was in DKA and spouting all this diabetes terminology that at the time I'm like,
00:04:56
Speaker
She's three. She doesn't have diabetes. i don't know what you're talking about. But it became very real, very fast. And again, like most parents, I just wish that we had known the signs and symptoms. Or I had Googled just one of them.
00:05:09
Speaker
And, you know, type 1 might have come up. So it was definitely a very traumatic day after a ah whirlwind of a 10-day period with a very unwell child. But we're very lucky that that we did catch it in time, I guess.
00:05:26
Speaker
Wow. That's too, yeah, like, oh my gosh. So there's a lot to sort of unpack there. I can imagine like, you know, having to send your child in for surgery anyway, and then and then that recovery not kind of going well.
00:05:43
Speaker
you know, and then thinking, you know, like, oh, well, yeah, like everything you kind of would just revert back to, well, she just had her tonsils out. That's obviously why she's not eating well. She's not, you know, like obviously like losing weight or, you know, yeah, like if you're thirsty, if your throat's really sore, you know, that sort of stuff.
00:05:59
Speaker
You could just put it all to that. I do wonder what tests they would have done, you know, like whether you you would have got an answer anyway. It's always one of those things that you think back and you think like, yeah, like what,
00:06:11
Speaker
and And those moments of like what could have triggered this, you know. And then to have that worry of, you know, you've got your child healing from this surgery. I've had my tonsils out and I had out when I was older. um So it's not a, it's not a, it's quite...
00:06:29
Speaker
It was quite traumatic for me when I was 18. So I wonder, like, I know kids bounce back a lot quicker than adults do. But then thinking, you know, like, you wouldn't even go down the path of type one, i would think, because you'd be thinking, oh, is there a bleed happening? Is there an infection? Like, I'm sure she'd never been under sort of any anesthetic before. So, you know, like, is it just that she's she just ah hits her harder than others, you know, that sort of stuff.
00:06:53
Speaker
So then to find her unconscious, like, was it through the day? It was through the day. So through the day, my older son, Ollie, he had a basketball game that morning. We took her to the basketball game and she wasn't eating at this point. She stopped eating the day before.
00:07:09
Speaker
She wasn't eating. She wasn't like making eye contact with us. It was like she was like staring through us all through the day. And then in desperation to get her to eat, we went to Macca's after but basketball.
00:07:24
Speaker
And I bought her a Happy Meal refused to eat it. a bought her in this huge ice cream cone and gave her the ice cream cone. And she's just glassy-eyed, like licking it, like trying to eat it But even that, like she's refusing to eat but just like a ghost.
00:07:42
Speaker
So we came home and we actually had friends coming over for dinner. that night. So we came home and i like messaged my friends and I'm like, Priya's not like she's well, but she's just not herself. Like you're still welcome to come. and they're like, we'll come.
00:07:56
Speaker
Maybe she'll perk up when she sees us. Like she just wasn't right. And I was in the kitchen preparing dinner and she was in the playroom and I could hear her watching TV and I was just going in and out and checking on her.
00:08:08
Speaker
She was laying, you know, those little kitty couches that fold out. She was laying on that kind of watching TV. And every time I come in, Priya, are you okay? Like she would not stare at me. She was just kind of watching TV, looking up at the ceiling. And then I came in and she was just fully passed out.
00:08:22
Speaker
And this was 30 minutes before our friends were due to arrive. They were already on their way. My husband had, you know, had a couple drinks because it's a Saturday night, so he can't drive. and it was just action stations throwing her into the car.
00:08:36
Speaker
friends arriving as I was leaving. so you drove? you drove to the hospital? I drove to the hospital. Yeah, just by yourself? By myself, yeah. And while my husband then sorted out Oli and our friends like, hey, you guys need to leave. And um he had to, he couldn't drive. So he had to have his parents come and drive him to the hospital to meet us, yeah which was a fun conversation for him. Like, hey, I need you because Priya's, you know,
00:09:03
Speaker
at death's door at the moment and I can't drive. So you get to the hospital, they do a finger prick. Do you remember what her um blood sugar rating was? 30, I think. And ketones were 6.5. Wow.
00:09:18
Speaker
wow Very high. And the lady immediately looked at me and she said, you said she hasn't eaten in days. And I said, she hasn't. She goes, you didn't give her anything sweet today. I said, she had one lick of an ice cream cone.
