Disability Is Not a Bad Word: Jenna Udenberg on Advocacy and Accessibility
Disability advocacy transcends ramps and automatic doors—it's about creating a world where everyone belongs in every aspect of community life. Jenna Udenberg joins us to share her powerful journey from diagnosis with juvenile rheumatoid arthritis at age seven to becoming an author, disability advocate, and accessibility educator.
Diagnosed in the late 1980s and using a wheelchair since age eight, Jenna navigated a world before the Americans with Disabilities Act established basic protections. Despite these challenges, she built a 19-year music education career before pivoting toward accessibility advocacy. As a 2020 Bush Fellow, the pandemic forced her to reimagine her plans, ultimately leading to writing her book "Within My Spokes: A Tapestry of Pain, Growth and Freedom" and founding her nonprofit, Above and Beyond With U.
Jenna challenges us to recognize that disability is simply part of the human experience—not something to fear or pity. With approximately 24-29% of Americans identifying as disabled, it's a community anyone might join through accident, injury, or medical condition. Her work focuses on creating spaces that go beyond minimum compliance, asking critical questions: "Can we use the restroom? Can we grab coffee? Can we be employees here?" These questions shift the focus from technical requirements to meaningful inclusion.
Through stories like playing trumpet left-handed against her teacher's advice, Jenna illustrates how disability often sparks innovation and resilience. She leaves us with a powerful challenge: Don't just call her story "inspirational"—ask yourself what you're inspired to actually change. Visit aboveandbeyondwithU.org to learn more about creating spaces where everyone truly belongs.
Want to be a guest on Living the Dream with Curveball? Send Curtis Jackson a message on PodMatch, here: https://www.podmatch.com/hostdetailpreview/1628631536976x919760049303001600
