 What's the episode about?

 

In this episode, hear Dr Jessica Young on assisteddying, the New Zealand End of Life Choice Bill, culturally responsive research, end of life care and decision making, and sociological approaches.
Who is Jessica?

Dr Jessica Young  [https://people.wgtn.ac.nz/jessica.young]is a Senior Research Fellow at Victoria University of Wellington and the University of Auckland, and an adjunct senior lecturer in the Australian Centre for Health Law Research, Queensland University of Technology.

She is a sociologist specialising in death, dying andassisted dying. She completed her PhD in 2020 at the University of Otago and received a prestigious post-doctoral fellowship from the Cancer Society of New Zealand.

Since the End of Life Choice Bill was introduced in NewZealand, Dr Young has been building a programme of research to investigate multiple facets of assisted dying.

 She leads and contributes to several projects on assisteddying, most recently ‘Exploring the early experiences of the assisted dying service in Aotearoa’, funded by the Health Research Council. Dr Young has led impactful research in end-of-life care, securing over $3 million in competitive funding.

 

She is the founder and co-chair of New Zealand’sAssisted Dying Research Network and was appointed by the Director-General of Health to the Support and Consultation for End of Life in NZ (SCENZ) Group (2021–2023). Her work has directly shaped national policy: 13 of her team’s recommendations were adopted in the Ministry of Health’s 2024 End of Life Choice Act Review.

She has published over 40 peer-reviewed articles, six editorials, and three book chapters.

 

To ensure her research goes beyond academia, she activelyengages with media. She is passionate about improving end-of-life experiences for patients, whānau/families and health practitioners. Committed to ethical, inclusive, and culturally responsive research, she seeks to involve tangatawhenua (indigenous people of NZ), stakeholders and communities.

 

You can find Jessica on LinkedIn https://www.linkedin.com/in/jessica-young-7097a722/

 

The book introduced in the episode introduction is Death, Commemoration, and Cultural Meaning [https://www.berghahnbooks.com/title/SpinelliDeath]Past and Present [https://www.berghahnbooks.com/title/SpinelliDeath]Edited by Robert Spinelli and Robyn S. Lacy.

 

How do I cite the episode in my research and reading lists?

To cite this episode, you can use thefollowing citation:

Young, J. (2025) Interview on The Death Studies Podcast hosted by Michael-Fox, B. and Visser, R. Published 1 November 2025. Available at: www.thedeathstudiespodcast.com [http://www.thedeathstudiespodcast.com/], DOI: 10.6084/m9.figshare.30507878

 

What next?

Check out more episodes [https://thedeathstudiespodcast.com/episodes/] or find out more about the hosts! [https://thedeathstudiespodcast.com/the-hosts/]Gota question? Get in touch [https://thedeathstudiespodcast.com/contact-us/].



Dr. Jessica Young on assisted dying, the New Zealand End of Life Choice Bill, culturally responsive research, end of life care and decision making, and sociological approaches 

What's the episode about?

In this episode, get an overview of the 2025 Death, Dying and Disposal Conference held in Utrecht in the Netherlands

 

What was the conference about?

 The below information was taken from the conference website.

'Death is political and performs the political. This is evident not only in death itself, but also in the dead (who can become political actors), their bodies, the process of dying (which is, amongst others, infrastructurally related to political discourse and inequalities), and bereavement (which can also become apolitical act). The political aspects of this theme extend beyond national or international political institutions (such as governments, state actors, multinational corporations, or political or religious alliances) to encompass everybody and everything that has to do with (the exercise of) power andmoralities, e.g., families, kin, neighbourhoods, friendship networks.

 

Our time together at DDD17 – as a short, but hopefully (partly)lasting DDD17 community – has come to a close. Over these past days, we’ve explored, listened, debated, and imagined — and we want to thank you for bringing such openness and curiosity to the theme of the Politics of Death. This may be the end of the conference, but we hope it is only the beginning of conversations on this theme. Let’s continue them in whatever ways we can — in our research, our writing, our teaching, our work, our communities. We hope you are leaving as inspired as we are.