00:09:31
Speaker
And ah she immediately was like, get your stuff and follow me. And like grabbed Priya, grabbed our stuff. And she's just like shouting out stuff through us into the PQ.
00:09:45
Speaker
And I remember just like out of body experience. Priya was lying on me in the bed and the doctors just started stabbing her and getting needles going.
00:09:55
Speaker
And she was kind of in and out of consciousness. There was a doctor for Priya and Priya. five other nurses in there and then a doctor that was just with me, like talking me through and telling me this is what they're doing. This is what's happening.
00:10:08
Speaker
And I remember her saying the fact that they're stabbing her with needles and she's not even responding and not even flinching or crying tells us like what a bad way she's in. She's not even feeling or reacting to the pain.
00:10:20
Speaker
Wow. And I remember saying like, is she going to die? and they said she could like, is your husband close? And that was like, that moment for me of just, I can't believe this is going on. This doesn't feel like real life for me.
00:10:35
Speaker
Oh, Kimmy, that's just brought tears to my eyes. It was rough. Sorry. I really try and hold my shit together when I hear people's stories, but yeah I can, I remember how traumatic it was for for me and I, and Harvey was well.
00:10:49
Speaker
you know I mean? Like it was very early on. I think he's, he was, he had no ketones. He was 22 or something. um And, i you know, like the same thing, it just brought back that memory of the doctors saying to me, do you know what's going on here?
00:11:05
Speaker
And I'm like, ah and I was not ready to kind of accept them when they started talking about type one. But let alone for you to kind of say is your husband, let them to say to you is your husband nearby because this is, yeah, like this is.
00:11:19
Speaker
Very, very severe. So what are they doing? Are they giving her insulin straight away when she's in DKA? Do you do you recall like what the process was? Can you talk me through that?
00:11:30
Speaker
I remember them giving her insulin straight away. They might have been giving diluted insulin. Because she's only two. Yeah, yeah. She had just turned three. ah think it was straight up insulin at first and then diluted insulin with sugar water later on once she was responding through the night.
00:11:47
Speaker
um And I remember them saying once she peaked and they said, okay, she's coming down. They were checking her gases every 30 minutes, okay ah blood gases on her fingers with finger pricks.
00:11:59
Speaker
And she was unconscious for that. Wow. And she was on me. And yeah, they, they were insulin on this side going, and then they were doing the finger pricking every 30 minutes to check her blood gases or whatever.
00:12:11
Speaker
yeah, ah eventually once she was kind of coming down, they said, okay, we're going to start giving the sugar saline or whatever, because they didn't want her to crash, obviously. And it was just like, I mean, you have it all all all going on. And this is all going on in the middle of the night. And we went into the hospital about seven, and seven o'clock, maybe six o'clock.
00:12:32
Speaker
And she woke up bye seven, eight o'clock the next morning, not fine, but alert and talking. and like herself again.
00:12:44
Speaker
And it just is like that's the power of insulin. And she would have been on such small doses. Like I remember now that you've said that diluted, I do remember when Harvey was in emergency and they gave him insulin and I remember thinking god that's a lot in comparison to when I thought like later but maybe that's because it was diluted so it might have been yeah because I was like yeah well because when he was hoher yeah yeah because when he when he started like when they're first diagnosed they're obviously well Harvey Harvey was honeymooning for a couple probably nearly two years
00:13:19
Speaker
Oh, wow. and Which was good but also kind of tough because, yeah, it's a bit of a, yeah. so And mean um he, I remember thinking, like i even look back now and think, yeah, he was on like maybe his Optishlin was two. Yeah. and and He was on like or two or three, like, yeah you know, and then and then with the the Nova Rapid he was on, yeah,
00:13:49
Speaker
yeah, very like 0.5 or, you know, like for for certain things. Like it was, yeah, the ratios were, yeah, like it was 1 to 30 or something. Wow.
00:13:59
Speaker
It's not like that now. but um But I do remember thinking, you know, like, yeah, he was obviously on very little but the power of that such that small amount when your yeah when your pancreas is not producing it, you know, like we you know we take for granted just how well our organs work without us even thinking about it, don't we? when When we've got the fully functioning organs, not if you're a tight one, but we definitely don't take that pancreas for granted.
