Why Families Belong at the Table: PHriends of the PPHNet

Dr. Russel Hirsch breaks down the core pillars of the PPHNet [https://pphnet.org/], from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care must be written with families, not just for them through the PHriends [https://pphnet.org/what-is-our-mission/] family-led committee. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com #phawareMD #PPHNet @PPHNet [https://twitter.com/PPHNet] @CincyChildrens [https://x.com/CincyChildrens]

Episode 551 - Russel Hirsch, MD

Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patients receiving inhaled therapies for pulmonary hypertension and interstitial lung disease. #GossamerBioPartner #sponsored This Special Edition episode is sponsored by Gossamer Bio [https://www.gossamerbio.com/].

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. #phawareMD #PHILD @GossamerBio [https://x.com/GossamerBio] @AHNtoday [https://x.com/AHNtoday]

Episode 550 - Jennifer Keeley, DPN and Mary Whittenhall, MSN

FIGHTER TO SURVIVOR: ASHLEE GAMBINO'S BATTLE BEYOND THE RING In this gripping episode, Ashlee "The Mobwife" Gambino shares her journey from a fierce MMA and professional boxing career to battling idiopathic pulmonary arterial hypertension. Discover how she turned her fighter's mindset into a lifeline, navigating the unimaginable loss of her daughter, Katana, and fighting for her life with relentless determination.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com @teamphhope [https://x.com/teamphhope]

Episode 549 - Ashlee Gambino

Scars and Survival: Rebuilding Life After a Devastating Diagnosis After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live—and it wasn't just for herself. This episode dives into her spiritual and emotional transformation from patient to powerhouse advocate, and how she now helps others reclaim hope through honesty and grit.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com

Episode 548 - Sophia Esteves

The Silent Rise of Chronic Pulmonary Embolism and the Tech That's Changing Everything From portable ECMO to catheter breakthroughs, the treatment of pulmonary embolism has come a long way. Dr. Richard Channick takes us behind the scenes of cutting-edge interventions and shares the empowering truth: even community hospitals now have lifelines to expert centers. The care you need might be closer than you think.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com #phawareMD #CTEPH @rchannick [https://x.com/rchannick] @UCLAHealth [https://x.com/UCLAHealth]

Episode 547 - Richard Channick, MD

The One Type of PH You Can Actually Cure Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. From early warning signs to surgical options, this episode explains why ruling out CTEPH should be step one for any PH diagnosis.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com #phawareMD @UCSDHealth [https://x.com/UCSDHealth] #CTEPH @JennyYangMD [https://x.com/JennyYangMD]

Episode 546 - Jenny Yang, MD

The Diagnosis Delay That's Still Hurting Patients Despite better tools and more awareness, people with PH are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today: getting diagnosed on time. Learn why shortness of breath is often dismissed—and how both patients and doctors can work together to catch pulmonary hypertension earlier.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. #phawareMD @accpchest [https://x.com/accpchest] @redraiderpulmcc [https://x.com/redraiderpulmcc]

Episode 545 - Victor Test, MD

How TBX4Life Is Fueling a Global Collaboration LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how TBX4Life [https://tbx4.org/] became her anchor in uncertainty and why she believes parent-led advocacy is the key to progress in rare disease research. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com [info@phaware.com#phawareMD] @TBX4_Life [https://x.com/TBX4_Life]

Episode 544 - LaRae Hacker

How I Survived Meth Addiction, Lung Failure, and Found Purpose Anthony Carrasco was a meth addict by 15, and nearly dead by 35. Diagnosed with PH after years of drug use, his story spiraled from homelessness to hospice. But a double lung transplant and a deep surrender to recovery transformed everything.

This Special Edition Episode Sponsored by: Johnson & Johnson [https://innovativemedicine.jnj.com/our-innovation/focus-areas/cardiopulmonary/pulmonary]

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com [info@phaware.com#phawareMD] @JNJInnovMed [https://x.com/JNJInnovMed]

Episode 543 - Anthony Carrasco

Treating Meth-Associated PAH Without Judgment Dr. Brandon Jakubowski takes us into the underrecognized world of stimulant-induced pulmonary arterial hypertension. From misdiagnoses to under-prescribing life-saving therapies, he lays out the systemic gaps and stigmas preventing patients from getting the care they need.

This Special Edition Episode Sponsored by:  Johnson & Johnson [https://innovativemedicine.jnj.com/our-innovation/focus-areas/cardiopulmonary/pulmonary] Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com #phawareMD @JNJInnovMed [https://x.com/JNJInnovMed] @UTSWMedCenter [https://x.com/UTSWMedCenter]

Episode 542 - Brandon Jakubowski, MD

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global

Steve Van Wormer

Shows