Delays in diagnosing and treating pulmonary hypertension (PH) can have life-altering consequences. In this episode, Dr. Kari Gillmeyer, discusses her groundbreaking study on PH care networks. She explores why so many patients experience delays, how geography and provider access play a role, and what can be done to improve timeliness of care.

This Special Edition Episode Sponsored by: Johnson & Johnson [https://innovativemedicine.jnj.com/our-innovation/focus-areas/cardiopulmonary/pulmonary]

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. @VABostonHC [https://x.com/VABostonHC] @The_BMC [https://x.com/The_BMC] @JNJInnovMed [https://x.com/JNJInnovMed]

Episode 537 - Kari Gillmeyer, MD, MSC

A 200 Mile Journey from LA to San Diego to Raise Awareness for PH When Eric Borstein collapsed in his bedroom in 2020, doctors gave him just months to live. Instead, he fought back with walking, mental health, and the support of his community. Now, he’s leading a movement, raising hundreds of thousands for pulmonary hypertension research, and walking 200 miles down the California coast to prove hope has no limits. Learn more about the 2nd Annual Where is EB? 5K Walk and Fundraiser [http://whereiseb.org/] September 7, 2025 Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware  Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com @teamphhope  [https://x.com/teamphhope] @where_is_eb [https://www.instagram.com/where_is_eb] @DJLisaFoxx [https://x.com/DJLisaFoxx]

 

Episode 536 - Eric Borstein

In this episode, Dr. Akshay Muralidhar, Co-Director of the Pulmonary Hypertension Center of Excellence at Arizona Pulmonary Specialist in Phoenix, discusses the importance of having a specialized center for pulmonary hypertension. Dr. Muralidhar also highlights the challenges of managing patients with substance abuse issues, particularly methamphetamine use. Dr. Muralidhar emphasizes the importance of access to care, particularly for underserved communities, and the need for outreach programs to ensure that all patients have access to treatment options. 

This Special Edition Episode Sponsored by: Johnson & Johnson [https://innovativemedicine.jnj.com/our-innovation/focus-areas/cardiopulmonary/pulmonary]

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com #phawareMD @JNJInnovMed [https://x.com/JNJInnovMed]

Episode 535 - Akshay Muralidhar, MD

Dr. Raj Parikh from Hartford Hospital discusses building on foundational pathways with treatment options for Pulmonary Arterial Hypertension (PAH) patients. He also emphasizes the value of clinical trials as well as the importance of a good doctor/patient relationship. 

This Special Edition Episode Sponsored by: Johnson & Johnson [https://innovativemedicine.jnj.com/our-innovation/focus-areas/cardiopulmonary/pulmonary]

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. #phawareMD @HartfordHealthC [https://x.com/HartfordHealthC] @JNJInnovMed [https://x.com/JNJInnovMed]

Episode 534 - Raj Parikh, MD, MPH

Dr. Robert Frantz breaks down the key metrics behind risk stratification—functional class, six-minute walk distance, and brain natriuretic peptide levels—and explains how they shape treatment plans. He also explores the role of echocardiography, right heart catheterization, and cutting-edge therapies in improving patient outcomes.

Read the proceedings of the Task Force on Risk Stratification [https://publications.ersnet.org/content/erj/early/2024/08/01/1399300301323-2024] from the Seventh World Symposium on Pulmonary Hypertension. 

This Special Edition Episode Sponsored by: Johnson & Johnson [https://innovativemedicine.jnj.com/our-innovation/focus-areas/cardiopulmonary/pulmonary]

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [http://www.phaware.global/clinicaltrials]. Follow us on social @phaware Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com #phawareMD #RiskStratification @MayoClinic [https://twitter.com/mayoclinic] @MayoMedEd [https://twitter.com/MayoMedEd] @TeamPHHope [https://x.com/teamphhope/] @JNJInnovMed [https://x.com/JNJInnovMed]

Episode 533 - Robert Frantz, MD

ICU & You: What Happens When Pulmonary Hypertension Turns Critical? Pulmonary hypertension is already a complex condition, but what happens when it becomes life-threatening? Dr. Jean Elwing breaks down what patients and families can expect when someone with PH ends up in the ICU.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. #phawareMD @uc_health [https://x.com/uc_health] @ElwingJean [https://x.com/ElwingJean] @accpchest  [https://x.com/accpchest]

Episode 532 - Jean M Elwing, MD

Dr. John Granton, a critical care and transplant physician at Toronto General Hospital, shares his journey in pulmonary hypertension and lung transplantation, detailing the groundbreaking advancements in transplant technology. He discusses the evolution of lung preservation methods, the challenges of chronic rejection, and the hope for longer-lasting transplants. With a passion for improving patient outcomes, Dr. Granton envisions a future where transplant becomes obsolete—replaced by treatments that cure underlying diseases.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. @UHN [https://x.com/UHN] @teamphhope [https://x.com/teamphhope] #phawareMD #PHILD #transplant @phacanada [https://x.com/PHACanada]

Episode 531 - John Granton, MD

In this episode, Drs. Victor Test, Deborah Levine and Rodolfo Estrada discuss CHEST’s First 5 Minutes® [https://www.chestnet.org/learning-and-events/first-5-minutes] program, which helps medical professionals build the skills that lead to a positive relationship with patients from the get-go. The goal is to improve patient care, shorten time to diagnosis for complex or rare diseases like pulmonary hypertension, and increase patient compliance and buy-in to their treatment plan.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. #phawareMD @accpchest [https://x.com/accpchest] @UTHealthSA [https://x.com/UTHealthSA] @PHatStanford [https://x.com/PHatStanford] @redraiderpulmcc [https://x.com/redraiderpulmcc]

   

Episode 530 - First 5 Minutes®

Dr. Tijana Milinic and Lia Barros, DNP, from the University of Washington take a deep dive into the world of pulmonary arterial hypertension (PAH) clinical trials and discuss why diversity and inclusion matter. They explore the hidden biases in medical research and the real-world consequences of exclusion.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. @uwepidemiology  [https://twitter.com/uwepidemiology/] #phawareMD

Episode 529 - Lia Barros, DNP and Tijana Milinic, MD

Dr. Lana Melendres-Groves dives into her research on racial and ethnic disparities in PAH treatment. From differences in medication access to the role of social determinants of health, she explores how systemic barriers impact care and what steps can be taken to ensure equity and inclusivity in PAH management.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials [https://www.phaware.global/clinicaltrials]. Engage for a cure: www.phaware.global/donate [https://www.phaware.global/donate] #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com [https://www.phawarepodcast.com]. @UNMHSC [https://x.com/unmhsc] #phawareMD

Episode 528 - Lana Melendres-Groves, MD

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global

Steve Van Wormer

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