00:14:25
Speaker
But, yeah, it's when you say that power of insulin and now all of a sudden that's what just when your body's not, doesn't have it. And then it does.
00:14:36
Speaker
How quickly your body can bounce back. Wow. That is, that's incredible. i actually really love that they left, that you were able to hold her as well. I think that would be really, that would be a real challenge if you were just watching, yeah you know, like yeah if she's passed out and I guess because she's so little that, yeah, it'd be quite challenging to not be able to sort of have her in your arms if they're kind of saying, look, it's really touch and go here, you know, so you were able to sort of lay in the bed with her and and hold her.
00:15:07
Speaker
Yeah, that does sound, you know, very traumatic. And I thought i think that's the importance of why we do share these stories is because hopefully someone does hear this, you know, because that doesn't, I mean, we also, we don't, we don't hope no one kind of has to deal with this sort of stuff, but also it's this raising of awareness of those sort of symptoms, particularly the when the when the child is so little and the wedding through the nappies all the time. You know, every now and then you can kind of go, well, maybe that just wasn't put on right and it's leaked through or you know but there there's definitely those moments where if you had that information you might have then said look could it be type one or you know like it might have just prompted a question of like oh I've heard that they can be really thirsty type ones be really thirsty and all we through do you have any type one connection in family or no will we have no family connection and again like no idea
00:16:07
Speaker
what type one was. Like, that's something you hear of, but it's nothing that's ever going to affect you. That's that mentality that you have because you're blissfully unaware, right? Until it does affect you.
00:16:18
Speaker
Yes. And I mean, of course, we'll be blissfully unaware because... I mean, I always say to people, people always say to me like, oh, i have never, I never had any idea or, you know, until all of a sudden you've got a type one or you're, you know, connected to a type one, you didn't realise that sort of work and how but how full on it is.
00:16:38
Speaker
But you know, also why would you need to know? exactly yeah You know, you can live in this little blissful life if you don't need to know all this information because it is it's so it is a lot to work through and to understand. And it's also very individualised as well. So even if, you know, we quite often hear people that might have, well, it might be a parent that's type one and then then they have a type one child and they're like, oh, I actually wasn't,
00:17:07
Speaker
I'm not as aware of, you know, what the care that they need or I didn't realise that because it is so so different for each and different stages, I guess, as well.

Living with Diabetes: Coping and Family Support

00:17:18
Speaker
So Priya's, was she two or three? Sorry. she She just turned three. Just turned three. ah So are you coming up to a diversity? Yeah, yeah, start of October.
00:17:29
Speaker
Yeah, yeah, she has her birthday this weekend. She's very excited. Yeah. and sure She is. Yeah. And um it's a ah diversity is an interesting thing because that story to me is quite traumatic. It's awful, yeah.
00:17:49
Speaker
And it's people sort of talk about how do you acknowledge or recognise this sort of date when really you would you would probably want it to be forget about that sort of time, wouldn't you? Yeah.
00:18:05
Speaker
I'd say because she was unwell for so long, it's about this time of year because her third birthday was awful. She was so unhappy. She was miserable. She was crying through her birthday song, didn't want to eat.
00:18:17
Speaker
So it's about this time of year that I start getting those memories. And you just remember how terrible it was. And and it's what you said. It's a trauma. And um I don't think I'll ever get over it, really. and It's a lot for a parent to deal with that and to live with it.
00:18:35
Speaker
and plus managing your child's type one for forever. So yeah, diversities are interesting. And i I understand the importance, especially if maybe the the child's a little older when they're diagnosed.
00:18:45
Speaker
But for Priya, she doesn't remember life without it. It's more of a, like let's acknowledge the day um as a family, because it was hard for her, obviously, but it was hard for our son to watch us pull her out of the house unconscious. And it was hard for us as parents to to go through that and then what we went through, i guess, learning Type 1 and over the next couple years, we want to celebrate that day as like, hey I'm proud of all of us for how far we've come and dealing with the highs and the lows together and the good days and the bad days together.
00:19:22
Speaker
Don't ignore the four. The four early warning signs of type 1 diabetes, excessive thirst, frequent urination, unexplained weight loss, and extreme fatigue.
00:19:32
Speaker
If you or someone you know is experiencing these symptoms, don't wait. Get checked by a healthcare care professional. Early detection and treatment are key to managing type 1 diabetes effectively.