Thanks to everybody who made this conference what is has been. A conference is made by its participants – together we were a fantastic community.'



How do I cite the episode in my research and reading lists?

To cite this episode, you can use the following citation:

 

Michael-Fox, B. and Visser, R. (2025) DDD17. The DeathStudies Podcast hosted by Michael-Fox, B. and Visser, R. Published 1October 2025. Available at: www.thedeathstudiespodcast.com [http://www.thedeathstudiespodcast.com/],DOI: 10.6084/m9.figshare.30256387

 

What next?

Check out more episodes [https://thedeathstudiespodcast.com/episodes/] or find out more about the hosts! [https://thedeathstudiespodcast.com/the-hosts/]Got a question? Get in touch [https://thedeathstudiespodcast.com/contact-us/].



DDD17: The 2025 Death, Dying and Disposal Conference

What's the episode about?

 In this episode, hear Kaylee Alexander discuss the digital humanities, being a research data librarian, visual culture, cemeteries, French cemetery laws, cemetery sculpture, ethically sound data visualisation and survival bias

 Who is Kaylee?

Dr. Kaylee P. Alexander [https://kayleealexander.com/] is a Research Data Librarian at the University of Utah’s J. Willard Marriott Library.

 

She holds a Ph.D. in Art History and Visual Culture from Duke University and specializes in nineteenth-century visual culture, monuments, and funerary material culture.

 

Her research is embedded in transdisciplinary practices at the intersection of visual studies, cultural economics, sociology, and data science.

 

You can find a list of her publications on her website. [https://kayleealexander.com/publications/]

 

She is the author of A Data-Driven Analysis of Cemeteries and Social Reform in Paris, 1804–1924 (Routledge 2024). [https://www.routledge.com/A-Data-Driven-Analysis-of-Cemeteries-and-Social-Reform-in-Paris-1804-1924/Alexander/p/book/9781032502113?srsltid=AfmBOooqcg7kc40Lq0bsxBupiEWNygebvSQBDX8q7mJs62OAk7SVkfzG]

 How do I cite the episode in my research and reading lists?

To cite this episode, you can use the following citation:

Alexander, K. (2025) Interview on The Death Studies Podcast hosted by Michael-Fox, B. and Visser, R. Published 1 August 2025. Available at: www.thedeathstudiespodcast.com [http://www.thedeathstudiespodcast.com/], DOI: 10.6084/m9.figshare.29763560

What next?

Check out more episodes [https://thedeathstudiespodcast.com/episodes/] or find out more about the hosts! [https://thedeathstudiespodcast.com/the-hosts/]Gota question? Get in touch [https://thedeathstudiespodcast.com/contact-us/].



Dr. Kaylee Alexander on digital humanities, being a research data librarian, visual culture, cemeteries, French cemetery laws, cemetery sculpture, ethically sound data visualisation and survival bias

What's the episode about?

In this episode, hear Patricia MacCormack on philosophy, death activism, veganism, antinatalism, necrosexuality, the Anthropocene, dudebros in academia, and a loving and vitalist relationship to death

Who is Patricia?

Professor Patricia MacCormack is Professor of Continental Philosophy. She is the author of Cinesexuality (Routledge2008) and Posthuman Ethics (Routledge 2012) and the editorof The Animal Catalyst (Bloomsbury 2014), Deleuze andthe Animal (EUP 2017), Deleuze and the Schizoanalysis ofCinema (Continuum 2008) and Ecosophical Aesthetics (Bloomsbury 2018) and The Ahuman Manifesto: Activisms for the End of the Anthropocene.

She recently completed a Leverhulme Fellow researching and developing Death Activism and completing the monograph Death Activism for Bloomsbury (2025), which we will talk about today. She is also the author of numerus journalarticles and anthology chapters and the author of fiction. 

Patricia’s photo is of her on Mary Wollstonecraft's former grave.

How do I cite the episode in my research and reading lists?

