A Silent Blood Clot, a 10-Hour Surgery, and a Second Chance at Life Canadian CTEPH patient, Carol Stokley was healthy, active, and unstoppable, until the day she couldn't breathe. After months of being told nothing was wrong, she collapsed into ICU with life-threatening clots in her lungs. Hear how a once-in-a-lifetime surgery gave her breath, strength, and life back. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.global Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. @phacanada [https://x.com/PHACanada] #CTEPH



Episode 575 - Carol Stokley

From "Untreatable" to Life-Changing: The New Era of CTEPH Care What happens when patients are told everything looks "normal" but they still can't breathe? Dr. Jenny Yang explains how new testing and team-based care are solving one of pulmonary medicine's most overlooked mysteries and changing what's possible for CTEPH patients.

This Special Edition episode is sponsored by Liquidia [https://liquidia.com/].

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.global Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. #phawareMD @UCSDHealth [https://x.com/UCSDHealth] #CTEPH @JennyYangMD [https://x.com/JennyYangMD]



Episode 574 - Jenny Yang, MD

Why "The Walking Guy" Trusts His Therapist as Much as His Cardiologist For PAH patient, Eric Borstein, walking started as a way to survive medication side effects. Now, it has become a way to survive himself. Each step pulling "EB" further from an ICU bed and closer to an identity that isn't defined by illness. Mental health has reshaped his recovery, and has become one of the lifelines he believes should be prescribed alongside life-saving therapies. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.global Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. @teamphhope [https://x.com/teamphhope] @where_is_eb [https://www.instagram.com/where_is_eb]

Episode 573 - Eric Borstein

Don't Let PH Ground You: A Real-World PH Travel Playbook For Nicole Dempsey, travel has always meant freedom. After being diagnosed with pulmonary hypertension, that freedom suddenly felt fragile. Nicole shares how she continues to explore the world, raise her family, and find freedom beyond fear, proving that even with a rare disease, life doesn't have to stop.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.global Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. @phacanada [https://x.com/PHACanada]

Episode 572 - Nicole Dempsey

He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered From a devastating diagnosis to a lung transplant that changed everything, Florin Dumitrescu shares how mindset, persistence, and community carried his family through their darkest moment and how survival transformed into advocacy for pulmonary hypertension patients across Europe. #WorldPHDay2026

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.global Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. @EuropePHA [https://x.com/EuropePHA]



Episode 571 - Florin Dumitrescu

She'd Never Been Sick - Until a Rare Disease Hit Like a Brick Wall

Terri Keplinger went from healthy and unstoppable to fighting for breath after unexplained swelling and a shocking ER visit led to a pulmonary arterial hypertension diagnosis. In this episode, she shares how denial turned into purpose, and how she transformed her fight into advocacy, support, and a mission to help others get diagnosed before it's too late.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.global Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com].

Episode 570 - Terrie Keplinger

From Newlywed to Newly Diagnosed Six months after saying "I do," Rey Adam Rodriguez was told he had pulmonary arterial hypertension. Rey shares his whirlwind journey through misdiagnosis, a new baby, and finding hope through expert care and peer support. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.global Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com].

Episode 569 - Rey Adam Rodriguez

She Was Prepared for Breast Cancer Not for a Rare, Incurable Disease At 30, Sherry Rouse went in for a breast cancer screening. What doctors found instead wasn't cancer, but was something far rarer, and potentially fatal: idiopathic pulmonary arterial hypertension Sherry recounts the emotional rollercoaster of being blindsided by a rare illness and how she turned that chaos into advocacy and hope.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.global Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com].



Episode 568 - Sherry Rouse

The Insurance Plan You Never Knew You Needed What does a lung transplant have in common with car insurance? More than you'd think. Dr. Nicholas Kolaitis shares why seeing a transplant team early, even if you're stable, can help protect your future.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.global Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. #phawareMD @UCSFHospitals [https://x.com/UCSFHospitals]

Episode 567 - Dr. Nicholas Kolaitis

The Most Dangerous Phrase in Rare Disease: "You Look Fine."

Diagnosed with idiopathic pulmonary arterial hypertension in her early 20s after years of being dismissed, Lala Juarez knows what it's like to be told "you look fine" while fighting for breath. In this deeply honest conversation, she shares her journey from misdiagnosis and IV therapy to the shock of being told it was finally "time" for a double lung transplant. Now four years post-transplant, Lala reflects on rediscovering everyday joys, navigating loss and trauma, and why support groups became a lifeline that made her feel seen, validated, and never alone. Her story is one of preparation, advocacy, resilience, and learning that healing doesn't mean going back to who you were, but becoming someone more present, empathetic, and aware that rare doesn't mean invisible.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.global Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com].

Episode 566 - Lala Juarez

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global

Steve Van Wormer

Shows