00:19:46
Speaker
so So Priya, did she start on manual injections? How did you move through managing her type 1? Yeah, so she was on MDI for nearly two years.
00:20:00
Speaker
and We went four months without a sensor, without a CGM. We wanted to just give her time to be used to the injections and be used to life with type 1 as toddler.
00:20:15
Speaker
before putting devices on her body. and So I think it was about three or four month checkup after her diagnosis that finally, like we weren't sleeping. We were setting alarms every hour to finger prick her all through the night that our educators were like, it's time.
00:20:31
Speaker
You need a CGM. So we said, okay, that's fine. Let's do it. And she got used to it, but she took her injections like a champion. she She never really honeymooned.
00:20:43
Speaker
It was kind of just, straight into life with type one. um So she, you know, would take corrections and she was totally fine with it, never flinched.
00:20:54
Speaker
She was amazing with her needles. And I think that's why we said, let's just leave it for as long as we can. and But we did know that she was going to be starting school this year. um so that was a big, okay, we want her on the pump before she starts school. So she's used to it.
00:21:10
Speaker
We're used to it. So that when it comes time to her starting there was no you know issues and we could teach teach the teachers how to use it um so that's what we did we put her on Omnipod Dash and then Omnipod 5 this year and yeah it's been been pretty awesome still has its challenges as as you know having devices changed every three days is almost worse than getting an injection 10 times a day but do you feel that way She does. She does. Okay. She prefers her pod changes to her sensor changes. She does not like her Dexcom change. um She's very theatrical. think it's louder?
00:21:53
Speaker
It's quite loud, the Dexcom, isn't it? It's very loud and she doesn't like the adhesive removal. So even with a good adhesive remover that we use, it's still just pinning her down.
00:22:09
Speaker
And... um It's very challenging. And just fitting device changes into a busy schedule is ridiculous.
00:22:19
Speaker
Yeah, I've found that um like with the, yeah, like it's like, oh, my God, that's got to go He's getting, I've got to change it before he's got to go to school. But then you're also, with the with the pump changes, I sometimes will change him and then all of a sudden it'll, like his levels will start to rise and I think, and he'll be at school and I think,
00:22:39
Speaker
Is it school? Is it, yeah, is it, like, what is it? Is it actually that the pump has failed? Like, and so then you're kind of going, oh, my God, oh, my God, like trying to watch that, trying to, you know, like so the timing of it and then, some you know, like even if it's not at school or it's at night, like if I kind of pull it back or, yeah, you're like, okay, how do i do that?
00:22:57
Speaker
it's I find it really convenient in terms of like that can just do it. give a dose for, you know, whatever. He doesn't even notice really what's happening. You know, definitely that I find that the corrections, I don't need to, I used to have to call the school every day at 11 o'clock and say, okay, now he needs a correction or you need to drop it back or, you know, that sort of stuff.
00:23:19
Speaker
I don't do any of that anymore. That's because the pod will, yeah, the pump will correct that as he's, you know, as it's going, which I find is just amazing. And that we're sleeping,
00:23:30
Speaker
overnight. How great is that? Don't even know yourself. Oh my gosh. Like after, yeah, like after nearly three years of the not sleeping or, you know, very minimal, now I kind of will go to sleep and wake up and he's still, he's at 6.5. It's just like, okay.
00:23:49
Speaker
And, and the work that then you look, that's been in the background from the pump, you're like, Yeah, I was never going to achieve that with MDI. mean, I probably could have. Like, know that people do, but Harvey's very active, you know, like, and he's obviously growing and, you know, I find that's quite tricky to sort of manage. But I found with the pump it's just been, yeah, it's been a game changer.
00:24:16
Speaker
you've gone from MDI to a pump and she's been a little Omnipod ambassador, hasn't she? Yeah, she loved it. Yeah, which is so great. she's so She's so confident at rocking her tech, but not if you ask her to take it off, obviously. yeah you change it How's it been going at school? How did it go transitioning her? Was she was she in childcare or anything beforehand?
00:24:39
Speaker
She was at a childcare or kinder. And yeah, we, because she was childcare based when she was first diagnosed. And And so instead of sending it to it her to a session or kinder, we just made the choice to keep her at the same center she was at. And she attended kinder at the childcare because I said, I'm not training another set of people for a year and then have to train them when she starts prep next year. So we just kept her at the same center and our childcare was amazing with her.