To cite this episode, you can use the following citation:

MacCormack, P. (2025) Interview on The Death Studies Podcast hosted by Michael-Fox, B. and Visser, R. Published 3 July 2025. Available at: www.thedeathstudiespodcast.com [http://www.thedeathstudiespodcast.com/], DOI: 10.6084/m9.figshare.29473577

What next?

Check out more episodes [https://thedeathstudiespodcast.com/episodes/] or find out more about the hosts! [https://thedeathstudiespodcast.com/the-hosts/]Got a question? Get in touch [https://thedeathstudiespodcast.com/contact-us/].

Professor Patricia MacCormack on philosophy, death activism, veganism, antinatalism, necrosexuality, the Anthropocene, dudebros in academia, and a loving and vitalist relationship to death

What's the episode about?

In this episode, hear Dr. Terri Daniel on toxic theology, healthy theology, complicated grief, being a non-religious chaplain, hospice and loss.
Who is Terri?

Dr. Terri Daniel is an inter-spiritual hospice chaplain, end-of-life educator, and grief counselor certified in death, dying and bereavement by the Association of Death Education and Counseling and in family-focused grief therapy by ThePortland Institute for Loss and Transition. She conducts workshops throughout the U.S. and is an adjunct instructor in thanatology and chaplaincy at Marian University, the University of Maryland and the Graduate Theological Union. She is also the founder of The Conference on Death, Grief andBelief [http://www.deathgriefandbelief.com/], and the Ask Doctor Death [http://www.askdoctordeath.com/] podcast.

Terri's academic credentials include a B.A. in Religious Studies from Marylhurst University, an M.A. in Pastoral Care from Fordham University, and a DMin from the San Francisco Theological Seminary.

Over the years Terri has helped hundreds of people learn to live, die and grieve more consciously. Her work is acclaimed by hospice professionals, spiritual seekers, counselors, theologians, and academics worldwide.

She is the author of four books on death, grief and beyond.
A Swan in Heaven: Conversations Between Two Worlds [https://www.amazon.com/Swan-Heaven-Conversations-Between-Worlds-ebook/dp/B07RTY6J2Y/ref=sr_1_1?dchild=1&keywords=a+swan+in+heaven&qid=1588615136&sr=8-1] (2007)
Embracing Death: A New Look at Grief, Gratitude andGod [https://www.amazon.com/Embracing-Death-Gratitude-Daniel-2010-08-08/dp/B01LP7EW4Q] (2010)
Turning the Corner on Grief Street: Loss and Traumaas a Journey to Awakening [https://www.amazon.com/Turning-Corner-Grief-Street-Bereavement/dp/096230624X/ref=sr_1_1?dchild=1&keywords=turning+the+corner+on+grief+street&qid=1588615209&s=books&sr=1-1] (2014)
Grief and God: When Religion Does More Harm ThanHealing [https://www.amazon.com/Grief-God-When-Religion-Healing/dp/0962306207/ref=sr_1_3?dchild=1&keywords=grief+and+god&qid=1588615242&s=books&sr=1-3] (2019)

 

Want to complete the compassionate communities, atlas survey mentioned at the start of the episode? See below for more information! 

This atlas will showcase local and global efforts, connect like-minded communities, and inspire others around the world. We invite you and your members to take part in a short survey (approx. 10 minutes) about your experiences. Your inputwill help. Participation is anonymous and voluntary, and you can stop at any time. The survey can also be translated into your preferred language. For more information and toparticipate, click here. [https://qualtrics.ucl.ac.uk/jfe/form/SV_3C4NjGuNKOVLaXI⁠]

 

How do I cite the episode in my research and reading lists?

To cite this episode, you can use thefollowing citation:

Daniel, T. (2025) Interview on The Death Studies Podcast hosted by Michael-Fox, B. and Visser, R. Published 1 June 2025. Available at: www.thedeathstudiespodcast.com [http://www.thedeathstudiespodcast.com/], DOI: 10.6084/m9.figshare.29207024

 What next?

Check out more episodes [https://thedeathstudiespodcast.com/episodes/] or find out more about the hosts! [https://thedeathstudiespodcast.com/the-hosts/]Gota question? Get in touch [https://thedeathstudiespodcast.com/contact-us/].



Dr. Terri Daniel on toxic theology, healthy theology, complicated grief, being a non-religious chaplain, hospice and loss

What's the episode about? 

In this episode, hear Sydney Campbell on Medical Assistancein Dying for mature minors, children’s participation, policy, assisted dying, childism, participatory research and end-of-life contexts

 Who is Sydney? 

Dr. Sydney Campbell is a Postdoctoral Fellow in the Faculty of Medicine at Dalhousie University.

 

She completed her PhD in the Institute of Health Policy, Management and Evaluation at the University of Toronto wherein she generated conceptual and empirical evidence to inform ongoing discussions related to Medical Assistance in Dying for mature minors in Canada.



As a whole, Sydney’s work aims to advance perspectives on the participation and engagement of young people, rethinking policy action and analysis with a child-inclusive lens, and improving children’s overall health and well-being inseveral facets of their lives, including in end-of-life contexts.

 

What was the conference mentioned at the start of the episode?

 

The conference 'Funeral and Death Ritual for the Modern World. Co-creation, participation, exploration' [https://naturalendings.co.uk/conference-funeral-and-death-ritual-for-the-modern-world/] is on 14th June 2025 at Natural Endings in Todmorden, West Yorkshire, UK. It's a gathering of undertakers , ceremonialists, writers/authors, artists and theatre makers. 

How do I cite the episode in my research and reading lists?

To cite this episode, you can use thefollowing citation:

Campbell, S. (2025) Interview on The Death Studies Podcast hosted by Michael-Fox, B. and Visser, R. Published 1 May 2025. Available at: www.thedeathstudiespodcast.com [http://www.thedeathstudiespodcast.com/], DOI: 10.6084/m9.figshare.28911446

 What next?

Check out more episodes [https://thedeathstudiespodcast.com/episodes/] or find out more about the hosts! [https://thedeathstudiespodcast.com/the-hosts/]Got a question? Get in touch [https://thedeathstudiespodcast.com/contact-us/].

Dr. Sydney Campbell on Medical Assistance in Dying for mature minors, children’s participation, policy, assisted dying, childism, participatory research and end-of-life contexts

What's the episode about?

In this episode, hear Claire Nally on literature, Goth, Steampunk, death memoirs, representations of dead women, death positive libraries & working in academia
Who is Claire?

 Claire Nally is Professor of Modern and Contemporary Literature at Northumbria University, UK, where sheresearches Irish Studies, Neo-Victorianism, Gender and Subcultures.

She published her first monograph, Envisioning Ireland: W. B. Yeats’s Occult Nationalism, in 2009, followed by her secondbook, Selling Ireland: Advertising, Literature and Irish Print Culture 1891–1922 (written with John Strachan).

She has co-edited a volume on Yeats, and two volumes on gender, as well as the international library series ‘Gender and Popular Culture’ for Bloomsbury (with Angela Smith).

 

She has written widely on a number of modern and contemporary topics, and her most recent monograph is Steampunk: Gender, Subculture and the Neo-Victorian, published by Bloomsbury in 2019.



She was co-I (with Stacey Pitsillides) on the Death Positive Library Project.

 

Her next book is entitled The Death Memoir in ContemporaryCulture.

How do I cite the episode in my research and reading lists?To cite this episode, you can use the following citation:

Nally, C. (2025) Interview on The Death Studies Podcast hosted by Michael-Fox, B. and Visser, R. Published 1 April 2025. Available at: www.thedeathstudiespodcast.com [http://www.thedeathstudiespodcast.com/], DOI: 10.6084/m9.figshare.28704131

What next?

Check out more episodes [https://thedeathstudiespodcast.com/episodes/] or find out more about the hosts! [https://thedeathstudiespodcast.com/the-hosts/]Gota question? Get in touch [https://thedeathstudiespodcast.com/contact-us/].