00:25:09
Speaker
So it was just so interesting for us because we, she wasn't a baby anymore. She was just these toddler years and toddlers are like picky and tantrums and ah like she was amazing as a toddler. And then now we're in school and she started prep and she's learning and growing and she wants a little bit more.
00:25:31
Speaker
She wants to be independent, which is great, but she's more aware of her diabetes this year. I've noticed. So, i am I've just picked up on a few things that I hadn't before in the last few months that she wants to hide the bum bag that she wears and put it under her dress or under her shirt, whereas she didn't care before.
00:25:50
Speaker
that's one thing that's really big for us with advocacy and her mental health is just letting her know, like, this is completely okay. You're allowed to feel however you feel.
00:26:01
Speaker
There's nothing wrong with you having type 1. Let's embrace it as much as we can. But it's okay if you want to hide it too. um trying to give her the freedom to feel what she feels, but try and build her up and build up that self-esteem so that she doesn't feel that way her entire life.

Community and Advocacy for Type 1 Diabetes

00:26:18
Speaker
Very gentle balancing act. Oh, yeah, that's tough, isn't it? Because as much as, you know, you kind of, you get the kids that go, what's that? What are you doing there? What's that thing that's in, I'm sure that she's like, just, you know, like, oh, that's, you know, it's a, it's a pump. It's a, you know, whatever, whatever, however she describes it.
00:26:38
Speaker
But sometimes, yeah, you just don't want to, I'm sure that they just say, like, I just don't want to have to, like, share that. I don't want it to be a thing. Yeah. And one thing we've noticed with her teacher, like, her school's lovely and her teacher's lovely, but every day at pick-up, because preppies, they have to get picked up at the class door, it which is great. um It's not, Priya had a great day. She learned this.
00:27:01
Speaker
You know, they did art. whatever it's Priya had a low at this time she had this at this time she had this at this time whereas all the other kids are just see ya and it's like the teacher wants the diabetes debrief every day right in front of Priya and that's just a I guess a thing that I'm like well you're just making it something that doesn't need to be it does need to be there and she needs to be aware that it is something that needs to be taken seriously but you're also just kind of taking away from school and it's
00:27:33
Speaker
about diabetes. I feel like that, that is a very big conversation. Like it's an easy conversation to have with the teacher around saying, you know, cause we get, i don't know how you, your comms come, but we have, Harvey has a book and so it's all written in there. So I'm never, I'm never told.
00:27:49
Speaker
i mean, I can see it cause it's on my phone. So, you know, like would you'd you'd be the same, yeah you know, so you don't need the debrief. Yeah. So maybe, yeah. So if you had that conversation with the teacher,
00:28:02
Speaker
We've had a few, not about like decorum, but I think it's something that just needs to be said gently. And it's just about being mindful that she has, she's always listening. They know they're like little sponges and what she hears impacts her day for the next few days and and it sits with them. Yeah.
00:28:24
Speaker
Yes. Well, that's definitely, i think, something to sort of work on. And it's I think that's really important for people anyone that's in that sort of space that's working with children, um with that it's not just, yes, they have type 1, but that's not, type 1 is not them, you know. Like it's just, it's almost like when kids say to Harvey, like say if he's having a low and like I give him, like I'm there and I feed him some a snake or, you know, Skittles or something and they'll go like, oh, so lucky that yeah he like but he will later tell me, like, you know, when I'm trying to get him to sleep and stuff, he'll say to me,
00:29:02
Speaker
I really don't like it when people say you're so lucky that you get to have Skittles because he goes like, I'm not lucky, mum. You know, like I have to, you know, like and it's like, yeah, you know, you're right.
00:29:12
Speaker
Like it is really tough. And it sort of sounds like that that teacher needs a little bit more education as well on that. Yep, you know, she's obviously type 1 is a life or death, you know, but as long as she's got sugar, she's got insulin,
00:29:29
Speaker
we can we can manage it and if any, you know, like so the day-to-day stuff is is kind of, yeah, because you just roll through, which is, yeah, it's it's it's tricky because sometimes you get teachers that don't even want anything or or not test teachers but, you know, teachers or carers or educators that just don't even acknowledge it, you know, because you get, you know, like it's sort of finding trying to find that balance on that scale of things, isn't it?