Professor Claire Nally on literature, Goth, Steampunk, death memoirs, representations of dead women, death positive libraries & working in academia

What's the episode about?

In this episode, get an overview of the 2025 Edited Collection Death and Institutions: Processes, Places and the Past

 

What is the Book About?

Institutions play a crucial role in shaping experiences of end-of-life care, dying, death, body disposal and bereavement. However, there has been little holistic or multidisciplinary research in this area, with studies typically focusing on individual settings such as hospitals and cemeteries, or being confined to specific disciplines.

This interdisciplinary collection [https://bristoluniversitypress.co.uk/death-and-institutions] combines chapters on process, place and the past to examine the relationships both within and between institutions, institutionalization and death in international contexts.

 

Of broad appeal to students and academics in areas including social policy, health sciences, sociology, psychology, anthropology, cultural studies, history and the wider humanities, this collection spans multiple disciplines to offer crucial insights into the end of life, body disposal, bereavement and mourning.

 

Introduction - Kate Woodthorpe, Helen Frisby and Bethan Michael-Fox

 

1. Culture as an Institution: Assessing Quality of Death in China - Chao Fang

 

2. The Market for Human Body Parts: Institutions,Intermediaries and Regulation - Lee Moerman and Sandra van der Laan

 

3. Secrecy, Judgement and Stigma: Assisted Dying inAotearoa New Zealand - Rhona Winnington

 

4.  Institutional Thoughtlessness: Prison as a Place forDying - Renske Visser

 

5. Out of the Ashes in New York City: Body StorageBottleneck in COVID-19's First Wave - Sally Raudon

 

6. Governing the Dead's Territory - Hajar Ghorbani

 

7.  'The Bluecoat Boys to Walk and Sing an Anthem before the Corpse': The Children of Christ's Hospital in London Funerals of the 18th Century - Dan O'Brien

 

8. Inside-Out and Outside-In: Learned Institutions andGarden Cemeteries in 19th-Century Britain - Lindsay Udall



9. ‘They Attached No Blame to the Staff in Charge': TheRole of Dublin Workhouse Administration in Preventing and Contributing to Institutional Mortality, 1872–1913 - Shelby Zimmerman

 

10.  Tenets and Tensions: A Critical Exploration of the Death Positive Movement - Anna Wilde

11.  Representations of Immortality and Institutions in 21st-Century Popular Culture - Devaleena Kundu and Bethan Michael-Fox

 

12. ‘I Was So Lost … and Who Brought You Back? Me.' - Deathstyle Gurus and the New Institutional Logics ofMourning on Instagram - Johanna Sumiala and Linda Pentikäinen

Afterword - Kate Woodthorpe, Helen Frisby and Bethan Michael-Fox

Want to publish with Bristol University Press and the Death and Culture series? Find out more. [https://bristoluniversitypress.co.uk/death-and-culture]



How do I cite the episode in my research and reading lists?

 

To cite this episode, you can use the following citation:

 

Woodthorpe, K., Frisby, H. and Michael-Fox, B. (2025) Interview on The Death Studies Podcast hosted by Michael-Fox, B. and Visser, R.Published 11 March 2025. Available at: www.thedeathstudiespodcast.com [http://www.thedeathstudiespodcast.com/], DOI: 10.6084/m9.figshare.28572215



What next?

Check out more episodes [https://thedeathstudiespodcast.com/episodes/] or find out more about the hosts! </ [https://thedeathstudiespodcast.com/the-hosts/]

Death and Institutions: Processes, Places and the Past

What's the episode about?

In this episode, hear highlights from the 7th International Symposium of the Death Online Research Network (DORS#7) and Tamara Kneese on digital death, genAI, ethics, moving from academia to the private sector, data, society & collective action



What was DORS#7?

The 7th International Symposium of the Death Online ResearchNetwork (DORS#7) on October 3rd–5th, 2024 was titled Digital Death: Transforming History, Rituals and Afterlife.

Hear soundbites and learn about the conference presentations and events in this episode!

Who is Tamara?

Dr. Tamara Kneese directs Data & Society Research Institute's Climate, Technology, and Justice program. Previously, she led Data & Society's Algorithmic Impact Methods Lab (AIMLab). Before joining D&S, she was lead researcher at Green Software Foundation, director of developer engagement on the Green Software team at Intel, and assistant professor of Media Studies and director of Gender and Sexualities Studies at the University of San Francisco.

 

She is the author of ⁠Death Glitch: How Techno-Solutionism FailsUs in This Life and Beyond⁠ [https://yalebooks.yale.edu/book/9780300248272/death-glitch/] (Yale University Press, 2023).

 

Tamara holds a PhD in Media, Culture and Communication from NYU.

⁠www.⁠ [http://www.datasociety.net/]⁠tamarakneese.com⁠ [http://tamarakneese.com] | ⁠@tamigraph.bsky.social⁠ [https://bsky.app/profile/datasociety.bsky.social]



How do I cite the episode in my research and reading lists?

To cite this episode, you can use the following citation:

Kneese, T. (2025) Interview on The Death Studies Podcast hosted by Michael-Fox,B. and Visser, R. Published 4 March 2025. Available at: ⁠www.thedeathstudiespodcast.com⁠ [http://www.thedeathstudiespodcast.com/], DOI: 10.6084/m9.figshare.28531994



 What next?

Check out more ⁠episodes⁠ [https://thedeathstudiespodcast.com/episodes/] or find out more about the ⁠hosts! ⁠ [https://thedeathstudiespodcast.com/the-hosts/]Got a question? ⁠Get in touch⁠ [https://thedeathstudiespodcast.com/contact-us/].



The 7th International Symposium of the Death Online Research Network (DORS#7) and Tamara Kneese on digital death, genAI, ethics, data, society & collective action

What's the episode about?

In this episode, hear Todd Meyers on grief, anthropology, entanglements, addiction, language, overdose death, opioid crisis, life’s incoherence and knowing your limits

Who is Todd?

Todd began his career as a painter, earning a BFA in studio from The School of the Art Institute of Chicago.  His interests slowly moved to the history of medicine, public health, and anthropology, earning a PhD in anthropology from the Johns Hopkins University.   

Todd began teaching in the Department of Social Studies of Medicine at McGill University in 2020, after previous appointments at New York University–Shanghai (2015-2020) and Wayne State University in Detroit (2009-2015).  He is currently Professor and Marjorie Bronfman Chair in Social Studies of Medicine at McGill.

In addition to his current book, Gone Gone (2025), Todd is the author and co-author of several other books, including All That Was Not Her (2022), which follows the life and death of a woman in Baltimore spanning twenty years, and The Human Body in the Age Catastrophe (2018, written with Stefanos Geroulanos), on the history of integration and disintegration in the study of human physiology at the beginning of the twentieth century. 

Todd's current work is an ethnography of hate related violence and legal psychiatry told through the murder of a gay man over thirty years ago.

 

How do I cite the episode in my research and reading lists?

To cite this episode, you can use the following citation:

Meyers, T. (2025) Interview on The Death Studies Podcast hosted by Michael-Fox, B. and Visser, R. Published 1 February 2025. Available at: www.thedeathstudiespodcast.com [http://www.thedeathstudiespodcast.com/], DOI: 10.6084/m9.figshare.28327976



What next? Check out more episodes [https://thedeathstudiespodcast.com/episodes/] or find out more about the hosts! [https://thedeathstudiespodcast.com/the-hosts/]Got a question? Get in touch [https://thedeathstudiespodcast.com/contact-us/].



 Todd Meyers on grief, anthropology, entanglements, addiction, language, overdose death, opioid crisis, life’s incoherence and knowing your limits 

The Death Studies Podcast is a platform for the diversity of voices in, around and contributing to the academic field of Death Studies. Find out more at www.thedeathstudiespodcast.com

The Death Studies Podcast

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