00:29:55
Speaker
And that's where I guess us as parents and carers of type ones, that's where our our role I feel is so important to just raise awareness ah yeah of what what entails and um and how we can create these little independent little little people to be able to manage their type one on their own but also to know that there are people there that can support them.
00:30:21
Speaker
which you do a great job with that on your Instagram. So i know we could actually continue to talk for forever that.
00:30:30
Speaker
And I you're trying to try to keep these episodes shortish, but you've raised some really interesting and sort of good points and stuff that is not just solely and isolated to to Priya and to your family.
00:30:42
Speaker
You know, we all kind of struggle with that, sharing the importance of our, you know, of our children's type 1 diagnosis and and the education around that. But also, you know, that these kids don't want to just be defined by...
00:30:56
Speaker
this disease they they want to have other things that are their interests other hobbies and stuff like that does she does she do other things like she's yeah like yeah what does she do i know i know you have gymnastics for a while and then decided she didn't want to do it anymore she's actually going to be starting basketball for summer season this year very good you might see you guys around the stadiums with that So I just wanted to, we're going to wrap it up. Is there anything else you wanted to share around sort of Priya, anything you feel that you have missed or? Not too much. I think we touched on a lot of it. I think that for anyone listening that, you know, is going through this, it's that you're not alone. There's a huge community of parents out there that,
00:31:38
Speaker
are going through the same journeys, look after your own mental health. That's super important. How do you do that, Kimmy? um Therapy. And, you know, it's a journey. that Don't just think that you're going to be cured because it's something that we're going to be dealing with for our whole lives as well.
00:31:59
Speaker
And just look after yourselves as best as possible. Oh, absolutely. That's a good, that's a very good message. So to wrap up, I always like to ask what is Priya's hypo treatment?
00:32:12
Speaker
Go ahead, go to. Oh, got to be the apple juice. I love the juice. yeah see Or ah recently it's actually the sour gummies. She's just experienced them for the first time. And now more sour gummies, please.
00:32:27
Speaker
When she was little, was it juice? yeah It was juice. We tried honey and it was a sticky mess and yeah you like this isn't going to work. So it was juice from the get-go. We were lucky she was just old enough to have the juice.
00:32:41
Speaker
Yeah, yeah. I can imagine all these little firsts now for her, like the like the the gummies and, yeah, all those little lollies that you like. I mean, it's good that she can experience it, but it's, you know, like its it tends to be to utilise those lollies now for hypos. Yeah. It's good when you're on the go Yeah, yeah, absolutely.
00:33:01
Speaker
ah Fantastic. So do you want to tell everybody where they can, I'll put it in the show notes, but where they can find um and follow more along with ah yours and Priya's journey.
00:33:13
Speaker
Yeah, we have an Instagram handle PriyaRosesT1Djourney where, yeah, we share our daily good and bad and in between and sometimes a little bit of basketball mom life in there as well. Yeah.
00:33:25
Speaker
Yeah. yeah Oh, fantastic. I can't wait to see Priya on the basketball court. Yeah. um And we'll see how you go with that managing that physical activity on there.
00:33:38
Speaker
If you need any help, just call out. i don't know if I've got it nailed, but um I'm happy to offer some advice if it helps you at all. Yeah. um But I just want to say thank you again, Kimmy, for your time. Thank you. And thank you, everybody, for listening to this week's episode. I hope that you've got um a lot of value out of hearing Priya's story.
00:34:02
Speaker
And we look forward to bringing you another episode in the next two weeks. Take care, everybody.
00:34:10
Speaker
Thank you for tuning in to the Type One Club podcast. We hope you've enjoyed today's episode and gained some valuable insights. If you like what you heard, be sure to subscribe to our podcast on all the platforms so you never miss an episode.

Conclusion and Call to Action

00:34:23
Speaker
We also appreciate it if you could leave us a rating and review. It really helps us to reach more listeners just like yourselves. For more updates behind the scenes content and to join the conversation further, follow us on Instagram and Facebook, the Type 1 Foundation, or visit our website, type1foundation.com.au.
00:34:44
Speaker
Thanks again for listening, and we will see you next time on the Type 1 Club.